NBDF showcases a wide array of findings from the latest in bleeding disorders research at our annual Bleeding Disorders Conference.
Modeling of Daily Administration of N8-GP (ESPEROCT®) vs Standard Half-life FVIII for Patients With Hemophilia A Participating in Sports Activities
AWARDED/PRESENTED: 2019
GRANT/PROGRAM:
Bleeding Disorders Conference
Clinical Research/Clinical Trials
An evaluation of health utility and quality-of-life in hemophilia: a systematic literature review
AWARDED/PRESENTED: 2019
GRANT/PROGRAM:
Bleeding Disorders Conference
Quality of Life/Outcomes Research
Online CME as a Tool to Increase Clinicians’ Knowledge of Clinical Trial Data for Gene Therapy in Hemophilia
AWARDED/PRESENTED: 2019
GRANT/PROGRAM:
Bleeding Disorders Conference
Clinical Research/Clinical Trials
Increasing Medical Alert Devices (MAD) Compliance in School Age Children with Hemophilia: A Quality Improvement Project
AWARDED/PRESENTED: 2019
GRANT/PROGRAM:
Bleeding Disorders Conference
Quality of Life/Outcomes Research
A multidisciplinary approach to the successful transition of a complex patient with severe hemophilia A with inhibitor to Emicizumab (Hemlibra®): A Case Study
AWARDED/PRESENTED: 2019
GRANT/PROGRAM:
Bleeding Disorders Conference
Collaboration/Team Models
The WFH World Bleeding Disorders Registry – 16-month update
AWARDED/PRESENTED: 2019
GRANT/PROGRAM:
Bleeding Disorders Conference
Quality of Life/Outcomes Research
A Retrospective Study Evaluating Immune Tolerance Induction (ITI) with a Plasma-derived Factor VIII for Patients with Hemophilia A and High Titer Inhibitor
AWARDED/PRESENTED: 2019
GRANT/PROGRAM:
Bleeding Disorders Conference
Inhibitors
Data is the new currency: The World Bleeding Disorders Registry Data Quality Accreditation Program
AWARDED/PRESENTED: 2019
GRANT/PROGRAM:
Bleeding Disorders Conference
Quality of Life/Outcomes Research
NHF’s State Advocacy and the Bleeding Disorders Community
AWARDED/PRESENTED: 2019
GRANT/PROGRAM:
Bleeding Disorders Conference
Law/Ethics/Health Policy
Von Willebrand Disease: An international Survey to Inform Priorities for New Guidelines
AWARDED/PRESENTED: 2019
GRANT/PROGRAM:
Bleeding Disorders Conference
Quality of Life/Outcomes Research
Use of Return to Sport Testing for Prevention of Bleeding Episodes Following an Acute Injury in the Hemophilia Patient
AWARDED/PRESENTED: 2019
GRANT/PROGRAM:
Bleeding Disorders Conference
Orthopedic and Physical Therapy
von Willebrand Factor in Pregnancy (VIP) Study: A Multicenter Study of Wilate Use in von Willebrand Disease for Childbirth
AWARDED/PRESENTED: 2019
GRANT/PROGRAM:
Bleeding Disorders Conference
Women's Research
Depression in hemophilia and von Willebrand using the Beck Depression Inventory
AWARDED/PRESENTED: 2019
GRANT/PROGRAM:
Bleeding Disorders Conference
Psychosocial Issues
Optimizing signal strength and suppressive potential of FVIII specific CAR Tregs for tolerance induction in a murine model of hemophilia A
AWARDED/PRESENTED: 2019
GRANT/PROGRAM:
Bleeding Disorders Conference
Biomedical/Coagulation Research
Gender Differences in Parenting Stress and Social Support Among Hemophilia Families
AWARDED/PRESENTED: 2019
GRANT/PROGRAM:
Bleeding Disorders Conference
Psychosocial Issues
No evidence of germline transmission of vector DNA following intravenous administration of AAV5-hFIX to male mice
AWARDED/PRESENTED: 2019
GRANT/PROGRAM:
Bleeding Disorders Conference
Clinical Research/Clinical Trials
The impact of face-to-face social work meetings in bleeding disorder care
AWARDED/PRESENTED: 2019
GRANT/PROGRAM:
Bleeding Disorders Conference
Psychosocial Issues
Clinical Study to Investigate the Efficacy and Safety of Wilate During Prophylaxis in Previously Treated Patients With Von Willebrand Disease (VWD)
AWARDED/PRESENTED: 2019
GRANT/PROGRAM:
Bleeding Disorders Conference
Clinical Research/Clinical Trials
The Effect of Bleeding Disorder Characteristics on Patient Perceived Challenges and Management Strategies
AWARDED/PRESENTED: 2019
GRANT/PROGRAM:
Bleeding Disorders Conference
Peer Support/Outreach/Integration Models
Factor VIII deficiency is associated with abnormal brain volumes
AWARDED/PRESENTED: 2019
GRANT/PROGRAM:
Bleeding Disorders Conference
Clinical Research/Clinical Trials