Camps

NHF is pleased to announce the development and completion of the NHF Camp
Directory. This is a comprehensive national directory of camps for the bleeding
disorders community collaboratively produced by NHF.

NHF wants this national directory to be a resource for families, chapters and HTCs for
finding the best camp opportunities for young people in the bleeding disorders
community and to serve as an incentive for creating more camp opportunities for all
individuals and families affected by bleeding disorders.

This directory will be updated annually. If you are aware of a camp that is not
listed or you have changes or additions to camps already listed, please call Renee LaBrew
at 1-800-424-2634 ext. 3700.

We would like to thank each of you who contributed to the creation of this valuable
reference. You have helped to make it the important resource it is.

 ALABAMA (top)

Camp Clot Not

Contact Information
Dana Abrams
51 Highridge Dr.
Wetumtka, AL 36093
(866) 269-8665
dana.abrams@caremark.com
www.hbda.us

Date
July 23-28, 2006

Registration Fee 25.00

Age Range of Campers
6 – 18 years old

Camp Funded By
Scholarship available through
Hemophilia state program

Number of 2004 Campers
14

Special Camp Programs
• Share time, talent shows, water skiing, ropes, horseback riding, boats and
canoes, wild life refuge
• Self-infusion instruction based on child’s ability
• Transportation available in some areas

 ALASKA (top)

No in-state camp; children from Alaska generally attend hemophilia camp in
Northern California.

Contact Information
Wayne Cobb/
Alaska Hemophilia Association
2810 Aspen Drive
Anchorage, AK 99517
(907) 243-5405
(907) 243-4038 Fax
bcmmaskie@cmh.edu

 ARIZONA (top)

Camp Honor

Contact Information
Michael Rosenthal
Hemophilia Association, Inc.
4001 N. 24th Street
Phoenix, AZ 85016
(602) 955-3947
(602) 955-1962 (fax)
Mike@hemophiliaz.org
http://www.hemophiliaz.org

Date
August 6 - 13, 2004 for Staff
August 8 - 13, 2004 for campers

Number of 2004 Campers
120

Average Number of Past Campers
100 – 120

Special Camp Programs
Children with bleeding disorders and their symptoms
• Hemophilia education
• Swimming, sports, archery, art & crafts, hiking, drama, karate, canoeing, fine arts, pinewood derby, TV News

 CALIFORNIA (top)

Camp Blood Brothers and Sisters

Contact Information
Linda Corrante
Program Director
Hemophilia Foundation of Southern California
33 S. Catalina Avenue, Suite 102
Pasadena, CA 91106
(800) 371-4123
(626) 793-6192 Phone
(626) 796-5605 Fax
hfsc@earthlink.net
http://www.hemosocal.com

Date
July 6-12, 2005

Number of 2004 Campers
100

Average Number of Past Campers
90 – 105

Camper Audience
Children ages 7 – 16 who have genetic bleeding disorders as well as their siblings if space permits.

Camp Funded By
Generous donations garnered through the support of Foundations, corporations and individuals.

Special Camp Programs
• Basic Hemophilia education
• Self-infusion instruction, with parent consent
• Programs include swimming, crafts, archery, hiking/nature, canoeing, fishing,
rock climbing, pine wood dirby, and HemOlympics.
• Counselor in Training (CIT) program- This program allows young people
between the ages 15 and 17 to become counselors.

Additional Comments
Camp Blood Brothers and Sisters is one of the oldest and one of the largest camping and outreach programs for kids affected by hemophilia and other bleeding disorders, serving about 100 children each year.

Currently in its 28th year, our camp is specifically designed to meet the special needs of children with hemophilia and other bleeding disorders by providing
activities that are hemophilia friendly, recruiting counselors and staff who are familiar with bleeding disorders (many have bleeding disorders themselves), and we bring up an extraordinary medical team, on duty 24 hours a day, who are specially trained to provide hemophilia care.

More importantly, it’s a safe haven. A place that provides kids with a wonderful opportunity to have a time for themselves; where they can have a fun, memorable experience with other children with similar conditions, learn more about and talk to others affected by hemophilia, and hopefully, gain more self-awareness as a result.
Summer campals offers a focused leadership for Jr. staff as well as workshop for young women with bleeding disorders.

Alternatively, providing their family members the opportunity to take a short respite from providing continual care; while knowing that their child is in good hands in a physically safe and medically sound camp.

Camp Arroyo

Livermore, CA
(A project of the Hemophilia Foundation N. California)

Contact Information
Robin Bratton-Bias
Hemophilia Foundation of Northern California
7700 Edgewater Dr., Suite 710
Oakland, CA 94621
510-568-6243
Fax 510-568-6111
http:///www.hfnonline.org

Date
May 6-8, 2005 Family

Cost
$25 – per person, not to exceed $100 per family

Age Range
None

Capacity of Camp
144

Ethnic/Cultural Background of
Past Camp Attendees
Multicultural; representative of California’s
diversity.

(A project of the Hemophilia Foundation N. California)

Geographic Area of Camp Attendees
Northern California – Greater Bay Area, Sacramento;
Nevada; Central Valley of California

Number of 2004 Campers
300

Average Number of Past Campers
90

Special Camp Programs
The focus is for families to have a good time with peers. Parents are responsible for their own children. There are no counselors. Scheduled activities include: arts & crafts, swimming, hiking, talent show, and star gazing.

Additional Comments
The purpose of this camp is: 1) to bring affected families together for mutual support, 2) to include unaffected siblings, and extended family in community activities, and 3) to familiarize families with the site of the children's summer camp.

Camp Hemotion

Contact Information
Same Information as in original directory with the addition of a new email address:
Robin Bratton Bias

hfnchemo@aol.com

Dates
June 3-9, 2005

Age Range of Campers
7-14 years old
15-18 years old as Junior Counselors
18-21 assistant counselors

Number of 2004 Campers
75

Average Number of Past Campers

70-95

Capacity of Camp
290

Geographic Area of Camp Attendees
Northern California and Central California

DAO Hemophilia Adventure Camps for Persons with Bleeding Disorders

Contact Information
Todd Smith, President
Disabled Adventure Outfitters
P.O. Box 152
Arcata, CA 95518
(707) 822-1101
daopesident@mindspring.com
www.specialadventures.org

Dates
Session A: June 8-14, 2003 Hemophilia Adult Adventure Camp III
Session B: June 22-28, 2003 Hemophilia Adventure Camp I-II
Session C: June 23-29, 2003 Hemophilia Teen Adventure Camp
Other dates by arrangement with your group

Cost
$10 registration fee
Application forms available on Web site

Location
Trinity and Klamath Rivers, Six Rivers National Forest,
Near Eureka, CA

Age Range of Campers
Adult Adventure Camp: 19 and older
Teen Adventure Camp: 13-18

Capacity of Camp
20 each camp

Average Number of Past Campers
35

Geographic Area of Camp Attendees
Historically: Northern California – Greater Bay Area, Sacramento,
Central Valley of California
Sessions B and C open to participants from all areas!

Special Camp Programs
DAO Adventure Camp programs bring exciting whitewater and fishing
Experiences to persons with bleeding disorders on the beautiful Trinity and Klamath Rivers in Northern California (Bigfoot Country!). Challenging, fun
Programs stress cooperation and teamwork while allowing participants to pace themselves individually. Professional guides and skilled volunteers have years of experience bringing such experiences to persons with bleeding disorders, and safety is always top priority.

Additional Comments
Disabled Adventure Outfitters, a 501 (c ) (3) nonprofit organization, evolved from a local post-summer camp overnight trip started in the 1980’s. The DAO board of
directors consists of persons with hemophilia, outdoor professionals, and a special education teacher.

DAO is committed to providing access to fun, adventure, and personal growth with outdoor activities for people with bleeding disorders and other disabilities. We also welcome the opportunity to help chapters work with local outfitters and guides to develop outdoor programs in their respective areas.

Pascucci Family Camp Fire Fly- Summer Fun Camp
(A Project of the Hemophilia Association of San Diego County)

Contact Information
Jessica Swann
Executive Director
Hemophilia Association of San Diego County
3570 Camino Del Rio North, Suite 108
San Diego, CA 92108
(619) 325-3570
(619) 325-4350 Fax
infor@camp@hasdc.org

Dates
July 24-29, 2006

Cost
$25.00 Registration fee (Refundable upon child’s return from camp)

Age Range of Campers
7 – 14 years old
15-17 Junior - Counselors
18 and older – Counselors-Volunteer camp staff

Capacity of Camp
Approximately 180

Ethnic/Cultural Background of
Past Camp Attendees
Multicultural; representative of California’s Diversity.

Geographic Area of Camp Attendees
Southern California – San Diego and Imperial Counties.

Number of 2005 Campers
52

Average Number of Past Campers
50

Special Camp Programs
Scheduled activities include: archery, riflery, climbing wall, boating, fishing, carnival, international sports, water polo, newspaper, drama, arts and crafts, swimming, hiking, skit night, camp fires, candle lighting ceremony and star gazing.

Other Features Include:
Junior counselor program (15-17 years old)
Self-infusion instruction for 8-12 years old but also to anyone who is interested.
Prevention education on HIV, hepatitis, joint disease and physical therapy
Education on hemophilia and von Willebrand disease
Life skills sessions

Additional Comments
A wonderful and enriching experience for both campers and staff. Programs are geared to empower each participant.

 COLORADO (top)

Colorado Mile High Camp

Contact Information
Erin Stang, LCSW
Mountain States Regional Hemophilia & Thrombosis Center
P.O. Box 6507, Mail Stop F416
Aurora, CO 80045
(303) 724-0367- Phone
(303) 724-0947 – Fax

Date
July 25-30, 2004

Cost
$75 per family address for patients of Mountain States Regional Hemophilia & Thrombosis Center. $50.00 for registrations received by May 1, 2004.

Geographic Area of Camp Attendees
Colorado, Wyoming, Montana, Western Nebraska, Kansas and South Dakota

Number of 2003 Campers
65

Additional Comments
Mile High Camp is for children between the ages of 7 and 13 who have a bleeding or clotting disorder and their siblings. Education as well as camp activities are conducted throughout the week. Mile High Camp uses the facilities of the Easter Seal Society of Colorado. The camp is approximately one hour west of Denver. Wilderness camp is provided for adolescents with bleeding disorders, ages 14-17.

 CONNECTICUT (top)

The Hole in the Wall Gang Camp
Ashford, CT

Contact
Mathew Cook
565 Ashford Center Road
Ashford, CT 06278
(860) 429-3444
(860 429-1760 – fax
http://www.holeinthewallgang.org/whoweare.html

9 sessions of 7 days per session
Final session, August 22-27, is for siblings only.

Dates
June 10th – June 16, 2005 General Session
June 19th - June 25, 2005 General Session

Age Range of Campers
7 – 15 years old

Capacity of Camp
120

Number of 2004 Campers
1021

Camp Funded By
This camp is funded by fundraising proceeds, corporate donations and individual gifts.

 DELAWARE (top)

No in-state camp; children from Delaware generally attend hemophilia camp(s) in Michigan and Hole in the Woods Ranch in New York.

 FLORIDA (top)

Boggy Creek Gang Camp
Eustis, FL

No charge to families

Fran Haynes
Hemophilia Foundation of Greater Florida
1350 N. Orange Avenue, Suite 227
Winter Park, FL 32789
(407) 629-0000
(407) 629-9600 (fax)

Date
June 5-10 2006

Capacity of Camp
60

Age Range of Campers
7-16 years old

Camp Funded By

The Hemophilia Foundation of Greater Florida Chapter, and supported by the Florida Chapter of NHF.

Dream Oaks Camp
Six day Summer Camp sponsored by the Florida Chapter of NHF
Located in Bradenton, FL

Contact Information
Linda Thomas
Camp Director
924-426-0562
linda316@bellsouth.net
Or Debbie Admakin, Executive Director
(888) 880-8330
305-233-2993

Date
June 25-29, 2006

Age Range of Campers

6-18 years of age.
Hemophilia and related bleeding disorder children session only.

Programs/ Activities Include: Horseback riding, arts & crafts, music, nature studies, swimming, canoeing, fishing, dances, campfires, hayrides, field trips, talent shows, awards ceremony, carnivals, scavenger hunts, overnight teen camping, boat rides, guest speakers and entertainers, vocational education.

 GEORGIA (top)

Camp Wannaklot
Atlanta, GA

Contact Information
Victor McCarty
Camp Director
Hemophilia of Georgia
8800 Roswell Road, Suite 170
Atlanta, GA 30350-1844
(770) 518-8272
(770) 518-3310 (fax)

Date
July 16-21, 2006

Cost
$10

Age Range of Campers
7 - 17 years old

Number of 2005 campers
108

Special Camp Programming
• Teen camp
• Ceramics
• Highropes Course
• Boating

 HAWAII (top)

Camp Mokuleia
On the North Shore of the Island of O'ahu, Hawaii

Name of Contact
Merrie Carol Grain
Hemophilia Foundation of Hawaii
1164 Bishop Street – Ste. #1501
Honolulu, HI 96813
(808) 521-5483 - phone
(808) 528-7430 - fax

Date
June 19-26, 2004

Number of 2003 Campers
36

 ILLINOIS (top)

Camp Warren Jyrch
Hudson, IL
East Bay Conference and Retreat Center

Contact Information

Date

Sunday, July 23–July 29 2006
Camp White Eagle
6903- W. White Eagle Rd
Leaf River, IL 61047

Cost

No cost to Illinois residents
Pay of suggest fee of $200 for nearby residents with no camps.

Campers/Sympomatic

Boys with bleeding disorders age 7-17

Special Camp Programs

• Counselor-in-training (CIT) Program
• Self-infusion instruction
• Programs include swimming, crafts, archery, nature, canoeing, fishing

 INDIANA (top)

Camp Brave Eagle
Indianapolis, IN 

Contact Information
Jennifer Maahs, PNP
8402 Harcourt Road
Suite 420
Indianapolis, IN 46260
(317) 871-0011 ext. 212
(317) 871-0010 (fax)

Date
June 18- June 23, 2006

Campers Audience – Ages 7-16

• Boys with bleeding disorders
• Girls with bleeding disorders
• Siblings of children with bleeding disorders
• Carriers

Number of 2002 Campers
70

DOUG THOMPSON LEADERSHIP CAMP

Contact Information
Jennifer Maahs, PNP
8402 Harcourt Road
Suite 420
Indianapolis, IN 46260
(317) 871-0011 ext. 212
(317) 871-0010 (fax)
www.campbraveeagle.org

Date
July 30 to August 5 2005

Ages
16-19

Location
N/A- Please contact Jennifer Maahs

Camp Activities
Independent camping with backpacking, tent camping and leadership training.

Camp Independence
Indianapolis, IN

Contact Information
Andy Harner, LSW
Riley Hospital for Children
702 Barnhill Drive, Rm. 2720
317-278-1835
800-238-8399

Rhonda Cantrell
Marion County Health Department
3838 North Rural Street
Indianapolis, IN 46205
317-221-2105

Date
July 27 – August 1, 2003

Camper Audience –
• Ages 8-18
• Boys with bleeding disorders
• Girls with bleeding disorders
• Sibling of children with bleeding disorders

Additional Comments
This year the camp will be accepting siblings.

Camp Independence is a summer camp for boys & girls with bleeding disorders. Camp is held at Bradford Woods, north of Martinsville. A combination of activities
and educational programs allows campers to learn to manage their chronic illness while experiencing the fun of camp. Arts and crafts, canoeing, swimming, and hiking help campers develop anew skills an increase their self-confidence. Camp Independence has special activities for teenagers that will provide an advanced camping experience which will be physically, mentally, and emotionally challenging. Campers will learn leadership and team building skills that will carry over into adult life

 IOWA (top)

Sorry, currently there are no camps listed for Iowa. For more information about programs in the area, contact:
University of Iowa Hospital and Clinics
Iowa Regional Hemophilia Center
Department of Pediatrics
200 Hawkins Drive
Iowa City, IA 52242-1009
(319) 356-4277

 KANSAS (top)

No in-state camp; children from Kansas generally attend Wilderness Camp in Missouri. For more information about programs in the area, contact:
Kansas City Regional Hemophilia Center
2301 Holmes
Kansas City, MO 64108
(816) 235-1820
(816) 556-3953 (fax)

 KENTUCKY (top)

Cedar Ridge Camp Facility, Louisville, KY (ACA accredited)

New Summer Camp Program for Children Ages 7-12*
Children ages 13-15 and their younger siblings with inherited bleeding disorders will attend Camp Freedom in the Land between the Lakes, which is operated by the Tennessee Hemophilia and Bleeding Disorders Foundation

Contact Information
Ursela Lacer
Kentucky Hemophilia Foundation
982 Eastern Parkway
Louisville, KY 40217-1571
(502) 634-8161, 800-582-CURE (2873)
(502) 634-9995 (fax)
info@kyhemo.org
www.kyhemo.org

Date
July 10-14, 2005 for the 7-15 year-olds

Age Range of Campers
7 – 15 years old; must have completed first grade

Capacity of Camp
20

Camper Audience
Boys and girls with genetic bleeding disorders

Geographic Area of Camp Attendees
Campers reside in or receive treatment in Kentucky

Number of 2004 Campers
25

Additional Comments
Kentucky’s new camp program combines experiential education with outdoor adventure and fun for the development of self-esteem, confidence, team-building and leadership skills. Age-appropriate activities and exercises are designed to promote physical, emotional, and mental wellness and risk-reducing behaviors.

 LOUISIANA (top)

Camp Wounded Knee
Baton Rouge, LA

Contact Information
Lori Keels
Executive Director
Louisiana Chapter of NHF
3636 South Sherwood Forest Blvd,
Suite 450
Baton Rouge, LA 70816
(225) 291-1675 (B)
(225) 291-1679 (FAX)
Email - lhf@cyberview.net
http:///www.cyberview.net/~lhf/

Date
July 27-30, 2005

Cost

$75 family registration fee

Capacity of Camp

45 families/ 200 people

Judson Baptist Teen Retreat Weekend
Jackson, Louisiana
June 18-19th

Number of 2003 Campers
38

Age range of campers
6 through 14

Theme-
A Sea of Possibilities- Actives includes hot air balloon riding, rock climbing, swimming, basketball, nature walks and horse back riding
The teen weekend retreat consists of water paddling, canoeing, nature trails and swamp tours.

 MAINE (top)

Hemophilia Family Camp
Camp Mechuwana
Winthrop, ME

NeHa Family Camp
Geneva Point Center, Center Harbor, New Hampshire

Contact Information
Jane Smith, Program Director
New England Hemophilia Association
347 Washington Street Suite 402, Dedham, MA 02026
(781) 326-7645 phone
(781) 329-5122 fax
neha@theworld.com

Date
July 28-31, 2004

Cost
$75 family registration fee

Capacity of Camp
48 families/ 200 people

Number of 2003 Campers
44 families/ was a waiting list

Average Number of Past Campers
200

Special Camp Programs
• Mentoring programs for adolescents with bleeding disorders
• Counselor-in-training (CIT) program
• Self-infusion instruction
• Educational group sessions
• Woodshop
• Swimming
• Arts and crafts
• Wilderness Trips
• Archery
• Early childhood program – first step

 MARYLAND (top)

No in-state camp; children from Maryland generally attend Camp Freedom in Dover, Tennessee or Hole in the Wall Gang Camp in Ashford, Connecticut. For more information about programs in the area, contact:
Hemophilia Foundation of Maryland
P.O. Box 164
Phoenix, MD 21131
(410) 288-3955
(410) 285-3271 (fax)

 MASSACHUSSETS (top)

No in-state camp; children from Massachusetts attend Hemophilia Family Camp in Winthrop, Maine or Hole in the Wall Gang Camp in Ashford, Connecticut. The New England Hemophilia Association coordinates campers from Massachusetts to attend these camps. For more information about programs in the area, contact:
New England Hemophilia Association
180 Rustcraft Road
Dedham, MA 02026
(781) 326-7645
(781) 329-5122 (fax)

 MICHIGAN (top)

Camp Bold Eagle and Eagle Outpost
Holton, MI

Contact Information
Anna Heminingfield
Hemophilia Foundation of Michigan
905 West Eisenhower Circle Suite 107
Ann Arbor, MI 48103
(734) 332-4226 ext. 23
(800) 482-3041
(734) 332--2889 (fax)
Barbara@hfmich.org
http://www.hfmich.org

Date
Session 1 July 10-15, 2005, for boys and girls ages 6-10
Session 11 July 17-24, 2005, for boys and girls ages 11-13

Cost
$500 is for both Michigan and out-of-state residents. Scholarships are available for Michigan residents. Acceptance is not based on ability to pay.

Capacity of Camp
55 per session

Number of Campers in 2003
85-90

Special Camp Programs
• Counselor-in-training (CIT) program
• Fourth-year medical students do a rotation as camp counselors
• Self-infusion instruction for all ages with parents’ permission
• Prevention education on universal precautions, hepatitis, joint protection, exercise, and early intervention

Eagle Outpost Traveling Camp

Contact Information
Anna Heminingfield
Hemophilia Foundation of Michigan
905 West Eisenhower Circle Suite 107
Ann Arbor, MI 48103
(734) 332-4226 ext. 23
(800) 482-3041
(734) 332--2889 (fax)
Barbara@hfmich.org
http://www.hfmich.org

Date
August 8-14, 2004 for boys and girls ages 14-15

Cost
$500 is for both Michigan and out-of-state residents. Scholarships are available for Michigan residents. Acceptance is not based on ability to pay.

Number of 2003 Campers
20

Additional Comments
We are accepting male and female with hereditary bleeding disorders, including carriers ages 14-15 and campers from Michigan, Ohio, Indiana and Wisconsin. Campers from other states accepted as space is available.

 MINNESOTA (top)

Camp Courage North
Mendota Heights, MN 

Contact
James Paist
Executive Director
Hemophilia Foundation of Minnesota and the Dakotas
750 South Plaza Drive Suite 207
Mendota Heights, MN 55120
(651) 406-8655
(651) 406-8656 Fax
hemophiliafound@visi.com

Date
July 10-16, 2005 -Boys and girls 8-17

Cost
$420 per child; scholarships available

Camp Funded By
The Hemophilia Foundation of Minnesota and the Dakotas also with support from Cancer Kids Fund of Children’s Hospital and Clinics, HTCs, private donors, industry.

Number of 2004 Campers
60

Special Camp Programs
• Counselor-in-training (CIT) program
• Mentor program, 1st year campers by older campers
• Prevention education on universal precautions, hepatitis, joint disease
• Self infusion instruction offered to all ages

 MISSISSIPPI (top)

Camp Lake Stephens
Jackson, MS

Contact Information
Betty Gentry, RN
University of Mississippi Medical Center
Pediatric Hematology/Oncology
2500 North State Street
Jackson, MS 39216-4505
(601) 984-2710
(601) 984-5279 Fax
bgentry@peds.umsmed.edu

Date
Not yet determined

Number of 2001 Campers
15

 MISSOURI (top)

Camp KIWIBleDi- (Kids with Bleeding Disorders)
Lawson, MO

Contact Information
Mid West Hemophilia Association
PO Box 412866
Kansas City, MO 64141
(800) 431-7960

Date
First week of August 2-7, 2004

Cost
Camp is at no cost for eligible children

Age range of campers
7-18

Camp funded by
Private donors, chapter, industry grants

Camp capacity
65 campers

Geographic area of camp attendees
Missouri, Kansas and Nebraska

Number of campers for 2002
60

Special camp programs
Counselors in training program, adolescent campout and self infusion instruction for all ages.

 MONTANA (top)

Helena, Montana – Family Camp
Bozeman, MT 

Contact Information
Kelli Anderson
Rocky Mountain Hemophilia and Bleeding
Disorders Association
PO Box 3468
Bozeman, MT 59715
(406) 522-9927 Phone/Fax
hemophilia@montanadsl.net

Date
June 28-30, 2003

Age Range
Family Camp – All ages

Number of Campers for 2002
70

Educational Programming to be Included
Medicaid (by the State of Montana), Prophylaxis Insurance Advocacy and Gene Therapy

Funded By
Donations are from industries, grants and fundraisers.

Geographic Area of Camp Attendees
Montana & Wyoming- Widely spread area

 NEBRASKA (top)

Camp Coholo

Contact Information
Anisa Hoie, RN
402-955-3959
402-955-3972

Date
July 21st –24, 2002 for 6 – 11 year olds
July 24th – July 28, 2002 for 12 – 16 year olds

Special Camp Programs
Provides a typical camping experience for kids who might otherwise not have a chance to go to camp. No treatment discussions or teaching. Full medical staff attends and treatments are given.

 NEVADA (top)

Camp Independence
We serve affected youth and their siblings ages 7-17
Camp is sponsored by Hemophilia Foundation of Nevada, Project Sunshine and a grant from Speedway Children's Charities

Contact Information
Nancy Lewis-Camp Director
Jeanne Fivash-Assistant Camp Director
Hemophilia Foundation of Nevada
PO Box 90158
Henderson, NV 89009
702 564-4368
702 564-2299-fax

Date
Date to be determined for camp 2005

 NEW HAMPSHIRE (top)

No in-state camp; children from New Hampshire attend Hemophilia Family Camp in Winthrop, Maine or Hole in the Wall Gang Camp in Ashford, Connecticut. For more information about programs in the area, contact:
New England Hemophilia Association
180 Rustcraft Road
Dedham, MA 02026
(781) 326-7645
(781) 329-5122 (fax)

 NEW JERSEY (top)

No in-state camp; children from New Jersey attend The Hole in the Wall Gang Camp in Ashford, Connecticut or The Hole in the Woods Camp in Lake Luzerne, New York. The Hemophilia Association of New Jersey coordinates campers from New Jersey to attend these camps. For more information about programs in the area, contact:
Hemophilia Association of New Jersey
37 West Prospect Street
East Brunswick, NJ 08816
(732) 238-5250
(732) 238-7039 (fax)

 NEW MEXICO (top)

Sangre de Oro Hemophilia Family Camp

Contact Information                                              

Loretta Cordova
(505) 341-9321 (phone)

Date

June 11 -16, 2006

Age

7 thru 16

Number of 2005 Campers

30

Camp Progams

Swimming, Wall climbing, ropes course, arts and crafts.

Lots of education

Home medical HTC staff on site

Additional Comments
Children and their siblings from New Mexico attend this camp.

 NEW YORK (top)

Camp High Hopes
Syracuse, NY

Contact
Bob Graham
103 Fay Road
Syracuse, New York 13219
(315) 463-5354
contact@camphighhopes.org

Application available at:

www.Camphighhopes.org

Date
August 7-16, 2005

Number of 2004 Campers
35

Hole in the Woods Ranch
Lake Luzerne, NY

Contact
Heather Bates
(518) 696-5676

Date
(8 sessions, 6 days long)

Session 1 – June 28 –July 3, 2005

Session 2 – July 6-11, 2005

Session 3 – July 13-19, 2005

Session 4 – July 22-26, 2005

Session 5 – July 29- August 4, 2005

Session 6 – August 6-12, 2005

Session 7 – August 15-20, 2005

Cost
No fees charged
No transportation

Number of 2003 Campers
900

Average Number of Past Campers
950

 NORTH CAROLINA (top)

Camp Carefree
Stokesdale, NC

Contact Information
Comprehensive Hemophilia Center
Old Clinic Bldg. – 1st fl., Rm. W1022
CB#7016
UNC-Chapel Hill
Chapel Hill, NC 27599-7016
(919) 966-4733 (phone)
(919) 966-8224 (fax)

Date

July 21 - 27, 2002 for children with bleeding disorders

June 16 - 22, 2002 for siblings of children with bleeding disorders only. 

July 14 – 20, 2002 for children with a seriously ill or disabled parent

 NORTH DAKOTA (top)

No in-state camp; children from North Dakota generally attend Camp Courage North in Lake George, Minnesota. For more information about programs in the area, contact:
Fairview University Medical Center
Comprehensive Hemophilia Program
Box 713
420 Delaware Street, S.E.
Minneapolis, MN 55455
(612) 626-6455
(612) 625-4955 (fax)

 OHIO   (top)

Camp Joy
Oregonia, OH

Contact Information
Polly Partin-Welsh
Children’s Hospital Medical Center
TCHRF, Room 2369
3333 Burnet Avenue
Cincinnati, OH 45229-9981
(513) 636-4269
(513) 636-5999 - fax

Date
August 23-28 2006

Geographic Area of Camp Attendees
Indiana, Kentucky, Ohio

Age Range
7-15

Average Number of Past Campers
35

Special Camp Program
• Self-infusion instruction for all ages
• Prevention education on universal precautions

Camp C.H.O.P.S.
(Children's Hematology Oncology Patients and Staff)
at Camp Christopher
Bath OH

Contact Information
Kimberly Schafer-Alt
Children’s Hospital Medical Center of Akron
One Perkins Square
Akron, OH 44308
(330) 543-8830
(330) 543-3836 (fax)

Date
June 9, 10, 11, 2006

Cost
$20 donation requested; everyone is eligible (not based on abililty to pay)

Age Range of Campers
6-15 years old

Camp Funded By
Community organization donations, camper donations

Capacity of Camp
200

Camper Audience
• Boys and girls with bleeding disorders
• Oncology and sickle cell anemia boys and girls

Ethnic/Cultural Background of past Camp Attendees
Caucasian, African American, Asian/Pacific Islander, Middle Eastern

Geographic Area of Camp Attendees
17 counties are covered by Children’s Hospital of northeast Ohio.

Number of 2005 Campers
70

Average Number of Past Campers
70 – 90

Special Camp Programs
Counselor-in-training (CIT) program (age 15-17)

Additional Comments
Hospital hematologist available all weekend. About one third of the counselors are former patients.

Camp FamOhio                           

 Contact Information

Mary Ann Kerr, LISW

University Hospital of Cleveland

RB&C, Room 340

11100 Euclid Avenue

Cleveland, OH 44106

(216) 844-3802 Phone

(216) 844-5431 Fax

 SOUTHWESTERN OHIO (top)

Dayton, OH
Children from Southwestern Ohio generally attend hemophilia camp in Michigan.

 OKLAHOMA (top)

Camp Independence

Contact Information
Beverly Stevens
405-271-3661
405-271-3756 - Fax

Date
June 20-25, 2004

Camper Audience
Boys and girls with bleeding disorders and their siblings
Ages 7 - 16

Number of 2003 Campers
50

Special Camp Program
Heredity
Self infusion instruction
Basic hemophilia and VonWillebrand’s education

 OREGON (top)

Camp Tapawingo
Falls City, OR

Contact
Monica Dickey
(503) 297-7207
(503) 297-0127 Fax
hfo@easytreet.com

www.hfo.info

Date

July 30 –August 5, 2006

Age Range of Campers

6 - 15 years old

Children 16yrs and older can apply for counseling positions.

Number of 2005 Campers

60

 PENNSYLVANIA (top)

Camp Hot-To-Clot
Held at Camp Judson
Springfield, PA

Contact Information
Jackie Lucas
Western PA Chapter of NHF
HAVEN (Hemophilia and von Willebrand Education Network)
1147 West 24th Street
Erie, PA 16502
(814) 454-6937
hottoclot@yahoo.com

Date
August 13- 19, 2006

Cost
$50.00 deposit is refundable upon registration at camp. Free to instate campers and all staff. $350.00 is for out of state campers; travel to be arranged by camper and home state Hemophilia Foundation or Association.

Age ranges of campers
7-17 years old

CIT Program for Campers age 15-17

Camp funded by
Private and corporate donations; industry; grants

Camp Audience
Boys with bleeding disorders
Girls with bleeding disorders
Siblings
Children of persons with bleeding disorders

Ethnic/cultural background
Multi-cultural

Geographic area of Camp Program
Primarily Pennsylvania, if space warrants campers are welcome from outside PA

Average number of campers
2005 was the first year of camp and we had 50 campers.

Special camp programs
Climbing wall
Healing through journal writing
Art and crafts for boy interests and girls interests
Golf

Other children from Pennsylvania generally attend hemophilia camps in West Virginia and Hole in the Woods Ranch in New York. The Western Pennsylvania Chapter supports and arranges attendance for children in West Virginia and other Out-of- State Camps.

 RHODE ISLAND (top)

Camp Aldersgate

Contact Information
Lydia Grande
Francis Payne
(401) 944-6950
(401) 944-4161 fax

 SOUTH CAROLINA (top)

Camp Running Brave

Contact
Vic & Roberta Fisher
(864) 879-4681
http://www.hemophilia-sc.org/camp or http://www.camppage.com/cuol/

Date
June 24 thru 29, 2005

Victory Junction Gang
Located Randlemen , NC

Kyle & Pattie

Archery, arts and crafts horse back riding, fishing, interactive race shop, nature expedition and adventure rope tours, swimming, theatre and sports and recreation.

This season will be Hollywood week.

Number of 2004 Campers
25 with Hemophilia

 SOUTH DAKOTA (top)

No in-state camp; children from South Dakota generally attend Camp Courage North in Lake George, Minnesota. For more information about programs in the area, contact:
Fairview University Medical Center
Comprehensive Hemophilia Program
Box 713
420 Delaware Street, S.E.
Minneapolis, MN 55455
(612) 626-6455
(612) 625-4955 (fax)

 TENNESSEE (top)

Camp Freedom
(Joint camp program with the Kentucky Chapter)
Brandon Springs, TN

 TEXAS (top)

Camp Ailihpomeh
Women with Bleeding Disorders Retreat/Camp

Contact Information

Ed Kuebler, LMSW-ACP

Darryl Moczygemba-Co Director

Gulf States Hemophilia & Thrombophilia Center

6655 Travis, Suite #400

Houston, TX  77030

(713) 500-8360 ED

(210) 704-3022

(713) 500-8364 (Fax)

Dates

July 11-16, 2004

Number of 2003 Campers/parents

110

Average Number of Past Campers

100

 UTAH (top)

Camp Courage
Salt Lake City, UT

Contact Information
Susan Soleil
Executive Director
Utah Hemophilia Foundation
880 East 3375 South
Salt Lake City, UT 84106
(801) 484-0325
(801) 484-4177 (fax)
soleil@hemophiliautah.org
http:www.hemophiliautah.org

Date
July 31 – August 5 2006

Age ranges of campers
8-13 (Space is limited for siblings.)

Ethnic/Cultural Background of Past Camp Attendees
Caucasian, Native American, Hispanic

Capacity of Camp
40

Cost
Utah residents $30.00 and out-of –state residents $200.00

Memorial River Rafting Trip

Contact Information
Susan Soleil
Executive Director
Utah Hemophilia Foundation
880 East 3375 South
Salt Lake City, UT 84106
(801) 484-0325
(801) 484-4177 (fax)
(801) 463-6893
soleil@hemophiliautah.org

Age ranges of campers
14-20

Date
June 2005

Cost
$40.00 Utah residents
$200.00 for out-of-state residents

Capacity of River Trip
30

Ethnic/Cultural Background of
Past Camp Attendees
Caucasian, Native American, Hispanic

 VERMONT (top)

No in-state camp; children from Vermont attend Hemophilia Family Camp in Winthrop, Maine or Hole in the Wall Gang Camp in Ashford, Connecticut. The New England Hemophilia Association coordinates campers from Vermont to attend these camps. For more information about programs in the area, contact:
New England Hemophilia Association
180 Rustcraft Road
Dedham, MA 02026
(781) 326-7645
(781) 329-5122 (fax)

 VIRGINIA (top)

Camp Holiday Trails
Charlottesville, VA

Contact Information
Tina LaRoche

Executive Director of Programs
P.O. Box 5806
Charlottesville, VA 22905
(434) 977-3781
(434) 977-8814 (fax)
Email– holidaytrails@nexet.net
www.avenue.org/cht

Date
Summer Programs:

Session 1 – June 25- July 7, 2006
Session 2 – July 9 - 21, 2006
Session 3 – July 23 – August 4, 2006

Cost
Well children in a family with chronic illness (Cost of camp is 1120.00 per session). Scholarships are available. No child is turned away because of inability to pay.

Capacity of Camp
70 per session

Number of 2004 Campers
180

Average Number of Past Campers
65 per season

Camp Youngblood
Chesterfield, VA

Contact Information
Patricia DeRatto
United Virginia Chapter of NHF
Executive Director
9801 Husting Terrace
Chesterfield, VA 23832

804-216-1896 phone

804-748-7896 Fax

Camp Dates
August 14-20, 2005

Camp is open to all children with bleeding disorders, their siblings and the children of adults with bleeding disorders, male or female. Traditionally our campers come from Virginia, Washington DC and Maryland.

 WASHINGTON (top)

Contact Information
Cheryl Brower, Rn, MSPH
Hemophilia Care Program
Puget Sound Blood Center
921 Terry Avenue
Seattle, WA 98104-1256
206-292-6507
206-292-8030 Fax

Date
August 28-September 1 2006

Age Range of Campers
All Family Camp

Number of 2005 Campers
120

Special Camp Programs
• Self-infusion instruction for 5 year olds and older
• Junior counselor program
• Prevention education on dental hygiene, joint disease, infusion safety, genetics, and other topics

 WEST VIRGINA (top)

West Virginia Hemophilia Camp
Morgantown, WV

Contact
Anita Gram
West Virginia University Medical Center
Division of Hematology/Oncology
Health Sciences Center – Medical Center Drive
Rm. 4098, Health Sciences North
Morgantown, WV 26505
(304) 293-1205
(304) 203-2519 Fax

Date
July 29-31, 2005

Number of 2004 Campers
20

Average number of past campers
15

 WISCONSIN (top)

No in-state camp; children from Wisconsin generally attend hemophilia camp in Colorado. For more information about programs in the area, contact:
Great Lake Hemophilia Foundation
638 N. 18th Street, Suite 108
Milwaukee, WI 53201-0704
(414) 257-0200
(414) 257-1225 (fax)
info@glhf.org
www.glhf.org

 WYOMING (top)

No in-state camp; children from Wyoming generally attend hemophilia camp in Colorado. For more information about programs in the area, contact:
Mountain States Regional Hemophilia Center
4200 E. 9th Avenue
Box C220
Denver, CO 80262
(303) 372-1750
(303) 372-1060 (fax)

 INTERNATIONAL CAMP (top)

London Ontario, Canada
Pinecrest Adventures Camp

Contact Information
Julie Serrador
Regional Service Coordinator
Hemophilia Ontario
South Western Ontario Region
388 Dundas Street. Unit 120
London, Ontario
N6B 1V7
(519) 432-2365 Phone
(519) 432-9922 Fax
jserrador@hemophilia.on.ca

Date
August 25-29, 2004

Age ranges of campers
5 – 15 years

Number of 2003 campers
31

Special Camp Programs
The camp operates on a theme each year. Activities such as swimming, canoeing, hikes, field games, arts and crafts, camp fire and the food are planned around the theme.

The camp is open to children with a bleeding disorder and their siblings that live in the South Western Ontario Region.