Dr. Alexis is a heart failure transplant cardiologist at the University of Rochester in Rochester, New York. In addition to patient care, he performs research on outcomes in patients with heart failure. He has experience in fundraising and a particular interest in patient advocacy. He and his wife have been involved members of the Mary M. Gooley Hemophilia Center.
Dr. Alexis earned his medical degree from Harvard University. He was an intern and resident at the Massachusetts General Hospital, and completed his cardiology fellowship at the Mount Sinai School of Medicine.
Dr. Alexis lives in Pittsford, NY, with his wife, Christine, and their three children, one of whom has hemophilia A.
Brian Andrew is the President and Chief Investment Officer for Cleary Gull Advisors, Inc., a wealth management and institutional advisory firm. He has 25 years of investment management and finance experience, including for the nonprofit healthcare industry, as well as other mission-driven organizations.
Brian has worked as an analyst, portfolio manager, CIO, COO and president of several money management businesses. He has been active in client and board education, using industry forums within the investment management and healthcare industries.
Brian has also been active in varying capacities on the boards of several municipal and not-for-profit organizations, including serving as President and Treasurer of the Great Lakes Hemophilia Foundation. He has been a guest lecturer, teacher and mentor for undergraduates in finance.
Brian received his Chartered Financial Analyst designation and is a member of the Milwaukee and Chicago Investment Analyst Societies. He received his B.S. in business and finance from the University of Minnesota. He completed the Harvard Business School/CFA Institute Investment Management Program.
Mark Borreliz is a healthcare law attorney in the Boston office of Verrill Dana LLP. He has extensive experience advising and representing institutional healthcare providers with respect to regulatory compliance, reimbursement issues, and Medicare and Medicaid litigation. In addition, he currently assists universities and academic medical centers with issues arising from biomedical research, including conflicts of interest, research misconduct and human subjects protection. He earned his undergraduate and law school degrees at Harvard University.
Mark has severe hemophilia A, with various orthopedic complications, and is a long-term HIV survivor. He has served on the board of directors of the New England Hemophilia Association (NEHA), twice as an officer and most recently as a co-chair of NEHA's Advocacy Committee.
Mark lives in Southborough, MA, with his wife, Ellen. They have a daughter and son.
David Cohenour is a small business owner and a Program Director and Assistant Professor at Montana State University in Bozeman. He has served in many board positions on a variety of nonprofit and professional organizations. He has long- term professional experience in all types of communication, including educational, personal, formal and informal settings. David has experience with governance and operational boards, working and informational committees. He is a founding member of the Rocky Mountain Hemophilia and Bleeding Disorders Association. He is highly skilled in developing goals, and implementing new and innovative ideas.
Jordan Crows is a global public health policy consultant for Policy Wisdom, LLC. Her work helps clients understand a country's policy landscape and effective ways to engage stakeholders to shape public health policies and ensure equitable access to quality health services for all. Her background also includes experience in health promotion and communications with a focus in patient programming and advocacy. Jordan received her Master of Public Health degree in Health Promotion and Disease Prevention from Case Western Reserve University and her Bachelor of Art degree in Mass Communications from Louisiana State University. She has been involved in the hemophilia community since 2007, serving as volunteer and officer of the Board of Directors for the Northern Ohio Hemophilia Foundation for and then as a member of the Board of Directors for NHF. Jordan currently co-chairs the Chapter Relations Committee of the NHF Board of Directors.
Jorge de la Riva is founding partner and chairman of Web Plastic Company of Houston, Texas and has worked in international trade for over 30 years. Owns and operates other companies in the United States, Mexico and India.
Jorge served as a volunteer at the Lone Star Chapter of NHF for more than 10years, where he worked in fundraising and helped establish the Hemophilia Legal Hotline. He is the father of two young adults, one of whom has severe Hemophilia. All four members of the de la Riva family actively volunteer for the bleeding disorders community in various roles.
Barbara J. Gordon is the Clinical Social Worker at The Ear Institute at New York Eye and Ear Infirmary of Mount Sinai in Manhattan, where she provides psychosocial support for individuals and families affected by hearing loss and vestibular, speech and swallowing disorders. Prior to that she was a psychotherapist in Providence, RI. For many years, Barbara was an officer on the Board of Directors of the New England Hemophilia Association and an active member of the New England bleeding disorders community. Barbara served as NEHA's liaison to NHF before joining NHF's Board of Directors in 2010. Barbara has also participated in NHF's public policy advocacy efforts since 2002, over the years developing effective relationships with Rhode Island U.S. Senators and Representatives and their staffs. Barbara has twin sons, Sam and Max who are in college. Sam has severe hemophilia A.
Dr. James F. Hammel is a psychiatrist in private practice in Seattle, Washington. Bilingual in English and Spanish, he has been working in mental health for more than 20 years. Dr. Hammel has conducted research internationally, has authored several peer-reviewed journal articles and book chapters, and is passionate about educating future healthcare providers and the public.
Dr. Hammel received his medical degree from Harvard Medical School. He completed his internship at Stanford University and his residency at Harvard, where he was chief resident. He has a master’s degree in in psychology from Stanford University and a master of science degree from Oxford University, where he was a US-UK Fulbright Scholar.
Dr. Hammel was diagnosed with von Willebrand disease during medical school. The son of a hematologist father and nurse mother, he has spent his career as a vocal advocate for pediatric and adult patients. He enjoys hiking, camping and traveling with his family.
James Heer is the President and CEO for the Workers' Compensation Reinsurance Association, a non profit association providing financial protection to insurers and self -insurers against catastrophic losses from work injuries. He is an actuary, receiving his fellowship through the Casualty Actuarial Society, with over 20 years of experience in risk analysis, insurance, accounting, finance and investments. James and his wife volunteers with local nonprofits to plan and run fundraising events. Although his family is not directly affected by a bleeding disorder, he became involved through a close friend with ties to the community. James lives in the Twin Cities area of Minnesota with his wife and three children.
Dr. Craig Kessler holds a full-time faculty position and is an attending physician at the Georgetown University Medical Center, Departments of Medicine and Pathology, Division of Hematology/Oncology in Washington, DC. Over the years, Dr. Kessler has co-authored many research papers, including those related to products to treat patients with factor VIII and factor IX deficiency, hepatitis, HIV and inhibitors. The studies have been published in such journals as Blood, Clinical Research, Haemophilia, and Lancet.
Dr. Kessler has served the National Hemophilia Foundation in many capacities. He has been on the Board of Directors, served as Executive Vice President for Medical and Scientific Affairs, acted as member and Chair of the AIDS Treatment Working Group, and served as Associate Medical Director. Currently he is the Chair of the Medical and Scientific Advisory Council (MASAC). He serves on several medical and editorial advisory boards, and is a member of bleeding disorders-related committees at the CDC and NHLBI.
Dr. Kessler received his bachelor’s degree from Duke University and his MD from Tulane University School of Medicine in New Orleans. He and his wife, Dr. Linda Kessler, have three children.
Scott Martin is a private investor based in Houston, Texas. He has a son with severe hemophilia and has worked to improve the lives of people with bleeding disorders by supporting the Line Star Chapter. In addition, he co-founded Inspiration biopharmaceutical a factor manufacturing company that initiated two products that today are owned and marketed by Baxter and Emergent. Scott is also co-founder of Martin midstream Partners (AASDAQ:MMLP) and serves on several non-profit and for-profit boards.
Dr. Kristie Ostash received her medical degree from the University of Arizona. She completed her pediatric training and fellowship in Pediatric Behavior & Development/Child Maltreatment at Children’s Hospital Los Angeles (CHLA). After her training, she accepted an Assistant Professor of Clinical Pediatrics position at the USC Keck School of Medicine and was on staff as an Attending Physician within the Division of General Pediatrics. In addition, Dr. Ostash served on the Child Abuse Identification Team and Ethics Committee at CHLA. Her professional areas of interest include child maltreatment/abuse prevention and advocacy, spina bifida, behavior and developmental pediatrics and treating children with complex medical conditions. She is the Board Representative on the Medical And Science Advisory Committee (MASAC) and Co-Chairs NHF’s Ethics Working Group. Dr. Ostash is active in her community, volunteering and participating in local civic and philanthropic activities. She enjoys spending time with her husband and raising their three young children.
Carson Ouellette is a senior at Concordia College at Moorhead studying political science, philosophy, and business. While growing up in Devils Lake North Dakota, Carson has never allowed his severe hemophilia A to hold him back. From the beginning of camp at age six to his current membership in the National Youth Leadership Institute, Carson has been an active member in the hemophilia community. Through this involvement in the community, Carson has found that these opportunities provide chances to learn, grow, and give back all at the same time. Currently, Carson is a member of the HFMD board of directors.
Matt Rhodes is Vice President, Investor Relations & Corporate Finance, for Intuit Inc. Prior to joining Intuit in March 2010, Matt spent four years in Investor Relations at Yahoo! Inc. He previously worked in equity research for Banc of American Securities. He began his career with several marketing roles at Anheuser-Busch, Inc.
Matt earned an MBA from The Haas School of Business at the University of California, Berkeley, and a BS in communications from Northwestern University. He holds the Chartered Financial Analyst (CFA) designation. He also serves on the boards of the Alzheimer's Association (Northern California and Northern Nevada chapter) and Pine Street Software LLC.
Dutta Satadip heads Product Strategy and Operations for Advertiser Products at Google. Dutta has held several leadership positions in engineering, marketing, product management and sales support.
He has been President of the Hemophilia Foundation of Northern California and has been serving the community since 2006. Dutta holds a graduate degree in computer science from Virginia Tech and an MBA from the University of California, Berkeley.
Carol G. Simonetti retired in 2009 after serving three years as the President/CEO of the Alaska Community Foundation, a statewide association of foundations. Other foundation experience includes President and CEO of the Indiana Grantmakers Alliance, Director of Community Foundation Services at the Council on Foundations in Washington, DC, Executive Director of the Community Foundation of Greater Lorain County (Ohio) and Program Officer at the Cleveland Foundation.
Carol did her undergraduate work at the Ohio State University in psychology. She has a master’s degree in social work from Case Western Reserve University and a law degree from Cleveland Marshall College of Law. She is licensed to practice law in Ohio.
Dr. Gil White is a hematology-oncology physician. For 30 years, he was at the University of North Carolina (UNC) School of Medicine where he was an Associate Director and then, for almost a decade, Director of the UNC Hemophilia Center. Dr. White currently directs a blood research institute in Milwaukee and has the Great Lakes Hemophilia Center as one of his responsibilities.
During his career, Dr. White has been heavily involved in patient care and clinical research relating to hemophilia, including the development of recombinant factors VIII and IX and VIIa, the identification of the HIV-1 virus and the initial treatment regimens for AIDS, the development of treatment approaches to hepatitis C, and the initial gene therapy for hemophilia. Dr. White has an excellent working relationship with various industry partners and with the CDC.
Dr. White has served on a number of boards, including the Great Lakes Hemophilia Foundation, GTI (a $25 million biotech company), BloodCenter of Wisconsin ($150 million nonprofit), as well on the scientific advisory boards of a number of companies.
Lynn Wilmarth is a proven leader with a strong track record helping organizations increase their overall business effectiveness through work process improvement and cost reduction. She is currently on the leadership team at NorthStar Network, a company whose mission is to guide community stakeholders to work collaboratively to drive down healthcare costs while improving the quality of patient care.
Before joining NorthStar Network, Lynn spent 30 years at Xerox Corporation, holding such leadership positions as Vice President General Manager of Sales Operations and Vice President of Marketing.
Lynn is involved in various community organizations and boards, including Wilson Commencement Park and the Mary M. Gooley Hemophilia Center. She attended the University of Rochester and Rochester Institute of Technology, earning a B.S. degree in Business Administration and Marketing. Lynn is a guest lecturer at the University of Buffalo School of Business.