The National Hemophilia Foundation developed the Medical and Scientific Advisory Council (MASAC) to advance clinical care and promote hemophilia research. MASAC establishes quality of care guidelines for the treatment of hemophilia and other bleeding disorders.
Consumers are not the only ones struggling with navigating the changing tide of the health care system and the costs that accompany these changes. Payers in both the public and private sectors are faced with the challenge of ensuring that their health plans comply with ACA requirements, are affordable for consumers, and provide appropriate access to care that leads to positive health outcomes, all while trying to control spiraling health care costs.
Changes in the payer landscape, including new providers and increased utilization of managed care by state Medicaid programs and the health insurance marketplaces, may lead to plan designs with less than optimal coverage for those affected by bleeding disorders. NHF is committed to developing and delivering payer education programs designed to raise awareness of the unique and often complex needs of those affected by bleeding disorders.
Since 2010, NHF has participated in and developed various payer education programs designed to explain the importance of comprehensive care and to establish NHF and MASAC as a resource for payers to utilize when developing their plan designs and policies. NHF will continue to work with payers to stress the importance of a comprehensive care model for our community and educate them about considering the needs of the hemophilia community in their plan designs and policies.