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Washington Days

Washington Days
Date: 
February 24, 2016 to February 26, 2016
Venue: 
Washington Marriott at Metro Center
775 12th Street NW
Washington, DC 20005
United States

A Movement for the Bleeding Disorders Community

The National Hemophilia Foundation (NHF) will be hosting its annual Washington Days advocacy event on Wednesday, February 24, through Friday, February 26, 2016, at the Washington Marriott at Metro Center in Washington, DC.

This year’s focus will be on the following issues:

1. Designation of March as Bleeding Disorders Awareness Month

In recent years many great strides have been made by our community in the areas of treatments and access to care. What has been missing is a unifying event that embraces all members of our community, encouraging us to stand up and be heard alongside other chronic diseases. This is why designating March as Bleeding Disorders Awareness Month is important. Washington Days will enable you to speak with your representative on this issue, as well as introduce the Red Tie Challenge, a fun and interactive way to get people involved in supporting the designation of March as Bleeding Disorders Awareness Month.

2. Funding for federal hemophilia programs

The entire bleeding disorders community has greatly benefited from the federal hemophilia programs and initiatives supported by the various agencies of the Department of Health and Human Services. Programs supporting hemophilia treatment center (HTC) services, blood safety and surveillance, inhibitor prevention and research for better treatments and a cure--all are critical components of our Washington Days agenda.

3. HR 3742, The Access to Marketplace Insurance Act

Federal policy allows health insurance plans on the ACA marketplaces to decide whether to accept payments from third-party, non-profit patient assistance programs. We will advocate for legislation to facilitate access to non-profit premium assistance to ensure that people in our community and others can continue to rely on these programs to afford their health insurance.

General registration for Washington Days 2016 is now closed.

The Washington Marriott at Metro Center no longer has available rooms. Please consider joining us in 2017!

Download Tentative Agenda!

Please address any registration or hotel questions to:

Alla Vaynshteyn
NHF Meetings Specialist
avaynshteyn@hemophilia.org

For any other concerns, please contact:
advocate@hemophilia.org