The American Plasma Users Coalition (A-PLUS) is a coalition of national patient advocacy organizations, including the National Hemophilia Foundation, created to represent the unique needs of more than 170,000 patients with rare diseases who use life-saving plasma protein therapies.
The General Accountability Office (GAO), the federal government’s chief oversight agency, recently released a report on the implementation to date of the Pre-Existing Condition Insurance Plan (PCIP) program.
The American Plasma Users Coalition (A-PLUS) comprises patient advocacy groups representing people with hemophilia, alpha-1 antitrypsin deficiency and other conditions who rely on plasma-based products to remain healthy.
On Thursday, October 20, 2011, Michelle Rice, NHF Regional Director of Chapter Services, was invited to testify at a meeting hosted by the US Department of Health and Human Services (HHS) on patient community perspectives on essential health benefits.
As part of the health reform law, the Secretary of Health and Human Services (HHS) must define "essential health benefits" for certain health plans and ensure that their scope is equal to the scope of benefits provided under a typical employer plan.