Policymakers in Washington, DC and in states have been active in responding to the COVID-19 emergency over the last several weeks and NHF has been equally active in advocating on behalf of the bleeding disorders community. COVID-19 is having a wide ranging effect on Americans, and we have worked on issues ranging from the need for paid leave for families, to increased patient protections for health insurance, to the need for adequate personal protective equipment (PPE) so that plasma donation can continue during the epidemic. We will continually update this page with additional letters that NHF signs and other activities we undertake related to COVID-19.
- APLUS Coalition letters seeking to amend plasma collection regulations in California, New York, and Ohio to promote plasma collection (April 24, 2020)
- Coalition statement in support of HR 6514, the Worker Health Coverage Protection Act, which would provide subsidies for COBRA payments for individuals to maintain health insurance after job loss (April 24, 2020)
- Coalition letter to HHS Secretary and Director of HHS Office of Civil Rights related to triage plans and protections for individuals with disabilities and pre-existing conditions (April 16, 2020)
- Coalition letter to broad priorities related to COVID-19 legislative packages (April 14, 2020)
- Coalition letter to HHS Secretary urging him to prioritize plasma and blood collection facilities when distributing personal protective equipment (PPE) so that these vital activities can continue during the pandemic (April 9, 2020)
- Coalition letter urging Congress to implement paid leave policies so that people with pre-existing conditions at higher risk for COVID-19 complications can stay home (April 9, 2020)
- Coalition letter urging Congress to resolve surprise billing issue in COVID-19 package (April 8, 2020)
- All Co-Pays Count Coalition letter to CMS leaders asking them to reconsider policies related to accumulator adjustors in light of COVID-19 (April 7, 2020)
- Coalition statement urging Congress to implement a special enrollment period (SEP) to enable people to enroll in health insurance on the ACA marketplaces (April 1, 2020)
- Coalition letter to HHS Secretary and CMS Administrator advocating for a number of COVD-19 related policies (March 30, 2020)
- APLUS statement supporting plasma donation and home infusion for plasma-derived and recombinant therapies (March 24, 2020)
- Coalition letter urging Congress to include funding for states and increase the federal share of Medicaid spending in the third COVID legislative package (March 24, 2020)
- Coalition letter to Congressional leaders advocating for financial relief for non-profit organizations in the third COVID legislative package (March 20, 2020)
- Coalition letter to Congressional leaders concerning tthe second COVID legislative package and additional COVID-19 related policies (March 16, 2020)
- Hemophilia community letter to Congressional leaders advocating for non-profit organization relief in the second COVID legislative package (March 12, 2020)
- Coalition letter with Medicaid Priorities for the next COVID package (May 26, 2020)
- Coalition letter to Congress and the White House on the need to address surprise medical billing in the next COVID package (May 21, 2020)
- Coalition letter to the HHS advocating for action regarding discriminatory triage policies (May 20, 2020)
- APLUS letter to Congress supporting inclusion of an awareness campaign for plasma donation in the next COVID package (May 20, 2020)
- APLUS letter endorsing Senator Blackburn’s legislation to create an awareness campaign for plasma donation (May 14, 2020)
For quick reference, view:
- Coalition letter to Congress
- Coalition letter to the White House
- Emergency triage letter
- APlus letter regarding plasma donation awareness
- APlus letter to Senator Blackburn
