Hemophilia History the Focus of New Partners Modules
The Partners in Bleeding Disorders Education Program has announced the launch of two new online learning modules that speak to the history of hemophilia, with particular focus on early understanding of the disease and the evolution of treatment and management, including the advent of factor replacement therapy and development of the comprehensive care model.
These online modules include:
Hemophilia in History I: Early Accounts and Interventions
This activity includes discussion of the historical figures and events in early conceptions of hemophilia as a heritable bleeding diathesis, the first models of coagulation, unproven attempts to treat the condition, the appearance of hemophilia in the royal families of Europe, and the discoveries that led to our modern conception of and treatment products for hemophilia.
Upon completion of this program, the learner will be able to demonstrate knowledge of the early historical context that informs our modern understanding of hemophilia.
Hemophilia in History II: Factor Concentrates and Foundations of Comprehensive Care
This activity includes discussion of the early development and evolution of clotting factor concentrates, the infectious disease contamination of the U.S. blood supply and its toll on the hemophilia community, as well as legislation that passed in the wake of the hepatitis and HIV epidemics. The activity also examines the hemophilia treatment center model of care. Finally, the module discusses the role of a safe blood supply, care from HTCs, and use of prophylactic therapy in prolonging life expectancy and enabling persons with hemophilia to lead increasingly normal lives.
Upon completion of this program, the learner will be able to demonstrate knowledge of the recent historical context in which our modern understanding of hemophilia and its management were developed.
Completion of these modules is expected to enhance compassion of hemophilia providers toward patients and to facilitate high quality care.
These modules target clinical staff including nurses, social workers, physical therapists, pharmacists, and other multidisciplinary providers involved in the management of persons with hemophilia receiving care in the federally recognized U.S. HTC network.
Established in 1996, the Partners in Bleeding Disorders Education Program promotes excellence in care through education, created by and for the HTC Network and providers from a variety of disciplines that serve patients with bleeding and other coagulation disorders. The program is a collaborative initiative of the Indiana Hemophilia & Thrombosis Center, National Hemophilia Foundation and Hemophilia Foundation of Michigan.
Source: Partners in Bleeding Disorders Education Program