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Partners in Bleeding Disorders Education Module Focuses on Inhibitors and Quality of Life

April 4, 2017
Partners in Bleeding Disorders Education Module Focuses on Inhibitors and Quality of Life

The Partners in Bleeding Disorders Education Program is offering a new educational module to address the unique challenges facing individuals and families affected by inhibitors. The target audience for this activity includes psychosocial professionals, nurses and other healthcare providers at hemophilia treatment centers who are involved in the care of persons with congenital hemophilia who have an inhibitor to clotting factors VIII or IX.

The module is designed to meet the following educational objectives:

  • Describe the psychosocial, physical and financial impact of an inhibitor in persons with hemophilia

  • Recount differences in health-related quality of life (HRQoL) for persons with an inhibitor versus persons without an inhibitor

  • Identify differences in HRQoL for parents/caregivers of persons with an inhibitor versus parents/caregivers of persons without an inhibitor

  • Compare differences in HRQoL for persons with an inhibitor on bleed and nonbleed days

  • Compare differences in HRQoL for the physical and psychosocial domains for persons with an inhibitor on prophylaxis versus those receiving on-demand treatment

  • Identify strategies for psychosocial interventions for persons with an inhibitor

“Psychosocial Issues and Coping Strategies for Persons and Families Living with an Inhibitor” is provided for 0.75 contact hours under American Nurses Credentialing Center (ANCC) criteria. The University of Nebraska Medical Center College of Nursing Continuing Nursing Education is accredited as a provider of continuing nursing education by the ANCC’s Commission on Accreditation.

The activity is available until 5:00pm Eastern Time, February 8, 2018.

Established in 1996, the Partners Program promotes excellence in care through education created by and for the federally recognized Hemophilia Treatment Center Network and providers from a variety of disciplines that serve patients with bleeding and other coagulation disorders. The program is a collaborative initiative of the Indiana Hemophilia & Thrombosis Center, NHF and the Hemophilia Foundation of Michigan. Funding to support the Partners in Bleeding Disorders Education Program is provided through an unrestricted educational grant from Shire.

Learn more about “Psychosocial Issues and Coping Strategies for Persons and Families Living with an Inhibitor,” and other online educational activities by going to the PartnersPRN web site.