The Partners in Bleeding Disorders Education Program recently relaunched an educational activity focused on clinical research at hemophilia treatment centers (HTCs) entitled “The Basics of Research
The BloodCenter of Wisconsin (BCW) recently announced the launch of a new and more sensitive test for von Willebrand disease (VWD), a genetic disorder characterized by either a qualitative or quant
This new educational module designed to familiarize staff of the 140+ federally recognized US hemophilia treatment centers (HTCs) with the roles and responsibilities of the members of the HTC multidisciplinary team.
You will help guide people to services and support offered by bleeding disorders organizations and HTCs.
Check out the brand new resources from NHF to help you get active!
An interim analysis after a median of 12 weeks of prophylaxis with emicizumab showed a “clinically meaningful” reduction in the number of bleeds over time.
The company will donate a minimum of 140 million international units (IU) of factor VIII to the WFH Humanitarian Aid Program over the next five years.
MLOF is nearly one-third of the way towards its goal of enrolling 2,000 confirmed carriers in the MLOF Research Repository by the end of 2017.
Spark reports that all participants have experienced “consistent and sustained increases in factor IX activity” following administration of SPK-9001.
Your Senators and Representatives are coming home for the next two weeks. You can advocate for the community in your own hometown with this guide.
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