NIH will recognize Rare Disease Day with speakers, panel discussions and more on March 1, 2018.
Plan for the unexpected with these emergency preparendness resources.
This webinar aims to improve the overall knowledge of physicians in evaluating and screening women and girls with heavy menstrual bleeding for a bleeding disorder.
The Patient Access Network (PAN) Foundation announces a new patient insurance premium assistance program for individuals with hemophilia.
Trial investigators will evaluate MarzAA’s ability to curb spontaneous bleeding episodes in patients.
Medscape recently launched a new education opportunity for healthcare providers.
The activity reviews current treatment options for hemophilia A, challenges to optimal treatment, and future research directions.
NHF is aware that recently Shire sought an injunction against Roche/Genentech.
BioMarin provided a series of updates on their investigational hemophilia A gene therapy candidate valoctocogene roxaparvovec.
The FDA has lifted a hold on clinical studies involving the investigational therapy fitusiran.
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