The confidentiality and security of your information is NHFs highest priority.
MyBDC’s protocol and patient agreement have been reviewed by Advarra’s (formerly known as Quorum) Central Internal Review Board (IRB).
MyBDC data will be stored with ArborMetrix, an independent outside organization that specializes in data collection, visualization and measurement of clinical trends and outcomes. ArborMetrix will provide technical expertise including significant security protections to mitigate the risks associated with data loss, corruption and/or breaches including, but not limited to, industry standard security measures to encrypt sensitive personal data both in storage and transmission, and logical database systems that segment data to further prevent identifiability.
Furthermore, to maintain your anonymity, the information collected in MyBDC will always be reported in a de-identified and aggregate manner. This means that personal identifiers such as name and date of birth are removed and replaced with a number. Then, all information is grouped and reported in aggregate manner. An example of aggregate data is: 25% of 1000 MyBDC participants reported a pain level of 5 in a scale from 0 to 10.
And lastly, you can rest assured knowing that NHF/ MyBDC will never share your personal information with any third parties for marketing or any other purposes.
Confidentiality is critical to NHF. We will always work hard to earn -and maintain- your trust.