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The Benefits

The Benefits

Personalized dashboard: follow trends, compare changes over time, and make informed decisions about health

Benchmark comparisons: participants can compare information anonymously with others in MyBDC, as well as the general population

Focused education: NHF’s education programs will use MyBDC to create materials based on patient-reported data

Informed advocacy: NHF and its chapters will use information gathered in MyBDC to help in state and national advocacy efforts that defend affordable access to specialized centers and treatment

More efficient research: A nimble platform that facilitates implementation of research

Rapid research cycles that allow researchers to answer new questions quickly

  • Help researchers identify priority research topics important to the community
  • Rapid data collection which results in more timely results

Aligned data sets: Complementing other existing clinical research efforts

  • Provide the affected individual’s voice not currently available anywhere else, giving researchers access to additional relevant and very important information
  • Make a bigger impact on the bleeding disorders research community