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For Researchers

For Researchers

In addition to collaborations with ATHN and CDC, MyBDC is open to new collaborations.MyBDC welcomes new collaborations and strives to make establishing them as simple and transparent as possible. Investigators interested in collaborations are invited to contact the NHF research department at research@hemophilia.org with details of the requested collaboration. NHF research staff will review new collaboration requests regularly based on feasibility.

MyBDC participants share their experiences through surveys. MyBDC is voluntary, HIPPA-compliant, and data will remain confidential and secure. The information is gathered longitudinally to gain a deeper understanding of both physical and psychosocial issues that this population faces and will be used to improve quality of life and clinical outcomes.