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Nursing Working Group Guidelines

Nursing Working Group Bylaws

The Nursing Working Group (NWG) is a professional working group under the organizational auspice of the Medical and Scientific Advisory Council (MASAC) of the National Hemophilia Foundation (NHF). The NWG consists of representatives from each of the 8 federal regions, as determined by the Maternal and Child Health Bureau (MCHB) guidelines and four senior committee positions. All 12 members have equal voting representation.

Qualifications
A registered nurse with a minimum of 3 years total experience in bleeding disorders and currently employed by a federally funded Hemophilia Treatment Center (HTC)

  • All terms will begin after the NHF Annual Meeting has concluded
  • Incoming members are encouraged to attend the NWG meeting immediately prior to their term.  However, it is not mandatory as there is no travel funding for incoming members to attend
  • Meals are provided during the NWG meetings
  • Nurses may serve a maximum of 8 (total) years on the NWG
  • After a holiday of one term, if re-elected by their region, a nurse may serve again

 

Members

The NWG is made up of 12 members:  4 officials: Chair, Vice Chair, Senior Committee Member, Committee Member at Large and one representative from each of the 8 MCHB regions. 

  • All members have equal voting representation
  • The group operates as a unit and no members meet independent of the entire group setting except as designated for committee work
  • All committees present to the NWG for approval of any changes in their roles or guidelines
  • NWG members do not act on behalf of the NWG without approval of the NWG Chair and members

 

CHAIR   

  • This is a two year responsibility following completion of the vice chair role
  • The chair must have a minimum of two years experience on the NWG prior to accepting this position
  • This person may serve a maximum of 8 (total) years on the NWG

 

Responsibilities include:

  • Overall coordination for the NWG and designation of NWG activities.
  • Liaison to NHF
  • Liaison to MASAC
  • The Chair is the contact for all communications coming in to the group and is copied on all communications related to the NWG

 

VICE CHAIR (VC)

  • This is a four- year responsibility: 2 years as Vice Chair followed by 2 years as Chair
  • The VC is elected by the NWG members
  • This role will serve and be mentored by the Chair for a two year term
  • Should the Chair be unable to complete his/her term, the VC is expected to assume the role of Chair
  • It is preferred this person have a minimum of two years of experience on the NWG prior to accepting this NWG elected position
  • This person may serve a maximum of 8 (total) years on the NWG

 

Responsibilities include:

  • Assisting Chair with coordination of NWG activities
  • Serving as a resource for NWG members and committee members
  • Leading activities or task forces as needed and approved by Chair

 

SENIOR COMMITTEE MEMBER (SCM)

  • The SCM is elected by the NWG members
  • SCM will serve for a maximum of a 3 year term in this role (first elected in to office for a 2014 term)
  • Eligible for election to Vice Chair position if does not exceed term limitations for NWG
  • Minimum of two years of experience on NWG required prior to election by NWG
  • This person may serve a maximum of 8 (total) years on the NWG

 

Responsibilities include:

  • Serves as a  resource for NWG members and leads activities, committees or task forces as needed and approved by NWG and Chair
  • Serves as lead for the NHF Annual Meeting Planning Committee (AMPC)
    • NHF AMPC Representatives:  Two NWG members are selected to coordinate the nurse and any nurse/physician or other combined sessions for NHF Annual National meeting each year. This position must always have at least one nurse with experience at the NHF planning meeting. These two NWG Planning representatives are responsible to attend the planning meeting and to distribute all necessary speaker forms, communications about the sessions and timeframe guidelines to all members of the NWG. Timely reminders of the deadlines and forms required and/or follow up on progress related to securing speakers is expected.

 

COMMITTEE MEMBER AT LARGE (CMaL)

  • The CMaL is elected by the NWG members.
  • CMaL will serve for a maximum two year term in this role (first elected in to office for 2014 term)  
  • Preference is given to a current NWG member with at least two years’ experience on the group
  • This person may serve a maximum of 8 (total) years on the NWG.
  • The position may be open to a former NWG member with a minimum of two years experience on the NWG if the position is not filled by a current NWG member
  • If not a current NWG member, the candidate must meet the qualifications for the NWG:
    • Provide a letter of interest
    • Provide a current curriculum vitae or professional resume
    • A letter of support from his/her HTC Director or appropriate supervisor.  This letter must acknowledge support for the professional commitment needed by NWG members, including attendance at two meetings per year (NHF Annual and the NHF Planning Meeting)

 

Responsibilities include:

  • Serves as a  resource for NWG members and leads activities, committees or task forces as needed and approved by NWG and Chair
  • Serves as 2nd member for the NHF Annual Meeting Planning Committee (AMPC)
    • NHF AMPC Representatives:  Two NWG members are selected to coordinate the nurse and any nurse/physician or other combined sessions for NHF Annual National meeting each year. This position must always have at least one nurse with experience at the NHF planning meeting. These two NWG Planning representatives are responsible to attend the planning meeting and to distribute all necessary speaker forms, communications about the sessions and timeframe guidelines to all members of the NWG. Timely reminders of the deadlines and forms required and/or follow up on progress related to securing speakers is expected.

 

REGIONAL NWG REPRESENTATIVES

  • The maximum term is four years. Representatives may resign their term early to fulfill an (elected) senior committee role
  • Attempts should be made to stagger the terms so that no more than 3 regional representatives are rotating on/off the NWG at the same time.
  • It is the responsibility of the regional representative and/or the Region to replace the leaving regional representative for the length of the remaining term, for any reason. This should be done promptly
  • If the representative position is vacated prior to completion of the term, the NWG may recommend and will vote to accept or deny the proposed term for the incoming representative. This will be done to maintain the rotation balance with other representatives in the group and the experience levels of members, when needed

 

Responsibilities include:

  • Plan, moderate and/or speak for a session at NHF Annual meeting. (NWG members receive coverage for 2 hotel nights at NHF Annual Meeting. An additional 2 nights hotel are provided only to those actively involved in moderating or speaking at an Annual NHF meeting session)
  • Serve on a committee, task force or in a special appointment role
  • Maintain an active roster and communication with all of the nurses in his/her region.  This includes sending out communications from NHF and the NWG to the region as well as communicating concerns from one’s region to other regions and the NWG
  • Each region may have specific duties for the regional representative. The NWG strongly encourages participation in the planning and activities of regional meetings by NWG members

 

Application Requirements for Regional Representatives

 

Although it is the responsibility of the Region to select the representative to the NWG, the NWG sets the following requirements:

  • Retiring representative notifies the region of the opportunity
  • Interested applicants who meet the requirements (see qualifications) submit the following as an application:
    • A letter of interest to include how they meet qualifications and why they are interested in participating
    • An updated curriculum vitae or professional resume
    • A letter of support from his/her HTC Director or appropriate supervisor.  This letter must acknowledge support for the professional commitment needed by NWG members, including attendance at two meetings per year (NHF Annual and the NHF Planning Meeting)
  • Selection is by regional vote. Whenever possible, the retiring representative should introduce the incoming representative to the group and provide an orientation to the NWG. If the retiring representative is not able to provide this service, the Chair will provide this service or designate a senior NWG member to provide the welcome and orientation

 

SPECIAL APPOINTMENTS

 

  1. Secretary: This role may be filled by any member of the NWG, with the exception of the Chair or Vice Chair. The secretary should commit to a minimum of two years in this role

 

Responsibilities include:

  • Recording notes at all NHF NWG meetings and phone conferences
  • Distribution of minutes to NWG members within two week period following the meeting or call
  • Presentation of the minutes for approval by the NWG

 

  1. Committee to select NHF’s Nurse of the Year (NOY)
  • Guidelines for this selection process are available to NWG members. Any changes to the guidelines require a vote by the entire NWG. Changes to the guidelines may not be done independently by the committee

 

  1.  Scholarship Selection Committee

 

  1. Committee to award and monitor Nursing Excellence Fellowship
  • Guidelines for the NHF Nursing Fellowship are available on the NHF website. Any changes to the guidelines require a vote by the entire NWG. Changes to the guidelines may not be done independently by the committee.

 

  1. Liaison Roles / Recommendation to committees or task force projects:  The list of liaisons and recommendations from the NWG continues to grow and change as special projects may be started and completed. A complete listing is provided in the agenda for each in person NWG meeting and changes are noted in the meeting minutes.
  • Liaison positions may or may not be current NWG members
  • NWG should approve the nurse recommendations for these liaison roles
  • Nurses accepting such roles should agree to report back to the NWG in person, phone or written report with any significant concerns, accomplishments or at a minimum, progress reports yearly

 

 

GENERAL RESPONSIBITIES OF NWG

 

1.Develop and Promote Standards Of Nursing Practice In Hemophilia, Bleeding Disorders And Thrombophilia.  Example: Nurses Guide to Bleeding Disorders, PartnersPRN

 

2.Promote Professional Nursing Development in Hemophilia, Bleeding Disorders and Thrombophilia.  Example:  NHF Meetings, Nursing Research, Continuing Education

 

3.Promote Health And Education To Bleeding Disorder Community.  Example: all created educational material, Steps for living

 

4.Advisory to MASAC: In relation to nursing practice, recommendations, education and research

SPECIFIC RESPONSIBILITIES OF NWG INCLUDE

  1. Actively initiate, plan and assume responsibility for special NWG projects including the nursing programming portions of the NHF Annual Meeting
  2. Communicate with hemophilia nurses in your region regularly. Monitor and support nursing activities in your federal region
  3. Advocate for the concerns of bleeding disorder nurses
  4. Attend two in-person meetings a year as well as periodic conference calls
  5. As needed, represent the NWG on various NHF Committees and at related ambassadorial functions

Termination
Any NWG member who fails to carry out responsibilities and/or acts outside of the guidelines established for the NWG may have their membership terminated by the Chair.

Guideline Review

Guidelines will be reviewed on an as needed basis as determined by the current NWG membership; at a minimum every 4 years. Any changes to the guidelines must be approved by 75% of the current NWG members. Last reviewed Chicago 10/2016