Educational resources and publications allow healthcare providers to stay up-to-date on the latest medical or treatment guidance/recommendations, as well as help meet the information needs of their patients. NHF has resources especially targeted to health care providers at HTCs, along with information for providers who may be new to the field of hematology and coagulation disorders.

What resources are available to healthcare providers? (HCPs)

Whether you are new to bleeding disorders as an HCP, just in need of a refresher on a particular topic, or want to take a deeper dive on a particular subject, NHF has a variety of easily accessible resources for you.

A great place to start is NHF’s Medical and Scientific Advisory Council (MASAC). Their communications cover a wide range of medical issues related to hemophilia and other bleeding disorders. MASAC has also produced a detailed list of FDA-approved treatment products currently available in the U.S. with a variety of treatment indications for patients with bleeding disorders.

If you are interested in web-based learning opportunities, then visit NHF’s Visit Online Education Activities for Providers page to access our current virtual education offerings. Note that many of these activities are available for continuing education credits and that the page is periodically updated with new content.

I am a nurse. Are there resources specific to my specialty that I can access?

Yes! For 25 years and counting, the Nurses’ Guide to Bleeding Disorders continues to be a go-to training resource, covering a series of key topics in nursing management, each separated by chapters in PDF. You may also visit NHF’s Nursing homepage, which includes a range of guidelines and other resources for nurses working in bleeding disorders care.

I am a physical therapist. Are there resources specific to my specialty that I can access?

Yes! Visit NHF’s Physical Therapy homepage to explore and access a diverse set of resources and information to complement your work with inheritable bleeding disorders patients, such as the MASAC-approved physical therapy guidelines.

I am a social worker. Are there resources specific to my specialty that I can access?

Yes! We encourage you to explore NHF’s Social Work homepage to find a host of resources and other relevant information to help you enhance your practice.

Are there other learning and training opportunities for healthcare providers (HCPs) that you can share with me?

Yes, you are in luck! Listed below are several avenues to pursue HCP education.

 

NHF’s Annual Bleeding Disorders Conference (BDC) presents a several opportunities for HCPs, including distinct education tracks for physicians, nurses, physical therapists, and social workers. Learn more and register!


The Partners in Bleeding Disorders Education Program provides comprehensive training and education on a broad range of subjects, delivered in various formats including both in person and virtual, enduring, and live formats.


The Research Journal Club brings researchers and community members together via quarterly online gatherings to explore the latest science and innovative breakthroughs. Participants discuss notable publications from top-tier peer-reviewed journals to encourage debate and networking. While registration is required, the meetings are free to attend.


Comprehensive virtual training on point-of-care musculoskeletal ultrasound (MSKUS) is available through the UC San Diego School of Medicine. The CME accredited curriculum focuses on the use of MSKUS for the evaluation of primary joints, including the ankles, knees, and elbows.


Learn about other associations that focus on research and advancement of care for people with bleeding disorders.

Can HANDI send me printed materials to display or distribute in my office?

Yes! Printed materials, pending supplies at the time of the request, can be sent for display/distribution to your office. Materials can also be downloaded in PDF format and printed on demand. Please click here to read and download our publications. To further inquire about materials, email us (handi@hemophilia.org) or call 1.800.424.2634.

Can I suggest materials or resources to be added to the HANDI library?

Yes! We are happy to receive/learn about new journal articles authored by our amazing HCP network, or additional resources for our library. You may email us (handi@hemophilia.org) or call 1.800.424.2634.

How can I ensure that I receive the latest news and information related to the management of inheritable bleeding disorders?

Sign up to receive the latest news and information via email, including updates on medical advancements, HCP education opportunities, medical recommendations, and advisories, virtual and in-person scientific meetings, and other events. We also encourage you to follow us on LinkedIN, or Twitter or Facebook/Meta.

Additional Resources


Von Willebrand Disease

Access the new international clinical practice guidelines on the diagnosis and management of von Willebrand disease (VWD), which are available in full form and in condensed, “snapshot” versions. The snapshots versions are available in multiple languages, including Spanish, Russian, Arabic, and French.


Women and Girls with Bleeding Disorders

Access Better You Know materials to help you properly screen women and girls that present with symptoms of a potential bleeding disorder. Women with Bleeding Disorders (A Chapter of The Nurses’ Guide to Bleeding Disorders)


Rare Bleeding Disorders

The Rare Coagulation Resource Room, includes basic science, clinical management, laboratory and genetic testing, clinical trials, and global research initiatives of very rare bleeding disorders.

Rare Coagulopathies (A Chapter of The Nurses’ Guide to Bleeding Disorders)


Peer Reviewed Journal Articles

Visit this page to read synopses of relevant articles published in peer reviewed journals, which cover a wide range of topics including shared decision making, gene therapy, health equity, and more.