In 2017 Hemophilia Federation of India (HFI) participated in a pilot project of Youth Program Twinning with the National Hemophilia Foundation. The twinning partnership took place from 2017 – 2020. The goal of the twinning project was to train the young adult leaders of HFI in various capacities to build sustainability in the leadership and training structure for the young adults in the bleeding disorders community.

The twinning project consisted of three stages. NHF worked closely with the current HFI youth committee chair to develop appropriate and relevant programming throughout the twinning partnership stages.


The first stage was focused on needs assessment and facilitating trainings.

  1. NHF visited the HFI youth leaders and community members participating in programming to assess the needs of the youth leaders
  2. NHF and HFI conducted four regional workshops resulting in 150 young adults trained in leadership, presentation and advocacy skills
  3. NHF partnered with HFI to deliver educational sessions at HFI’s National Annual Youth Meeting


The second stage was focused on training the next group of youth leaders to create and facilitate programming for their local community members.

  1. NHF facilitated our Steps for Living Train the Trainer for 40 HFI young adult men leaders and HFI women’s committee members in Delhi, India. The training focused on facilitation best practices, techniques, understanding your audience, learning styles, session preparation, and troubleshooting as a facilitator.
  2. NHF facilitated an instructional design webinar for 12 youth committee leaders. Over a period of two months, NHF coached youth committee leaders to develop workshop trainings for four regional youth leader meetings across India. NHF and HFI collaborated to deliver the workshops at four regional trainings for more than 30 attendees at each training and implement the facilitation skills learned in stage one.


The third stage focuses on continuing to build sustainable leaders throughout India. The goal is to develop leaders who can take part in the functioning of their local hemophilia communities and eventually take part in the functioning of HFI.

  1. NHF facilitated another virtual instructional design webinar for those individuals who had received the facilitation Steps for Living training. The young adult men and women trained in instructional design would go on to create the educational sessions that would be facilitated at the Annual Youth Meeting.
  2. NHF and HFI facilitated a masters training for the newly-formed youth committee to understand team dynamics and their strengths in order to better facilitate youth program planning at the regional workshops across India.
  3. NHF and HFI hope to continue this goal of sustainability by delivering virtual webinar series focusing on long term goals and skill building.