Raring for Rares? Join us for Part 3 of Living Rare: 2021 Rare Bleeding Disorders Series at the 2021 Virtual Bleeding Disorders Conference. If you have a rare bleeding disorder or support someone with a rare bleeding disorder connect with others in the community and attend sessions just for you!
Reigster Here for the Ultra Rare Track
Sessions
Ultra Rare Networking Session
08/27/2021 -2:00 pm to 3:00 pm ET
NHF is hosting a reception to honor and uplift the ultra-rare community members along with their support network. Join us for this informal social event to celebrate together! This session will feature GutMonkey.
Ultra Rare Bleeding Disorders: Hot and New Topics in Research
08/28/2021 -1:30 pm to 2:20 pm ET
This rare disorders session will explore the latest developments in research related to rare bleeding disorders. Participants will learn about new innovations and how advancements in current research could impact their health outcomes and daily lives.
Practical Tips for Navigating Life: From Birth to Young Adulthood
08/25/2021 - 3:00 pm to 3:50 pm ET
This rare disorders session will provide practical knowledge and tips for navigating life by focusing on three scenarios: a new parent or caregiver; a youth engaged in school and sports; and transitioning to the adult stage of life. The session will feature a diverse panel of providers and consumers in the rare bleeding disorders community, who will share their experiences and offer solutions for navigating everyday issues. The session is intended to be paired with the session on “Practical Tips for Navigating Life: From Young Adult to Adult Years.”
Practical Tips for Navigating Life: From Young Adult to Adult Years
08/26/2021 - 5:00 pm to 5:50 pm ET
This rare disorders session will provide practical knowledge and tips for navigating life by focusing on real-life scenarios: new employment and working with human resources; travel; relocation and reconnecting to health care services; and emergency situations. The session will feature a diverse panel of providers and individuals with rare bleeding disorders, who will share their experiences and offer solutions for navigating everyday issues. The session is intended to be paired with the session on “Practical Tips for Navigating Life: From Birth to Young Adulthood.”
For more information, please email Rares@hemophilia.org
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