Spend your Tuesday evenings with NHF's Education for Empowerment team. Over the course of the next four weeks, we will be presenting three of our new educational series, covering a variety of topics. Each series will contain four workshops, presented to you by our very best speakers. So grab some snacks, get comfortable, and join us virtually on Tuesday's at 7pm Eastern!
This series is titled Navigating Your Bleeding Disorders Care and Community, and will focus on the basics of insurance and self-advocacy.
Choose to Take Control
Being a good consumer is more than just access to products and care, it is also about knowing the do’s and don’ts that impact your daily life with a bleeding disorder. It’s about understanding your disease, choosing a care team, clearly communicating your needs and accepting responsibility for making the decisions that ensure your safety and wellbeing. During this interactive presentation, we will discuss tips, tricks and tools available to help you become a better self-advocate and an overall good consumer.
Date: 11/2
Time: 7:00 PM
Knowing the Players: Being a Savvy Consumer
Having a bleeding disorder comes with great responsibility to get the best care possible. This interactive session will give you information on the sometimes confusing acronyms – HTC, 340B, HRSA, etc. – which can be a roadblock to getting care. We will also cover the critical questions to ask when choosing a factor provider. Finally, we will address the responsibility that parents, patients, pharmaceutical and homecare representatives have in following the rules and laws that affect us all.
Date: 11/9
Time: 7:00 PM
Social Media in the Bleeding Disorders Community; Benefits & Risks
Have you ever discussed your or your child’s bleeding disorder on social media, or on a website for fundraising or advocacy purposes? Have you ever joined an online discussion group to give or receive advice? Talking about your own bleeding disorder or your child’s online can create a digital history that may last longer than you intended. Join the discussion on the best ways to use social media as a member of the community, what to look for and what to avoid, and what the future might hold.
Date: 11/16
Time: 7:00 PM
How Do YOU Navigate?
Learning through the lived experiences of others is helpful in navigating the landscape of bleeding disorder care. In this workshop, participants will be given an opportunity to learn through investigating scenarios building on the previously delivered material but also through discussions of the issues they are facing in their own everyday life. By the end, participants will receive practical tips and will feel connected and empowered.
Date: 11/23
Time: 7:00 PM
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