Clinical Management for Women and Girls

 

 

The Collaborative Learning Exchange (CLE) series on ‘Clinical Management for Women and Girls’ supports and engages hematologists, physician assistants, and nurse practitioners who provide care for women and girls diagnosed with von Willebrand disease or hemophilia.

What to Expect
The CLE series on ‘Clinical Management for Women and Girls’ will comprise four events to be delivered in 2022 and 2023. Each of these events will lead to increased knowledge and awareness for hematology providers of best treatment practices for women, girls, and people with the propensity to menstruate (WGPPM) living with bleeding disorders.

These workshops will be held as live virtual sessions and will include opportunities for interactive discussion.

Each workshop will include:

  • An informational overview of the topic,
  • Interactive discussions about the findings and/or review a pertinent case study, and
  • Summary of the findings and discussion.

Following each session, a resource flyer will be shared that supports the learnings from the event.


BACKGROUND:

Inherited bleeding disorders are under-recognized as causes of bleeding in women, girls, and people with the propensity to menstruate (WGPPM). However, recent data have documented that 50% of WGPPM who are carriers for hemophilia A or B have factor VIII or IX levels below 50%, putting them in the category of mild hemophilia and causing them to have an increased risk of bleeding, especially during menstruation and at the time of an accident, surgery, or delivery. Even some genetic carriers of hemophilia with normal factor levels have a bleeding diathesis. Moreover, up to 1% of all girls and women may have laboratory evidence of inherited von Willebrand disease (VWD) and may also have heavy bleeding during menstruation, surgery, or labor and delivery.

Establishing the correct diagnosis of inherited bleeding disorders for WGPPM has important implications for management of bleeding, recommendations for invasive procedures, pregnancy and delivery management, and family planning and testing.

Healthcare providers and particularly medical prescribers, need to be aware of and understand how to interpret the results of diagnostic testing for WGPPM, as well as understand the therapeutic developments and life cycle implications that are unique for WGPPM for managing a bleeding disorder, including menstruation, pregnancy, delivery, and menopause. This knowledge as well as a background on fostering shared decision making are critical for providers to be prepared to discuss the possible risks and benefits of care options with their patients.

NHF, along with a group of key providers, has developed this CLE series to create new opportunities for prescribers to freely discuss amongst their peers, the unique clinical implications for diagnostics and current treatment decision-making and management for von Willebrand disease and hemophilia A and B or in specific patient scenarios for WGPPM.

TARGET AUDIENCE:

These activities are intended for hematologists, physician assistants, and nurse practitioners who regularly prescribe therapies for individuals living with von Willebrand disease, hemophilia A, and hemophilia B.

EVENT INFORMATION:

 

ACCREDITED CONTINUING EDUCATION

Clinical Management for Women and Girls - jointly accredited provider logoIn support of improving patient care, this activity has been planned and implemented by University of Nebraska Medical Center and National Hemophilia Foundation. University of Nebraska Medical Center is jointly accredited by the Accreditation Council for Continuing Medical Education (ACCME), the Accreditation Council for Pharmacy Education (ACPE), and the American Nurses Credentialing Center (ANCC), to provide continuing education for the healthcare team.

These activities will provide accredited continuing education credits for physicians, physician assistants, and nurse practitioners.

Stay tuned for more information on specific dates in 2023 for the Collaborative Learning Exchange series ‘Clinical Management for Women and Girls’ to be posted soon!

National Hemophilia Foundation logo - no shadow University of Nebraska Medical Center logo