Back Again! The Annual Red Tie Soiree Returns to Honor Community Members in San Francisco
On October 15, the Red Tie Soiree, a yearly gala hosted by the National Hemophilia Foundation, was held in-person for the first time in three years. The community event was held for the first-time on the West Coast, welcoming guests to the historic Julia Morgan Ballroom in San Francisco.
This year’s event featured powerful stories showcasing the walks of the inheritable blood and bleeding disorders community. It showcased partnership, progress, and hope while sharing the journeys of three special honorees. With over 200 in attendance, the event raised $215,000 for the inheritable blood and bleeding disorders community.
CEO of the National AIDS Memorial Grove, John Cunningham, received the Inspiration Award for his ongoing partnership and support of the many community members and families impacted by HIV/AIDS. With the loss of half of the hemophilia community in the span of ten years during the AIDS crisis, John graciously and generously took our community under his wings and flawlessly honored those we lost in the National AIDS Memorial Grove. NHF thanks John for his inclusivity of our community, and for offering us a space to grieve those we have lost. You can learn more about John and his award in this video.
The Ambassador Award was given to Karen Fulton Holine – whose son Jason passed away from HIV/AIDS complications from a blood transfusion – and Leah Ogden Adams, an advocate for community awareness. The story that ties these two incredible women together showcases not only community, but perseverance, partnership, and love. Through honoring Jason, Karen and Leah have worked to support young adults in the inheritable blood disorders community with the Jason Fulton Memorial Fund. You can learn more about Karen, Leah and their award in this video.
Finally, the Taylor family of Wyoming – parents Lucas and Maggie, and son Teddy (who was diagnosed with severe hemophilia A at birth) - shared their powerful story of navigating care in a rural community. . The Taylor family touches on a topic that impacts countless members of the inheritable blood disorders community: From access and care, to parenting and treating a young child with severe hemophilia, the Taylor’s gracefully shared their story to help bring together the community and show that no matter where you are, you’re never alone. Learn more about the Taylor Family in this video.
The Red Tie Soiree hosted an opportunity to connect with community members, and an entertaining program that included a silent auction. NHF thanks those that came and celebrated at the event, and those who honored it from afar. Donations from the event support NHF’s investment in research and paves the way for a deeper understanding of these conditions, as well as better treatment options for those who need them.
NHF sincerely thanks the sponsors who made this year’s Red Tie Soiree possible:
Ascella Health, Bayer, BioMarin, Hemophilia Alliance, Novo Nordisk, Takeda
Genentech, Sanofi Genzyme
CSL Behring, Spark Therapeutics
National AIDS Memorial Grove, Atria Solutions, First Republic Bank, Medscape, Stanford Medicine Children's Health
Schaner and Lubitz, PLLC, Impact Education, BioMatrix