What comes to mind when you think about the future? How does living with an inherited bleeding disorder, or caring for someone who does, look different for the next generation? What do you want to see coming from research done by leaders across the community to make life easier?
At NHF, we’re doing our part to foster more research that can make life better for families with inherited bleeding disorders, and importantly, make that impact faster. So to help inform our plans, we want to hear from you.
We are looking for people to participate in a series of listening sessions in September. During each session, participants will be asked questions about their journey to diagnosis, what it is like to live (or care for someone) with an inherited bleeding disorder, thoughts on current treatments, and pressing needs for the future, all of which will help us understand where we should focus the research community’s efforts.
If you or someone you know is interested in participating, please take this brief survey. Let’s build our future together. Join us!