Jul 29, 2021

FOR IMMEDIATE RELEASE

Media Contact
Ilana Ostrin
iostrin@hemophilia.org
212-328-3769

NHF Awarded NIH Grant for State of the Science Research Summit
Additional Funding Will Aid Community Collaboration at First-Time Event

New York, NY — This week, the National Hemophilia Foundation (NHF) learned it received an R13 federal award from the National Institutes of Health (NIH) for the upcoming State of the Science Research Summit. This development will help increase outreach and connection with underserved populations around the State of the Science Research Summit.

Set for September 12-15 of this year, the Summit aims to build a research blueprint and path forward for the inheritable blood disorders community. For the first time in a formal setting, physicians, researchers, and community members will come together to weigh in on the most pressing medical and scientific needs of the community.

“NHF and its advocates are very grateful to have been recognized by the NIH with this recent award funding,” said NHF Chief Scientific Officer, Kevin Mills, PhD.

Inclusion of diverse voices has been a priority for the upcoming State of the Science Research Summit, and NHF’s President and CEO, Dr. Leonard A Valentino highlighted that: “The award will increase our reach to the under-served populations and communities and further reinforces our commitment to diversity and inclusion of all members of the inheritable blood disorders community.” He also added that, “This shows that the Summit is an important step forward in identifying a more efficient and affordable research to care pipeline for blood disorders.”

Registration for the Summit is now open and is free for all to attend. Participants will help shape the National Research Blueprint for Inheritable Blood Disorders, which is expected to be published in 2022. Sign up at hemophilia.org/summit.
 

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About the National Hemophilia Foundation

For nearly 75 years, The National Hemophilia Foundation (NHF) has championed research, education, and advocacy for inheritable blood disorders. NHF is dedicated to finding better treatments, preventative measures, and cures for inheritable blood disorders. Founded by patients in 1948, NHF’s impactful programs and initiatives are made possible through the support of a nationwide network of chapters, as well as individuals, partners, and a cooperative agreement with the Centers for Disease Control and Prevention (CDC). Learn more at hemophilia.org.