Oct 19, 2020

This summer's Virtual Bleeding Disorders Conference (BDC) featured a pair of excellent public health symposiums, which were developed through an inspired collaboration between NHF and several national blood disorder advocacy organizations.

These symposia were designed to encompass critical topics with far reaching implications for our communities, including emerging and novel therapies, surveillance, and key public health-related issues relevant to affected women and girls. If you were not able to attend the live presentations in August, rest assured that you have not missed out! Both symposia are now available and easily accessible on the NHF website. Simply follow the title links below:

Watch Public Health Pre-Conference Symposium: Future Therapies and Surveillance for Blood Disorders, which was created by the Sickle Cell Community Consortium, National Blood Clot Alliance, Center for Inherited Bleeding Disorders (CIBD), Cooley's Anemia Foundation, Cure HHT, U.S. Centers for Disease Control and Prevention (CDC), and NHF.

Featured topics include:

  • Gene Therapy Initiatives and the Needs of the Bleeding Disorders Communities
  • Healthcare Inequity
  • Key Surveillance and Reimbursement Issues for Novel Therapies Issues
  • After Gene Therapy: Looking at the Possible Future of the Thalassemia Community
  • Multidisciplinary HHT care through Hemophilia Treatment Centers: A Pilot Project
  • Community Counts: National CDC Bleeding Disorders Surveillance Updates
  • Community Voices in Research: Patient Reported Outcomes

Watch Public Health Symposium for Women & Girls, which was created by the Sickle Cell Community Consortium, National Blood Clot Alliance, Center for Inherited Bleeding Disorders, Cooley's Anemia Foundation, Foundation for Women and Girls with Blood Disorders, the Hemophilia Federation of America (HFA), and NHF.

Featured topics include:

  • Women at an Increased Risk of Blood Clots
  • Fertility & Pregnancy in Thalassemia: Advances and Challenges
  • Heavy Menstrual Bleeding in Adolescents and Modern Management: Lessons Learned from a Multidisciplinary Approach
  • Better You Know: Outreach to Women
  • HFA's FIRST (Females in Research Sharing and Translation) Project: Results and Next Steps
  • Women's Bleeding Disorders & Public Health: Achieving Successes with Regional HHS Partners