Feb 7, 2017

The World Federation of Hemophilia (WFH) is seeking an academic or non-profit institution to develop, implement, and maintain a web-based data system for an international, multi-center, observational World Bleeding Disorders Registry (WBDR). 

The registry will house encrypted bleeding disorder-related patient data from participating hemophilia treatment centers (HTC) around the world. The intent is to develop a database of high-quality real-world data on patients with bleeding disorders to advance the understanding of bleeding disorders worldwide.

For more information and to view the Request for Proposal (RFP), please visit: www.wfh.org/en/our-work/epidemiological-research

The Proposal submission deadline is Tuesday, February 28, 2017. Potential candidates are requested to submit a Declaration of Interest by Tuesday, January 31, 2017. 

Enquiries should be directed to Donna Coffin, WFH Director of Research & Public Policy: dcoffin@wfh.org.