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Home
  • Who We Are
    • Our Story
      • Mission & History
      • What We Do
      • Accomplishments
      • Financial Statements
    • Our Team
      • Employees
      • Board of Directors
      • MASAC
      • Meet the NYLI
      • Nursing Working Group
      • Physical Therapy Working Group
      • Social Work Working Group
    • Our Partners
      • The ACT Initiative
      • Red Tie Society
      • CDC Coop Agreement
    • Careers
      • What Do We Value?
      • Job Openings
      • Volunteer Opportunities
  • Bleeding Disorders A-Z
    • Overview
      • Fast Facts
      • What is a Bleeding Disorder?
      • History
      • Types of Bleeds
      • Inhibitors
      • Women and Bleeding Disorders
    • Types
      • Hemophilia A
      • Hemophilia B
      • Von Willebrand Disease
      • Other Factor Deficiencies
      • Inherited Platelet Disorders
    • Treatment
      • Comprehensive Medical Care
      • Treatment Guidelines (MASAC)
      • Current Treatments
      • Future Therapies
      • Clinical Trials
    • Healthcare Coverage
      • Choosing an Insurance Plan
      • Private Insurance
      • Public Insurance
      • Health Insurance Toolkit
  • Educational Programs
    • Education
      • Inhibitor Education
      • Online Education
      • Rare Bleeding Disorders
      • Von Willebrand Disease
      • Mental Health
      • Gene Therapy Education
      • Women
      • Live Workshops
    • Training
      • Steps for Living Facilitation Training
      • Youth Leadership (NYLI)
      • Youth International Twinning Partnership
    • Outreach
      • Undiagnosed
      • Guías Culturales
      • Health Equity Working Group
  • Advocacy
    • Federal Priorities
      • Access to Care
      • Federal Programs
      • Medicare
      • Medicaid
      • Blood & Blood Product Safety
    • State Priorities
      • Utilization Management
      • Patient Out-of-Pocket Expenses
      • Medicaid
    • How You Can Take Action
      • Register to Vote
      • Washington Days
      • Advocacy Do’s and Don’ts
      • 6 Steps for Grassroots Advocacy
      • Tell Your Story
  • Research
    • Research Projects
      • Funded by NHF
      • Presented at Our Conference
    • Fund Your Research
      • Judith Graham Pool Postdoctoral Research Fellowship
      • Career Development Award
      • Bridge Award
      • Innovative Investigator Research Award
      • Jeanne Marie Lusher Diversity Fellowship
      • Nursing Excellence Fellowship
      • Physical Therapy Excellence Fellowship
      • Social Work Excellence Fellowship
    • Community Voices in Research
      • What is CVR?
      • How & Why Should I Participate?
      • Impact on Research
      • Frequently Asked Questions
  • Healthcare Professionals
    • Guidelines on Care
      • Comprehensive Care
      • MASAC Documents
      • Products Licensed (US)
      • Emergency Management
    • Education & Resources
      • BDC: Provider Enduring Web Activity
      • NHF-Takeda Clinical Fellowship Program
      • Online Education Activities for Providers
      • Live & Online Learning (Partners)
      • Rare Coagulation Resource Room
      • Peer-reviewed Journals
      • NHF Publications
      • Other Associations
    • Allied Healthcare
      • Nursing
      • Physical Therapy
      • Social Work
    • Managed Care & Payers
      • Collaborating on Coverage
      • Quality of Care Guidelines
      • CME/CE Webcast Series
      • Educational Web Portal
      • Quality Improvement & Cost Management
  • Community Resources
    • Request Information
      • Call Our Information Center
      • Read Our Publications
      • Get HemAware Magazine
      • Subscribe for Email Updates
    • Resources Near You
      • NHF Chapters
      • Hemophilia Treatment Centers
      • Clinical Trials
      • Bleeding Disorders Camps
    • Financial Assistance
      • Scholarships
      • Patient Assistance Programs
  • Contact Us
  • Subscribe
  • News
  • Events
  • Give
    • Give Now
      • Make a Donation
      • Give Monthly
      • Honor a Loved One
      • Support Research
      • Why NHF?
    • Other Ways to Give
      • Make a Planned Gift
      • Create a Will
      • Give Stock
      • Donor Advised Funds
      • Be a Corporate Partner
      • Donate Your Car
    • Fundraise for NHF
      • Create Your Own Fundraiser
      • Fundraise on Facebook
    • Join Us
      • Red Tie Soiree
      • Red Tie Campaign
      • Find a Walk
      • For Young Professionals
National Hemophilia Foundation Steps for Living Victory for Women Better You Know Unite for Bleeding Disorders Unite Your Way

News

Stay informed with the latest updates for the bleeding disorders community.
Industry
FDA Puts Clinical Hold on uniQure's Hope B Trial
FDA Puts Clinical Hold on uniQure's Hope B Trial
Industry
Catalyst Announces New FDA Designation and Phase 3 MarzAA Study Design
Catalyst Announces New FDA Designation and Phase 3 MarzAA Study Design
Industry
1174384721-doses
Pfizer Announces First Participant Dosed Phase 3 Study of Marstacimab
Industry
 1242454551-Medical-Trial
uniQure Announces Positive Results from Phase 3 Gene Therapy Trial
Industry
Global Dosing Hold in Fitusiran Trials Initiated by Sanofi Genzyme to Investigate New Adverse Events
Global Dosing Hold in Fitusiran Trials Initiated…
In the Media
With Patient Perspectives in Mind, ICER Evaluates Hemophilia Therapies
With Patient Perspectives in Mind, ICER Evaluates Hemophilia Therapies
Industry
First Patient Dosed in Phase 3 Gene Therapy Trial
First Patient Dosed in Phase 3 Gene Therapy Trial
Industry
CSL Behring States Stimate Will Not Be Resupplied until 2022
CSL Behring States Stimate Will Not Be Resupplied until 2022
Industry
Sanofi Publishes Updates to BIVV001 Trial
Sanofi Publishes Updates to BIVV001 Trial
Industry
BioMarin’s New Clinical Study to Focus on Antibody Development to AAVs
BioMarin’s New Clinical Study to Focus on Antibody Development to AAVs
Industry
Mylan Initiates Voluntary Nationwide Recall of Four Lots of Tranexamic Acid Injection, USP Due to Carton Label Mix-Up
Mylan Initiates Voluntary…
Industry
FDA Recommends Additional Data for BioMarin’s Investigational Gene Therapy
FDA Recommends Additional Data for BioMarin’s Investigational Gene Therapy…
Industry
Novo Nordisk Announces Near Resumption of Concizumab Trials
Novo Nordisk Announces Near Resumption of Concizumab Trials
Industry
Stimate Recall Expanded to Consumer Level
Stimate Recall Update
Industry
Genentech Presents New Hemlibra® Safety Data During Virtual ISTH Congress
Genentech Presents New Hemlibra® Safety Data During Virtual ISTH Congress…

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