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Home
  • Who We Are
    • Our Story
      • Mission & History
      • What We Do
      • What Do We Value?
      • Accomplishments
      • Financial Statements
    • Our Team
      • Employees
      • Board of Directors
      • MASAC
      • Meet the NYLI
      • Nursing Working Group
      • Physical Therapy Working Group
      • Social Work Working Group
    • Our Partners
      • The ACT Initiative
      • Red Tie Society
      • CDC Coop Agreement
    • Careers
      • What Do We Value?
      • Job Openings
      • Volunteer Opportunities
  • Bleeding Disorders A-Z
    • Overview
      • Fast Facts
      • What is a Bleeding Disorder?
      • History
      • Types of Bleeds
      • Inhibitors
      • Women and Bleeding Disorders
    • Types
      • Hemophilia A
      • Hemophilia B
      • Von Willebrand Disease
      • Other Factor Deficiencies
      • Inherited Platelet Disorders
    • Treatment
      • Comprehensive Medical Care
      • Treatment Guidelines (MASAC)
      • Current Treatments
      • Future Therapies
      • Clinical Trials
    • Healthcare Coverage
      • Choosing an Insurance Plan
      • Private Insurance
      • Public Insurance
      • Health Insurance Toolkit
  • Educational Programs
    • Education
      • Inhibitor Education
      • Online Education
      • Rare Bleeding Disorders
      • Von Willebrand Disease
      • Mental Health
      • Gene Therapy Education
      • Women
      • Live Workshops
    • Training
      • Steps for Living Facilitation Training
      • Youth Leadership (NYLI)
      • Youth International Twinning Partnership
    • Outreach
      • Undiagnosed
      • Guías Culturales
      • Health Equity Working Group
  • Advocacy
    • Federal Priorities
      • Access to Care
      • Federal Programs
      • Medicare
      • Medicaid
      • Blood & Blood Product Safety
    • State Priorities
      • Utilization Management
      • Patient Out-of-Pocket Expenses
      • Medicaid
    • How You Can Take Action
      • Register to Vote
      • Washington Days
      • Advocacy Do’s and Don’ts
      • 6 Steps for Grassroots Advocacy
      • Tell Your Story
  • Research
    • Research Projects
      • Funded by NHF
      • Presented at Our Conference
    • Fund Your Research
      • Judith Graham Pool Postdoctoral Research Fellowship
      • Career Development Award
      • Bridge Award
      • Innovative Investigator Research Award
      • Jeanne Marie Lusher Diversity Fellowship
      • Nursing Excellence Fellowship
      • Physical Therapy Excellence Fellowship
      • Social Work Excellence Fellowship
    • Community Voices in Research
      • What is CVR?
      • How & Why Should I Participate?
      • Impact on Research
      • Frequently Asked Questions
  • Healthcare Professionals
    • Guidelines on Care
      • Comprehensive Care
      • MASAC Documents
      • Products Licensed (US)
      • Emergency Management
    • Education & Resources
      • BDC: Provider Enduring Web Activity
      • NHF-Takeda Clinical Fellowship Program
      • Online Education Activities for Providers
      • Live & Online Learning (Partners)
      • Rare Coagulation Resource Room
      • Peer-reviewed Journals
      • NHF Publications
      • Other Associations
    • Allied Healthcare
      • Nursing
      • Physical Therapy
      • Social Work
    • Managed Care & Payers
      • Collaborating on Coverage
      • Quality of Care Guidelines
      • CME/CE Webcast Series
      • Educational Web Portal
      • Quality Improvement & Cost Management
  • Community Resources
    • Request Information
      • Call Our Information Center
      • Read Our Publications
      • Get HemAware Magazine
      • Subscribe for Email Updates
    • Resources Near You
      • NHF Chapters
      • Hemophilia Treatment Centers
      • Clinical Trials
      • Bleeding Disorders Camps
    • Financial Assistance
      • Scholarships
      • Patient Assistance Programs
  • Contact Us
  • Subscribe
  • News
  • Events
  • Give
    • Give Now
      • Make a Donation
      • Give Monthly
      • Honor a Loved One
      • Support Research
      • Why NHF?
    • Other Ways to Give
      • Make a Planned Gift
      • Create a Will
      • Give Stock
      • Donor Advised Funds
      • Be a Corporate Partner
      • Donate Your Car
    • Fundraise for NHF
      • Create Your Own Fundraiser
      • Fundraise on Facebook
      • NHF GO
    • Join Us
      • Red Tie Soiree
      • Red Tie Campaign
      • Find a Walk
      • For Young Professionals
      • Bleeding Disorders Awareness Month
National Hemophilia Foundation Steps for Living Victory for Women Better You Know Unite for Bleeding Disorders Unite Your Way

News

Stay informed with the latest updates for the bleeding disorders community.
Medical
WFH Lead Research Points to Higher Global Hemophilia Prevalence
WFH Lead Research Points to Higher Global Hemophilia Prevalence
Sep 13, 2019
Medical
Dedicated Hemotologist and Patient Advocate Dies at 95
Dedicated Hemotologist and Patient Advocate Dies at 95
Aug 20, 2019
Medical
MASAC Issues New Document on Liver Biopsies in Gene Therapy
MASAC Issues New Document on Liver Biopsies in Gene Therapy
Aug 14, 2019
Medical
Comparing Adherence and Physical Activity in Hemophilia A Patients
Comparing Adherence and Physical Activity in Hemophilia A Patients
Jul 2, 2019
Medical
Further Response from Bayer on Kogenate® FS Recall
CSL Recalls Single Lot of Mononine®
Jun 11, 2019
Medical
St. Jude/WFH to Bring Hemophilia B Gene Therapy Trials to Developing World
St. Jude/WFH to Bring Hemophilia B Gene Therapy Trials to Developing World…
May 23, 2019
Medical
Researchers Look at Clinical Outcomes in FXIII Babies
Researchers Look at Clinical Outcomes in FXIII Babies
May 14, 2019
Medical
CHOP Researchers Study Factor VIIa Prophylaxis Through Gene Transfer
CHOP Researchers Study Factor VIIa Prophylaxis Through Gene Transfer
Apr 26, 2019
Medical
New CME-Accredited Activity on Evaluating Patients with Suspected VWD
New CME-Accredited Activity on Evaluating Patients with Suspected VWD
Mar 21, 2019
Medical
Study Shows No Increased Bleeding Risk for Patients Undergoing GI Endoscopies with Prophylaxis
Study Shows No Increased Bleeding Risk for Patients…
Mar 12, 2019
Medical
Study Indicates Prophylaxis Effective for Severe VWD
Study Indicates Prophylaxis Effective for Severe VWD
Mar 5, 2019
Peer-Reviewed Journal Summaries
PT Study Focuses on Comprehensive Survey of Physical Activities Risks for 101 Activities
PT Study Focuses on Comprehensive Survey of Physical…
Feb 15, 2019
Medical
Providers: NHLBI Seeking Comment on Preliminary Hemophilia Inhibitors Measurement Protocols
Providers: NHLBI Seeking Comment on Preliminary Hemophilia…
Feb 6, 2019
Medical
ISTH Creates Bleeding Assessment Tool for Hemophilia Patients
ISTH Creates Bleeding Assessment Tool for Hemophilia Patients
Feb 4, 2019
Medical
Gene Therapy with Transplanted Cells Shows Promise in Hemophilia A Mice
Gene Therapy with Transplanted Cells Shows Promise in Hemophilia A Mice
Feb 1, 2019

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