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Home
  • Who We Are
    • Our Story
      • Mission & History
      • What We Do
      • What Do We Value?
      • Accomplishments
      • Financial Statements
    • Our Team
      • Employees
      • Board of Directors
      • MASAC
      • Meet the NYLI
      • Nursing Working Group
      • Physical Therapy Working Group
      • Social Work Working Group
    • Our Partners
      • The ACT Initiative
      • Red Tie Society
      • CDC Coop Agreement
    • Careers
      • What Do We Value?
      • Job Openings
      • Volunteer Opportunities
  • Bleeding Disorders A-Z
    • Overview
      • Fast Facts
      • What is a Bleeding Disorder?
      • History
      • Types of Bleeds
      • Inhibitors
      • Women and Bleeding Disorders
    • Types
      • Hemophilia A
      • Hemophilia B
      • Von Willebrand Disease
      • Other Factor Deficiencies
      • Inherited Platelet Disorders
    • Treatment
      • Comprehensive Medical Care
      • Treatment Guidelines (MASAC)
      • Current Treatments
      • Future Therapies
      • Clinical Trials
    • Healthcare Coverage
      • Choosing an Insurance Plan
      • Private Insurance
      • Public Insurance
      • Health Insurance Toolkit
  • Educational Programs
    • Education
      • Inhibitor Education
      • Online Education
      • Rare Bleeding Disorders
      • Von Willebrand Disease
      • Mental Health
      • Gene Therapy Education
      • Women
      • Live Workshops
    • Training
      • Steps for Living Facilitation Training
      • Youth Leadership (NYLI)
      • Youth International Twinning Partnership
    • Outreach
      • Undiagnosed
      • Guías Culturales
      • Health Equity Working Group
  • Advocacy
    • Federal Priorities
      • Access to Care
      • Federal Programs
      • Medicare
      • Medicaid
      • Blood & Blood Product Safety
    • State Priorities
      • Utilization Management
      • Patient Out-of-Pocket Expenses
      • Medicaid
    • How You Can Take Action
      • Register to Vote
      • Washington Days
      • Advocacy Do’s and Don’ts
      • 6 Steps for Grassroots Advocacy
      • Tell Your Story
  • Research
    • Research Projects
      • Funded by NHF
      • Presented at Our Conference
    • Fund Your Research
      • Judith Graham Pool Postdoctoral Research Fellowship
      • Career Development Award
      • Bridge Award
      • Innovative Investigator Research Award
      • Jeanne Marie Lusher Diversity Fellowship
      • Nursing Excellence Fellowship
      • Physical Therapy Excellence Fellowship
      • Social Work Excellence Fellowship
    • Community Voices in Research
      • What is CVR?
      • How & Why Should I Participate?
      • Impact on Research
      • Frequently Asked Questions
  • Healthcare Professionals
    • Guidelines on Care
      • Comprehensive Care
      • MASAC Documents
      • Products Licensed (US)
      • Emergency Management
    • Education & Resources
      • BDC: Provider Enduring Web Activity
      • NHF-Takeda Clinical Fellowship Program
      • Online Education Activities for Providers
      • Live & Online Learning (Partners)
      • Rare Coagulation Resource Room
      • Peer-reviewed Journals
      • NHF Publications
      • Other Associations
    • Allied Healthcare
      • Nursing
      • Physical Therapy
      • Social Work
    • Managed Care & Payers
      • Collaborating on Coverage
      • Quality of Care Guidelines
      • CME/CE Webcast Series
      • Educational Web Portal
      • Quality Improvement & Cost Management
  • Community Resources
    • Request Information
      • Call Our Information Center
      • Read Our Publications
      • Get HemAware Magazine
      • Subscribe for Email Updates
    • Resources Near You
      • NHF Chapters
      • Hemophilia Treatment Centers
      • Clinical Trials
      • Bleeding Disorders Camps
    • Financial Assistance
      • Scholarships
      • Patient Assistance Programs
  • Contact Us
  • Subscribe
  • News
  • Events
  • Give
    • Give Now
      • Make a Donation
      • Give Monthly
      • Honor a Loved One
      • Support Research
      • Why NHF?
    • Other Ways to Give
      • Make a Planned Gift
      • Create a Will
      • Give Stock
      • Donor Advised Funds
      • Be a Corporate Partner
      • Donate Your Car
    • Fundraise for NHF
      • Create Your Own Fundraiser
      • Fundraise on Facebook
      • NHF GO
    • Join Us
      • Red Tie Soiree
      • Red Tie Campaign
      • Find a Walk
      • For Young Professionals
      • Bleeding Disorders Awareness Month
National Hemophilia Foundation Steps for Living Victory for Women Better You Know Unite for Bleeding Disorders Unite Your Way

News

Stay informed with the latest updates for the bleeding disorders community.
Medical
Study Shows VWD Testing Rates Remain Low
Study Shows VWD Testing Rates Remain Low
May 17, 2018
Medical
Prophylaxis Study Results for Boys with Severe Hemophilia A
Prophylaxis Study Results for Boys with Severe Hemophilia A
May 16, 2018
Peer-Reviewed Journal Summaries
Studying the Effectiveness of pdFX in Females with Factor X
Studying the Effectiveness of pdFX in Females with Factor X
May 11, 2018
Medical
uniQure Announces Updated Hemophilia B Gene Therapy Data
Medscape Launches New Hemophilia Gene Therapy Education
May 8, 2018
Medical
NHLBI Workshop on Factor VIII Inhibitors is Less Than Two Weeks Away!
NHLBI Workshop on Factor VIII Inhibitors is Less Than Two Weeks Away!
May 3, 2018
Medical
Patient Education Leads to Drop in Prosthetic Joint Infections
Patient Education Leads to Drop in Prosthetic Joint Infections
Apr 30, 2018
Peer-Reviewed Journal Summaries
Study Suggests Prophylaxis Could Reduce Hospitalizations for VWD Patients
Study Suggests Prophylaxis Could Reduce Hospitalizations for VWD Patients…
Apr 30, 2018
Medical
VONVENDI® Receives Expanded FDA Approval for Surgery in VWD Patients
VONVENDI® Receives Expanded FDA Approval for Surgery in VWD Patients
Apr 25, 2018
Medical
NHF Announces Telegenetics Investigation
NHF Announces Telegenetics Investigation
Apr 25, 2018
Medical
Two New MASAC Documents Issued
MASAC Safety Information Update on Emicizumab (HEMLIBRA)
Apr 24, 2018
Medical
Two New MASAC Documents Issued
MASAC Issues New Treatment Recommendation
Apr 24, 2018
Medical
New Medscape Activity Describes Latest Advances in Inhibitor Management
New Medscape Activity Describes Latest Advances in Inhibitor Management
Mar 26, 2018
Medical
HTC Investigators Look at UDC Data on Females with Bleeding Disorders
HTC Investigators Look at UDC Data on Females with Bleeding Disorders
Mar 16, 2018
Medical
NHLBI Workshop on Factor VIII Inhibitors is Less Than Two Weeks Away!
NHLBI Factor VIII Inhibitor Workshop Registration Now Open
Feb 13, 2018
Medical
Updates on My Life Our Future Genotyping Project
My Life, Our Future to Be Featured in CDC Public Health Webinar
Jan 30, 2018

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