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Home
  • Who We Are
    • Our Story
      • Mission & History
      • What We Do
      • What Do We Value?
      • NHF’s Health Equity Efforts
      • Accomplishments
      • Financial Statements
      • NHF Media Newsroom
      • The Red Thread: NHF's 75th Anniversary Celebration
    • Our Team
      • Staff
      • Board of Directors
      • MASAC
      • Meet the NYLI
      • Nursing Working Group
      • Physical Therapy Working Group
      • Social Work Working Group
    • Our Partners
      • Partners In Progress
      • The ACT Initiative
      • Red Tie Society
      • CDC Coop Agreement
    • Careers
      • What Do We Value?
      • Job Openings
      • Volunteer Opportunities
  • Bleeding Disorders A-Z
    • Overview
      • Fast Facts
      • What is a Bleeding Disorder?
      • History
      • Types of Bleeds
      • Inhibitors
      • Women and Bleeding Disorders
    • Types
      • Hemophilia A
      • Hemophilia B
      • Von Willebrand Disease
      • Other Factor Deficiencies
      • Inherited Platelet Disorders
    • Treatment
      • Comprehensive Medical Care
      • MASAC For You
      • Treatment Guidelines (MASAC)
      • Current Treatments
      • Future Therapies
      • Clinical Trials
    • Healthcare Coverage
      • Choosing an Insurance Plan
      • Private Insurance
      • Public Insurance
      • Health Insurance Toolkit
  • Educational Programs
    • Education
      • Bleeding Disorders Conference
      • Inhibitor Education
      • Online Education
      • Rare Bleeding Disorders
      • Von Willebrand Disease
      • Mental Health
      • Gene and Innovative Therapies
      • Women
      • NHF Educational Programming
      • Own Your Path
    • Training
      • Youth Leadership (NYLI)
    • Outreach
      • Undiagnosed
      • Guías Culturales
  • Advocacy
    • Federal Priorities
      • Access to Care
      • Federal Programs
      • Medicare
      • Medicaid
      • Blood & Blood Product Safety
      • Make All Copays Count
    • State Priorities
      • Utilization Management
      • Patient Out-of-Pocket Expenses
      • Medicaid
    • How You Can Take Action
      • Register to Vote
      • Washington Days
      • Advocacy Do’s and Don’ts
      • 6 Steps for Grassroots Advocacy
      • Tell Your Story
    • Managed Care & Payers
      • Collaborating on Coverage
      • Quality of Care Guidelines
      • CME/CE Webcast Series
      • Educational Web Portal
      • Quality Improvement & Cost Management
  • Research
    • Research Projects
      • Conducted by NHF
      • Funded by NHF
      • Presented at Our Conference
      • Research Journal Club
    • Fund Your Research
      • Judith Graham Pool Postdoctoral Research Fellowship
      • Career Development Award
      • Bridge Award
      • Innovative Investigator Research Award
      • Jeanne Marie Lusher Diversity Fellowship
      • Nursing Excellence Fellowship
      • Physical Therapy Excellence Fellowship
      • Social Work Excellence Fellowship
    • Community Voices in Research
      • What is CVR?
      • How & Why Should I Participate?
      • Impact on Research
      • Frequently Asked Questions
      • What We’ve Learned So Far
    • National Research Blueprint
      • What is the National Research Blueprint?
      • Involvement from Across the Community
      • Building on the Blueprint
      • Research Priorities
      • State of the Science Research Summit
  • Healthcare Professionals
    • Guidelines on Care
      • Comprehensive Care
      • MASAC Documents
      • Products Licensed (US)
      • Emergency Management
      • Snapshots of VWD Guidelines
    • Education & Resources
      • BDC: Provider Enduring Web Activity
      • NHF-Takeda Clinical Fellowship Program
      • NHF’s Collaborative Learning Exchange
      • Online Education for Providers
      • Live & Online Learning (Partners)
      • Rare Coagulation Resource Room
      • Peer-reviewed Journals
      • NHF Publications
      • Other Associations
    • Allied Healthcare
      • Nursing
      • Physical Therapy
      • Social Work
  • Community Resources
    • Request Information
      • Contact NHF
      • HANDI - NHF’s Information Resource Center
      • Read Our Publications
      • Subscribe for Email Updates
      • Get HemAware Magazine
      • Newsletter Archive
      • Wednesday Webinar Series
    • Resources Near You
      • NHF Chapters
      • Hemophilia Treatment Centers
      • Clinical Trials
      • Bleeding Disorders Camps
    • Financial Assistance
      • Scholarships
      • Patient Assistance Programs
  • Contact Us
  • Subscribe
  • News
  • Events
  • Give
    • Give Now
      • Make a Donation
      • Give Monthly
      • Honor a Loved One
      • Support Research
      • Why NHF?
      • Physician Partners
    • Other Ways to Give
      • Be a Corporate Partner
      • Donate Your Car
      • Give Stock
      • Make a Planned Gift
      • Create a Will
      • Donor Advised Funds
    • Fundraise for NHF
      • NHF GO
      • Run in a Marathon
      • 2022 United Airlines New York City Half Marathon
      • Create Your Own Fundraiser
      • Fundraise on Facebook
    • Join Us
      • Takeda Shoes
      • Red Tie Soiree
      • Bleeding Disorders Awareness Month
      • Find a Walk
      • For Young Professionals
National Hemophilia Foundation Steps for Living Victory for Women Better You Know Unite for Bleeding Disorders Unite Your Way

News

Stay informed with the latest updates for the inheritable blood disorders community.

Stay informed with the latest updates for the inheritable blood disorders community.

Advocacy & Legislative
Additional Resources
Important Changes Coming to Your State Medicaid or CHIP Program
Feb 2, 2023
Medical
DNA Gene Helix
WFH Gene Therapy Registry Goes Live
Jan 31, 2023
Industry
Sanofi Announces New Efanesoctocog alfa Data Published in the NEJM
Jan 30, 2023
Blood Safety
FDA Initiating National Blood Surveillance Monitoring System
NHF Responds to FDA's Proposed Blood Donation Changes
Jan 27, 2023
Advocacy & Legislative
NHF & HFA Respond to New Blue Cross Blue Shield of Tennessee Formularies…
Jan 20, 2023
Industry
Scientist Pipetting Liquids for Research
New FIX Chromogenic Assay Launched by Precision BioLogic
Jan 18, 2023
Industry
Biomarin Provides Hemophilia A Clinical Development Program Updates
Biomarin Provides Hemophilia A Clinical Development Program Updates
Jan 10, 2023
Industry
Takeda Announces Trial Results on Investigational Therapy for Ultra Rare Blood Disorder
Takeda Announces Trial Results on Investigational Therapy for…
Jan 10, 2023
Press Releases
NHF Announces 2023 Winter/Spring Wednesday Webinar Schedule
Jan 5, 2023
Industry
Pfizer Announces Trial Updates for Investigational Hemophilia Gene Therapy
Pfizer Announces Trial Updates for Investigational Hemophilia Gene Therapy…
Jan 4, 2023
Press Releases
PPTA Posts Statement on Monkeypox and Plasma Protein Therapies
NHF Assumes Leadership of the American Plasma Users Coalition
Jan 3, 2023
NHF & Community
Own Your Path
NHF's Own Your Path program begins recruitment
Dec 21, 2022
Industry
Clinical Trial Lab Research
Spark Announces SPK-8011 Updates at ASH
Dec 15, 2022
Press Releases
75th Anniversary
National Hemophilia Foundation Set to Celebrate 75 Years in 2023
Dec 13, 2022
Medical
gene therapy
First Hemophilia B Gene Therapy Approved by FDA
Nov 23, 2022

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