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Home
  • Who We Are
    • Our Story
      • Mission & History
      • What We Do
      • What Do We Value?
      • Accomplishments
      • Financial Statements
    • Our Team
      • Employees
      • Board of Directors
      • MASAC
      • Meet the NYLI
      • Nursing Working Group
      • Physical Therapy Working Group
      • Social Work Working Group
    • Our Partners
      • The ACT Initiative
      • Red Tie Society
      • CDC Coop Agreement
    • Careers
      • What Do We Value?
      • Job Openings
      • Volunteer Opportunities
  • Bleeding Disorders A-Z
    • Overview
      • Fast Facts
      • What is a Bleeding Disorder?
      • History
      • Types of Bleeds
      • Inhibitors
      • Women and Bleeding Disorders
    • Types
      • Hemophilia A
      • Hemophilia B
      • Von Willebrand Disease
      • Other Factor Deficiencies
      • Inherited Platelet Disorders
    • Treatment
      • Comprehensive Medical Care
      • Treatment Guidelines (MASAC)
      • Current Treatments
      • Future Therapies
      • Clinical Trials
    • Healthcare Coverage
      • Choosing an Insurance Plan
      • Private Insurance
      • Public Insurance
      • Health Insurance Toolkit
  • Educational Programs
    • Education
      • Inhibitor Education
      • Online Education
      • Rare Bleeding Disorders
      • Von Willebrand Disease
      • Mental Health
      • Gene Therapy Education
      • Women
      • Virtual Programming
    • Training
      • Steps for Living Facilitation Training
      • Youth Leadership (NYLI)
      • Youth International Twinning Partnership
    • Outreach
      • Undiagnosed
      • Guías Culturales
      • Health Equity Working Group
  • Advocacy
    • Federal Priorities
      • Access to Care
      • Federal Programs
      • Medicare
      • Medicaid
      • Blood & Blood Product Safety
    • State Priorities
      • Utilization Management
      • Patient Out-of-Pocket Expenses
      • Medicaid
    • How You Can Take Action
      • Register to Vote
      • Washington Days
      • Advocacy Do’s and Don’ts
      • 6 Steps for Grassroots Advocacy
      • Tell Your Story
  • Research
    • Research Projects
      • Funded by NHF
      • Presented at Our Conference
    • Fund Your Research
      • Judith Graham Pool Postdoctoral Research Fellowship
      • Career Development Award
      • Bridge Award
      • Innovative Investigator Research Award
      • Jeanne Marie Lusher Diversity Fellowship
      • Nursing Excellence Fellowship
      • Physical Therapy Excellence Fellowship
      • Social Work Excellence Fellowship
    • Community Voices in Research
      • What is CVR?
      • How & Why Should I Participate?
      • Impact on Research
      • Frequently Asked Questions
  • Healthcare Professionals
    • Guidelines on Care
      • Comprehensive Care
      • MASAC Documents
      • Products Licensed (US)
      • Emergency Management
    • Education & Resources
      • BDC: Provider Enduring Web Activity
      • NHF-Takeda Clinical Fellowship Program
      • Online Education Activities for Providers
      • Live & Online Learning (Partners)
      • Rare Coagulation Resource Room
      • Peer-reviewed Journals
      • NHF Publications
      • Other Associations
    • Allied Healthcare
      • Nursing
      • Physical Therapy
      • Social Work
    • Managed Care & Payers
      • Collaborating on Coverage
      • Quality of Care Guidelines
      • CME/CE Webcast Series
      • Educational Web Portal
      • Quality Improvement & Cost Management
  • Community Resources
    • Request Information
      • Call Our Information Center
      • Read Our Publications
      • Get HemAware Magazine
      • Subscribe for Email Updates
    • Resources Near You
      • NHF Chapters
      • Hemophilia Treatment Centers
      • Clinical Trials
      • Bleeding Disorders Camps
    • Financial Assistance
      • Scholarships
      • Patient Assistance Programs
  • Contact Us
  • Subscribe
  • News
  • Events
  • Give
    • Give Now
      • Make a Donation
      • Give Monthly
      • Honor a Loved One
      • Support Research
      • Why NHF?
    • Other Ways to Give
      • Make a Planned Gift
      • Create a Will
      • Give Stock
      • Donor Advised Funds
      • Be a Corporate Partner
      • Donate Your Car
    • Fundraise for NHF
      • Create Your Own Fundraiser
      • Fundraise on Facebook
      • NHF GO
    • Join Us
      • Red Tie Soiree
      • Red Tie Campaign
      • Find a Walk
      • For Young Professionals
      • Bleeding Disorders Awareness Month
National Hemophilia Foundation Steps for Living Victory for Women Better You Know Unite for Bleeding Disorders Unite Your Way

News

Stay informed with the latest updates for the bleeding disorders community.
Industry
New Program Looks to Standardize Care for Patients with Rare Diseases
New Program Looks to Standardize Care for Patients with Rare Diseases
Mar 2, 2021
NHF & Community
March 2021 Wednesday Webinar Schedule
Feb 25, 2021
Industry
FDA Partially Rescinds Added Indications for Two FIX Products
Feb 23, 2021
Industry
Global Dosing Hold in Fitusiran Trials Initiated by Sanofi Genzyme to Investigate New Adverse Events
Sanofi Revises Fitusiran Dosing Regimen to Mitigate Risk of Vascular…
Feb 22, 2021
Industry
Spark Announces Preliminary Data from Investigational Gene Therapy Trial
Feb 19, 2021
Industry
Octapharma Announces Final Results of Nuwiq® Study
Feb 19, 2021
NHF & Community
This national survey is designed to assess patient demographics, their satisfaction with the HTC’s core treatment team, its services, and care processes.
Third National Patient Satisfaction Survey Launching Soon!
Feb 11, 2021
NHF & Community
Wednesday Webinar February 2021 Speakers
Feb 1, 2021
Advocacy & Legislative
The special enrollment period lasts from February 15th to May 15th, 2021.
ACA Marketplaces to Reopen
Jan 29, 2021
Industry
The phase 3 trial currently includes 134 participants with hemophilia A, all of whom have received a single dose of the gene therapy.
BioMarin Announces Positive Phase 3 Study Data for Valoctocogene…
Jan 25, 2021
NHF & Community
The recall affects one batch of the product.
Recall Notice: Voluntary Recall Mononine Coagulation Factor IX (Human)
Jan 21, 2021
Medical
These guidelines are an important step in our quest to address the difficulties individuals go through to obtain an accurate, timely diagnosis, and appropriate treatment.
Snapshots of VWD Guidelines
Jan 19, 2021
Medical
Medscape Activity Designed to Prepare Clinicians for Arrival of Gene…
Jan 12, 2021
Medical
These guidelines are an important step in our quest to address the difficulties individuals go through to obtain an accurate, timely diagnosis, and appropriate treatment.
Organizations Develop Guidelines on the Diagnosis and Management of VWD
Jan 11, 2021
NHF & Community
New Research Fellowship Available from NHF
Jan 11, 2021

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