NHF is excited to announce that the Centers for Disease Control and Prevention (CDC), Division of Blood Disorders, upcoming topic on its public health webinar series will focus entirely on NHF’s evidence-based guideline on hemophilia care. The webinar, “Evidence-based Guideline on Hemophilia Care: A Model for Rare Disease Guidelines,” will be held on Thursday, February 16th, 2017, from 2:00–3:00 pm EST. The CDC’s public health webinar series on blood disorders provides evidence-based information on new research, interventions, emerging issues of interest in blood disorders and innovative approaches in collaborations and partnerships.
In June 2016, NHF partnered with McMaster University to publish a novel evidence-based guideline on care models for hemophilia management. In July the guideline was accepted into the National Guidelines Clearinghouse. It will serve as a resource to help patients, providers, insurers and other stakeholders make informed decisions.
NHF initiated the development of an evidence-based clinical practice guideline to identify best practices in delivery of care for people with hemophilia to improve patient outcomes. In this webinar, presenters will describe the research that formed the basis for the guideline.
The presenters of this upcoming webinar are:
- Mark Skinner JD, NHF, President & CEO, Institute for Policy Advancement, Ltd.
- Menaka Pai, BSc, MSc, MD, FRCPC, Assistant Professor, Department of Medicine Associate Member, Department of Pathology and Molecular Medicine, Consultant Laboratory Hematologist, Hamilton Regional Laboratory Medicine Program, McMaster University
- Steven Pipe, MD, Chair, Medical and Scientific Advisory Council (MASAC), NHF; Director, Division of Pediatric Hematology and Oncology Pediatric Medical Director, Hemophilia and Coagulation Disorders Program; Director, Special Coagulation Laboratory, University of Michigan
This free webinar is targeted to public health professionals, clinicians and researchers who desire more information about hemophilia and blood disorders. Advance registration is required and the number of attendees is limited. You can preregister here: http://bit.ly/2iG0Ov3.
