Clinical trial essentials: What you need to know to be a part of the latest research.

Many exciting new medicines, devices and procedures have helped improve care for people with bleeding disorders. These advances have been possible because of new technologies, increases in funding and scientific programs. But most importantly, we’re seeing this progress because people with bleeding disorders and their loved ones, like you, have participated in research.

 

 

This Essentials kit provides the “must have” information about clinical trials: what they are designed to do, what to expect before and during, and what questions to discuss with your providers to decide if a trial is right for you.

 

What clinical trials might be right for me?


For available clinical trials of bleeding disorders, visit ClinicalTrials.gov and search for your disorder.

Read more in each module:

Understanding Clinical Trials

Every new treatment for bleeding disorders has been tested in clinical trials.

Understanding Clinical Trials
What to Expect
What to Expect

What to expect before you start a trial.

Understanding Consent
Understanding Consent

A roadmap for your trial experience

What Happens in a Trial

Preparing to be actively involved in your trial.

What Happens in a Trial
When the Trial Ends
When the Trial Ends

What to expect as your trial ends

Other Ways to Participate in Research

Understand the many ways you can contribute to research.

Other Ways to Participate in Research
Additional Resources
Additional Resources

For more information, check out these excellent resources available online.