NBDF showcases a wide array of findings from the latest in bleeding disorders research at our annual Bleeding Disorders Conference.
Application of attention destruction techniques during factor concentrates infusion to children with Hemophilia
AWARDED/PRESENTED: 2020
GRANT/PROGRAM:
Bleeding Disorders Conference
Psychosocial Issues
Retrospective review of Hemophilia patients before and after treatment with Emicizumab
AWARDED/PRESENTED: 2020
GRANT/PROGRAM:
Bleeding Disorders Conference
Quality of Life/Outcomes Research
On My Own, A Pilot Transition Program for Teens
AWARDED/PRESENTED: 2020
GRANT/PROGRAM:
Bleeding Disorders Conference
Collaboration/Team Models
Characterization of the Early Immune Response to Factor VIII
AWARDED/PRESENTED: 2020
GRANT/PROGRAM:
Bleeding Disorders Conference
Biomedical/Coagulation Research
Overview of the clinical development of fitusiran
AWARDED/PRESENTED: 2020
GRANT/PROGRAM:
Bleeding Disorders Conference
Clinical Research/Clinical Trials
A Novel Approach for Rare Bleeding Disorders: Shielded Living Therapeutics
AWARDED/PRESENTED: 2020
GRANT/PROGRAM:
Bleeding Disorders Conference
Biomedical/Coagulation Research
Analysis of Bleeding and Treatment Patterns in Children and Adolescents before and after Von Willebrand Disease Diagnosis Using Data from a US Medical Claims Database
AWARDED/PRESENTED: 2020
GRANT/PROGRAM:
Bleeding Disorders Conference
Quality of Life/Outcomes Research
Development of the WFH-ISTH Gene Therapy Registry
AWARDED/PRESENTED: 2020
GRANT/PROGRAM:
Bleeding Disorders Conference
Quality of Life/Outcomes Research
Factor VIII deficiency is associated with abnormal brain volumes
AWARDED/PRESENTED: 2019
GRANT/PROGRAM:
Bleeding Disorders Conference
Clinical Research/Clinical Trials
A look from within: a needs assessment of educational support for the Rare Bleeding Disorders Community
AWARDED/PRESENTED: 2019
GRANT/PROGRAM:
Bleeding Disorders Conference
Peer Support/Outreach/Integration Models
Five-year safety and efficacy of N9-GP (REBINYN®) in previously treated children with hemophilia B in the ongoing paradigm 5 trial
AWARDED/PRESENTED: 2019
GRANT/PROGRAM:
Bleeding Disorders Conference
Clinical Research/Clinical Trials
Satisfaction with Teen Transition Services at US Hemophilia Treatment Centers by Center – Variation by Pediatric and Lifespan Centers 2014 and 2017
AWARDED/PRESENTED: 2019
GRANT/PROGRAM:
Bleeding Disorders Conference
Quality of Life/Outcomes Research
The Positive Impact of CME on Healthcare Providers’ Knowledge of Gene Therapy Studies in Hemophilia
AWARDED/PRESENTED: 2019
GRANT/PROGRAM:
Bleeding Disorders Conference
Clinical Research/Clinical Trials
Evaluation of Patient and Physician Reported Reasons for Switching FVIII Replacement Therapies Among Patients With Hemophilia A
AWARDED/PRESENTED: 2019
GRANT/PROGRAM:
Bleeding Disorders Conference
Quality of Life/Outcomes Research
A survey among patients with hemophilia and inhibitors seeking treatment in non-hemophilia treatment centers
AWARDED/PRESENTED: 2019
GRANT/PROGRAM:
Bleeding Disorders Conference
Inhibitors
World Federation of Hemophilia Annual Global Survey analysis of age distribution of patients with hemophilia
AWARDED/PRESENTED: 2019
GRANT/PROGRAM:
Bleeding Disorders Conference
Quality of Life/Outcomes Research
Short-term efficacy of recombinant porcine factor VIII in patients with acquired factor VIII inhibitors
AWARDED/PRESENTED: 2019
GRANT/PROGRAM:
Bleeding Disorders Conference
Inhibitors
Combining Data from Hemophilia Registries with the World Bleeding Disorders Registry: A Proof of Concept Study with the Czech National Haemophilia Programme Registry
AWARDED/PRESENTED: 2019
GRANT/PROGRAM:
Bleeding Disorders Conference
Quality of Life/Outcomes Research
Acute Lymphoblastic Leukemia in a Pediatric Patient with Hemophilia B: A Rare Clinical Challenge
AWARDED/PRESENTED: 2019
GRANT/PROGRAM:
Bleeding Disorders Conference
New Products
Female Patients with Hemophilia A: A Claims-Linked Chart Review
AWARDED/PRESENTED: 2019
GRANT/PROGRAM:
Bleeding Disorders Conference
Women's Research