NBDF showcases a wide array of findings from the latest in bleeding disorders research at our annual Bleeding Disorders Conference.
Physical Therapy and Extensions for Community Healthcare Outcomes (ECHO): Western States Hemophilia Regional Project
AWARDED/PRESENTED: 2019
GRANT/PROGRAM:
Bleeding Disorders Conference
Orthopedic and Physical Therapy
Women and girls with hemophilia: Gender-based differences in comprehensive care
AWARDED/PRESENTED: 2019
GRANT/PROGRAM:
Bleeding Disorders Conference
Women's Research
Behavioral Health and Substance Use Screening Practices among Hemophilia Treatment Centers
AWARDED/PRESENTED: 2019
GRANT/PROGRAM:
Bleeding Disorders Conference
Psychosocial Issues
Correcting Bleeding Disorders Using Blood Clotting Factors Produced in vivo by Encapsulated Engineered Allogeneic Human Cells
AWARDED/PRESENTED: 2019
GRANT/PROGRAM:
Bleeding Disorders Conference
Biomedical/Coagulation Research
Pain assessment and treatment in bleeding disorder care: The need for social work specific education
AWARDED/PRESENTED: 2019
GRANT/PROGRAM:
Bleeding Disorders Conference
Psychosocial Issues
AMT-061 (AAV5-Padua hFIX variant) an Enhanced Vector for Gene Transfer in Adults with Severe or Moderate-Severe Hemophilia B: Follow-up up to 9 Months in a Phase 2b trial
AWARDED/PRESENTED: 2019
GRANT/PROGRAM:
Bleeding Disorders Conference
Clinical Research/Clinical Trials
Quality Improvement: An Initiative to Foster Mental Health Wellness among a Hemophilia Treatment Center Patient Population
AWARDED/PRESENTED: 2019
GRANT/PROGRAM:
Bleeding Disorders Conference
Psychosocial Issues
Baseline patient characteristics in ReITIrate: A prospective study of rescue ITI with recombinant factor VIII Fc fusion protein (rFVIIIFc) in patients who have failed previous ITI attempts
AWARDED/PRESENTED: 2019
GRANT/PROGRAM:
Bleeding Disorders Conference
Clinical Research/Clinical Trials
Optimizing language for effective communication of gene therapy concepts: A qualitative study
AWARDED/PRESENTED: 2019
GRANT/PROGRAM:
Bleeding Disorders Conference
Peer Support/Outreach/Integration Models
Five-year safety and efficacy of N8-GP (ESPEROCT®) in previously treated children with hemophilia A in the completed pathfinder 5 trial
AWARDED/PRESENTED: 2019
GRANT/PROGRAM:
Bleeding Disorders Conference
Clinical Research/Clinical Trials
Quality of life and health in patients with Haemophilia in Mexico
AWARDED/PRESENTED: 2019
GRANT/PROGRAM:
Bleeding Disorders Conference
Quality of Life/Outcomes Research
Four-year safety and efficacy of N8-GP (ESPEROCT®) in previously treated adolescents/adults with hemophilia A in the completed pathfinder 2 trial
AWARDED/PRESENTED: 2019
GRANT/PROGRAM:
Bleeding Disorders Conference
Clinical Research/Clinical Trials
Patients Report High Satisfaction with US Hemophilia Treatment Centers: National Trends 2014 and 2017
AWARDED/PRESENTED: 2019
GRANT/PROGRAM:
Bleeding Disorders Conference
Quality of Life/Outcomes Research
Navigating the Emergency Department: A Collaboration Among Hemophilia Treatment Center Staff, Emergency Department Staff & Bleeding Disorder Chapter Staff
AWARDED/PRESENTED: 2019
GRANT/PROGRAM:
Bleeding Disorders Conference
Collaboration/Team Models
Patient Perspectives on the Impact of Severe or Moderate Hemophilia on Physical Activity: HemACTIVE Survey Findings from the US and Canada
AWARDED/PRESENTED: 2019
GRANT/PROGRAM:
Bleeding Disorders Conference
Quality of Life/Outcomes Research
rFVIIIFc for first-time immune tolerance induction therapy: interim results from the global, prospective verITI-8 study
AWARDED/PRESENTED: 2019
GRANT/PROGRAM:
Bleeding Disorders Conference
Inhibitors
World Federation of Hemophilia Annual Global Survey 2017 – 19 years of reporting
AWARDED/PRESENTED: 2019
GRANT/PROGRAM:
Bleeding Disorders Conference
Quality of Life/Outcomes Research
Validation of a FVIII Chromogenic Nijmegen Bethesda Assay for the Detection of Inhibitors in the Presence of Emicizumab (ACE-910)
AWARDED/PRESENTED: 2019
GRANT/PROGRAM:
Bleeding Disorders Conference
Inhibitors
The Patient Reported Outcomes Burdens and Experiences (PROBE) Study Questionnaire Development and Validation
AWARDED/PRESENTED: 2019
GRANT/PROGRAM:
Bleeding Disorders Conference
Quality of Life/Outcomes Research
Tackling a New Era of Treatment in Hemophilia A: One Institution's Experience of Integrating Emicizumab into Practice
AWARDED/PRESENTED: 2019
GRANT/PROGRAM:
Bleeding Disorders Conference
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