NBDF showcases a wide array of findings from the latest in bleeding disorders research at our annual Bleeding Disorders Conference.
An update on cognitive and behavior function in children and young adults with hemophilia: a 25-year journey from the Hemophilia Growth and Development Study to the current eTHINK study
AWARDED/PRESENTED: 2018
GRANT/PROGRAM:
Bleeding Disorders Conference
Clinical Research/Clinical Trials
Real-world bleeding outcomes and adherence metrics among persons with hemophilia A and B receiving standard or extended half-life factor replacement products
AWARDED/PRESENTED: 2018
GRANT/PROGRAM:
Bleeding Disorders Conference
New Products
Patient perspectives on the value of reduced infusion frequency and longevity of protection for prophylactic treatment of hemophilia A
AWARDED/PRESENTED: 2018
GRANT/PROGRAM:
Bleeding Disorders Conference
Quality of Life/Outcomes Research
Surgical Experience in Two Multicenter, Open-label Phase 3 Studies of Emicizumab in Persons with Hemophilia A with Inhibitors (HAVEN 1 and HAVEN 2)
AWARDED/PRESENTED: 2018
GRANT/PROGRAM:
Bleeding Disorders Conference
Clinical Research/Clinical Trials
Use of platelet microcapsule hybrids loaded with factor VIII to treat hemophilia A mice
AWARDED/PRESENTED: 2018
GRANT/PROGRAM:
Bleeding Disorders Conference
Biomedical/Coagulation Research
Giving men with vwd a voice
AWARDED/PRESENTED: 2018
GRANT/PROGRAM:
Bleeding Disorders Conference
Peer Support/Outreach/Integration Models
Discrepant Hemophilia A: Single Institution Experience
AWARDED/PRESENTED: 2018
GRANT/PROGRAM:
Bleeding Disorders Conference
Clinical Research/Clinical Trials
Identification of Challenges and Coping Strategies in the Management of Bleeding Disorders, From the Patient Perspective
AWARDED/PRESENTED: 2018
GRANT/PROGRAM:
Bleeding Disorders Conference
Quality of Life/Outcomes Research
Patient Satisfaction with US Hemophilia Treatment Centers: National Trends 2017
AWARDED/PRESENTED: 2018
GRANT/PROGRAM:
Bleeding Disorders Conference
Quality of Life/Outcomes Research
HOPE-B: Study design of a Phase III trial of an investigational gene therapy AMT-061 in subjects with severe or moderately severe hemophilia B
AWARDED/PRESENTED: 2018
GRANT/PROGRAM:
Bleeding Disorders Conference
Clinical Research/Clinical Trials
rFVIIIFc for immune tolerance induction in severe hemophilia A subjects with inhibitors: a follow-up retrospective analysis
AWARDED/PRESENTED: 2018
GRANT/PROGRAM:
Bleeding Disorders Conference
Inhibitors
NHF’s State Based Advocacy Coalitions (SBAC) Program
AWARDED/PRESENTED: 2018
GRANT/PROGRAM:
Bleeding Disorders Conference
Law/Ethics/Health Policy
Effective Protection for >5 Years With BAY 94-9027 Prophylaxis: PROTECT VIII Extension Trial Interim Results
AWARDED/PRESENTED: 2018
GRANT/PROGRAM:
Bleeding Disorders Conference
Clinical Research/Clinical Trials
Congenital afibrinogenemia: a case report of perioperative hematological management during difficult orthopedic surgery
AWARDED/PRESENTED: 2018
GRANT/PROGRAM:
Bleeding Disorders Conference
Clinical Research/Clinical Trials
PROTECT VIII Extension Trial Interim Data: Safety of >5 Years of Treatment With BAY 94-9027
AWARDED/PRESENTED: 2018
GRANT/PROGRAM:
Bleeding Disorders Conference
Clinical Research/Clinical Trials
Surveying Nurses’ Knowledge and Confidence of Discussing Oral Health with Patients with Bleeding Disorders
AWARDED/PRESENTED: 2018
GRANT/PROGRAM:
Bleeding Disorders Conference
Collaboration/Team Models
Improving the screening for and evaluation of bleeding disorders in the primary care setting
AWARDED/PRESENTED: 2018
GRANT/PROGRAM:
Bleeding Disorders Conference
Peer Support/Outreach/Integration Models
Gender Differences in Parenting Stress and Social Support in Hemophilia Families
AWARDED/PRESENTED: 2018
GRANT/PROGRAM:
Bleeding Disorders Conference
Psychosocial Issues
BIVV001 – a novel, weekly dosing, VWF-independent, extended half-life FVIII therapy: first-in-human safety, tolerability, and pharmacokinetics
AWARDED/PRESENTED: 2018
GRANT/PROGRAM:
Bleeding Disorders Conference
Clinical Research/Clinical Trials
Bleeding Disorders Education Day for School Nurses
AWARDED/PRESENTED: 2018
GRANT/PROGRAM:
Bleeding Disorders Conference
Peer Support/Outreach/Integration Models