We've invested more than $20 million to advance knowledge of the treatment of bleeding disorders.
From basic science to clinical care, our research programs focus on finding better treatments and improving care for all bleeding disorders.
Add Your Voice
Community Voices in Research (CVR) is a community-powered registry that gathers information through surveys offering researchers a 360-degree view of what it is like to live with a bleeding disorder. Open to all persons affected by an inherited bleeding disorder as well as their non-affected family members (parents, spouses, grandparents, and siblings), it provides all the opportunity to participate in patient-reported outcomes research.
Thank you to our 2021 Partners in Research