Whole 1 Exome Analysis of Adolescents with Low VWF and Heavy Menstrual Bleeding Identifies Novel Genetic Associations
Dr. Bethany Samuelson Bannow sat down with NHF to discuss her co-authored Twitter account, Dr. Period Hackers.
The Complexity of Care for Women and Girls with an Inherited Bleeding Disorder: Advances in genetics, diagnosis, treatment, and women’s health
Heavy Menstrual Bleeding Impact on Mental Health in Adolescent and Young Adult Women with Bleeding Disorders
NHF's Wednesday Webinars for May 2021 will focus on Women's Health Month, featuring topics of interest to both patients and healthcare providers who are interested in issues faced by women with inheritable blood disorders.
Pregnancy and childbirth for women with bleeding disorders take extra planning and care. Come learn from an expert and community member about issues women with bleeding disorders face when pregnant and giving birth, and how to advocate for the care you need.
Women and girls with bleeding disorders often deal with particular issues and taboos related to diagnosis, symptoms, access to care. In this session, an expert who works to improve the quality of life for women and girls with bleeding disorders will discuss essential information on the challenges of getting a diagnosis and accessing care and treatment. In addition, an affected individual will share their experience as a woman with a bleeding disorder.
Expanding your PT evaluation skills to include the unique considerations for women with bleeding disorders.
A research abstract presented at the recent Thrombosis & Haemostasis Summit of North America 2020 Virtual Conference suggested that epidural analgesia may be a safe option for pregnant women with von Willebrand disease (VWD) type 1, provided clotting factors are maintained at certain levels.
NOT AVAILABLE FOR CREDIT
After a successful public health offering at NHF’s 2019 BDC, NHF decided to collaborate with several national blood disorder advocacy organizations to deliver two public health sessions for chapters and consumers. This session will address women’s issues in public health and was created by the National Blood Clot Alliance, Center for Inherited Bleeding Disorders, Cooley’s Anemia Foundation, Foundation for Women and Girls with Blood Disorders, NHF, and HFA.
Kelly Tickle, MSN, APN, PPCNP-BC
Pediatric Nurse Practitioner, Children’s Healthcare of Atlanta
Kalinda Woods, MD, FACOG
Assistant Professor, Department of Gynecology and Obstetrics
Emory University School of Medicine
By the end of this session, the participant should be better able to: