Two new documents have been issued by the NBDF’s Medical and Scientific Advisory Council (MASAC), which periodically writes recommendations and advisories on treatment, research, and other general health concerns of the inheritable bleeding disorders community.
With new treatments, remote work options, and an ever-changing economy, work and career decision-making can feel like a whole new calculation these days. This session will cover what to consider about job options when you have a bleeding disorder, whether or what disclosure about your bleeding disorder should be made, how to communicate about needed accommodations, and what rights you have as a job applicant and as an employee.
NBDF provides free quality education on issues that matter to the bleeding disorders community. This video is on stopping suffering: pain management approaches for adult men
It is a reality familiar to most adults with hemophilia of a certain age: repeated joint bleeds which subsequently causes joint deterioration, affecting everyday quality of life. But the story does not have to end there. Learn how prophylactic therapy can be used to halt the momentum of degenerative joint damage, decrease pain and help you regain mobility.
Transcription of "The Advantage of Prophylaxis for Adults with Joint Issues"
*ASWB
Moderators:
Damia Dillard, LCSW
Social Worker, UC Davis Medical Center
Denise Lowery, LCSW
Social Worker, UC Davis Medical Center
Speaker:
*ANCC
Moderator:
Tamara Bullock, RN-BC, BSN
Hemophilia Community Nurse, University of Iowa Hospitals and Clinics
Speakers:
Jeff Cornett, MSN, RN
Vice President of Research and Public Policy
Hemophilia of Georgia
Shanna Mattis, MPH
Public Health Associate and Social Worker
Hemophilia of Georgia Center for Bleeding and Clotting at Emory University
