Two New MASAC Documents Focus Substance Use Facilities Access and Treatment Recommendations
Gynecologists Have Significant Part to Play in Shrinking Diagnostic Gaps
Patient Safety in the Age of Gene Therapy a Central Focus of Review Article
Patient-Clinician Partnerships the Theme of ASCO Presidential Address
Aminocaproic Acid Manufacturer Shuttered Though Not Expected to Trigger Shortage
New Medscape Activity to Help Institutions Offer Gene Therapy
WFH Gene Therapy Registry Goes Live
NHF Announces 2023 Winter/Spring Wednesday Webinar Schedule
New Document to Help Residential Substance Use Disorder Placement for Individuals with Bleeding Disorders
Victor Grifols Roura Medical Symposium on Bone Health and Pain Disorders
This year’s Victor Grifols Roura Medical Pre-conference Symposium focused on several key aspects of “Bone Health and Pain in Bleeding Disorders.” A few leading clinician-researchers in the field were brought together to review the pathophysiology of bone disease, share current research data on bone health and the impact of pain in bleeding disorders, as well as offer physical therapy strategies and interventions for managing joints and associated pain.
CCSC Presents: Managing Costs and Clinical Outcomes While Preparing for a Rapidly Changing Therapeutic Landscape
Message from NHF CEO Len Valentino
BioMarin Presents Abstract on Vector DNA Transmission Risk at ISTH
Prophylactic Therapy for Glanzmann Thrombasthenia Moves Towards Clinical Trials
NHF Announces Summer 2022 Wednesday Webinar Schedule
Meet Dr. Shani Johnson: JML Fellowship Recipient
Six New MASAC Documents Issued
National Doctors Day
Starting the Conversation with Dr. Johnny Mahlangu
Dr. Johnny Mahlangu graciously sat down with NHF's CEO Dr. Len Valentino for an informative dialogue to honor Black History Month and World Hemophilia Day. Read these Q&As and watch the video to learn more!
Public Health: Aging
NOT AVAILABLE FOR CREDIT
Speakers will discuss a range of topics including new international guidelines for the diagnosis and management of hereditary hemorrhagic telangiectasia (HHT), mental and emotional health challenges in aging thalassemia patients, aging with a bleeding disorder, basics of Medicare, and skilled nursing facilities.
Public Health: Health Equity
NOT AVAILABLE FOR CREDIT
Speakers will discuss several topics: understanding and addressing sickle cell disease healthcare disparities, health equity issues impacting optimal care in thalassemia, health equity, and the influence on blood clots – pre and post COVID data, and the burden of healthcare in hereditary hemorrhagic telangiectasia.
Public Health: Women's Health Issues
NOT AVAILABLE FOR CREDIT
Speakers will discuss a spectrum of topics: maternal mortality and blood disorders, Healthy People 2020 and females with von Willebrand disease, mentors for workforce development and research, the Women in Research Engaged While Distancing (WIRED) program, and the use of Community Voices in Research (CVR) to promote self-advocacy and empowerment for women.
New Medscape Activity Seeks to Prepare Clinicians for Gene Therapy
Sigilon Announces a Priority Shift in Light of Clinical Trial Setbacks
Allied Health Careers in Hematology: Physical Therapy & Genetic Counseling
Interested in working in the hematology field, but don’t think that medical school is right for you? Consider an allied health field, like genetic counseling or physical therapy.
Clinical Study and New Website to Focus on von Willebrand Disease and Pregnancy
Sigilon Reports Trial Updates for Investigational Hemophilia A Therapy
Spots, Dots, and Clots Clinic: A designated combined hematology/reproductive medicine clinic at OHSU
New Paper Highlights Integrated Care Model and the National HTC Network
New Training Opportunities to Focus on Fellows and Junior Physicians
Patient-Reported Data Informs New Study on Sexual Health and Hemophilia
Prophylaxis Indication Restored for BeneFIX®
New Nursing Guidelines Available on Administration of Bleeding Disorders Therapies
Access Research E-Poster Abstracts at Upcoming BDC!
UCSD Offers Virtual CME-Accredited Trainings on Musculoskeletal Ultrasound
Learn More About Shared Decision Making in Hemophilia
Shared decision making (SDM), the concept by which patients
New Paper Explores Shared Decision Making in Hemophilia
A new paper published in The Journal of Haemophilia Prac
Article Offers Scientific Overview of AAV Vectors and Hemophilia Gene Therapy
New Inhibitor Study Using MLOF Research Repository Data Published
May 2021 Wednesday Webinars
NHF's Wednesday Webinars for May 2021 will focus on Women's Health Month, featuring topics of interest to both patients and healthcare providers who are interested in issues faced by women with inheritable blood disorders.
April 2021 Webinar Webinar Lineup
NHF's Wednesday Webinars for April 2021 will feature an array of speakers and topics of interest to both healthcare providers and patients and families with blood disorders alike.
April Webinars
All webinars are from 2:00pm-3:00pm ET.
COVID-19: Ask the Experts
OUCH! Tackling Pain Together
NHF’s Medical and Scientific Advisory Council (MASAC) recently approved new treatment guidelines for providers who administer opioids to treat pain in people with bleeding disorders. Come learn about the new guidelines from expert providers and consumers and what they might mean to you.
NHF Announces Plans for 2021 NHF State of the Science Research Summit
Spark Announces Preliminary Data from Investigational Gene Therapy Trial
Octapharma Announces Final Results of Nuwiq® Study
Wednesday Webinar February 2021 Speakers
BioMarin Announces Positive Phase 3 Study Data for Valoctocogene Roxaparvovec
Recall Notice: Voluntary Recall Mononine Coagulation Factor IX (Human)
Medscape Activity Designed to Prepare Clinicians for Arrival of Gene Therapy
New Research Fellowship Available from NHF
Genetic Analysis and Other Diagnostic Tools for Rare Bleeding and Platelet Disorders
NOT AVAILABLE FOR CREDIT
This Second Annual Victor Grifols Roura Medical Preconference Symposium explores the diagnosis and clinical management of patients with rare inherited bleeding and platelet disorders. Faculty will be reviewing the treatments currently available to manage bleeding in these patients and share significant advances being made to improve genetic diagnosis, including valuable insights on how to interpret rare platelet gene panels.
This symposium was made possible only through the generous support of Grifols.
Public Health Pre Con: Future Therapies and Surveillance for Blood Disorders
NOT AVAILABLE FOR CREDIT
Public Health for Women & Girls
NOT AVAILABLE FOR CREDIT
After a successful public health offering at NHF’s 2019 BDC, NHF decided to collaborate with several national blood disorder advocacy organizations to deliver two public health sessions for chapters and consumers. This session will address women’s issues in public health and was created by the National Blood Clot Alliance, Center for Inherited Bleeding Disorders, Cooley’s Anemia Foundation, Foundation for Women and Girls with Blood Disorders, NHF, and HFA.