Takeda's Voluntary Withdrawal: Alert on Misprinted Labels for VONVENDI®
Yale Researchers Explore the Possibilities of von Willebrand Factor
FDA Grants Expanded Approval to Wilate® for Prophylaxis in All Types of VWD
Octapharma’s human plasma-derived von Willebrand Factor (VWF)/Factor VIII replacement product Wilate® has been granted expanded approval for prophylaxis by the U.S. Food and Drug Administration (FDA) to include all types of von Willebrand disease (VWD).
Study Results Encourage Discussion of Therapeutic Options for VWD Patients with Menorrhagia
While the majority of women with von Willebrand disease (VWD) will experience heavy menstrual bleeding (HMB) often associated negative impacts on overall health and quality of life, available data relevant to effective treatment is limited.
Gynecologists Have Significant Part to Play in Shrinking Diagnostic Gaps
Inequities in Thrombosis and Hemostasis Lab Testing the Focus of Illustrated Review
Updates on Generic Desmopressin Product
Aminocaproic Acid Manufacturer Shuttered Though Not Expected to Trigger Shortage
Study Suggests Significant Rates of Depression and Anxiety for Individuals with VWD
The VWD Guidelines and Me: Points of Shared Decision-Making
The new VWD guidelines were published in 2020 and heavily integrate the patient voice. But how can you use these in your conversations with healthcare professionals? This session will take a deeper dive into the specific recommendations, where patients and healthcare professionals need to decide together on the best plan of care. You will learn essential skills in shared decision-making to advocate for the care you need.
Bone Health in VWD and Hemophilia Carriers the Focus of Retrospective Study
Public Health for Blood Disorders Series Now Available Online!
VWD: The Realities of Your Period
NBDF provides free quality education on issues that matter to the bleeding disorders community. This video is on vwd: the realities of your period
Basics of VWD
NBDF provides free quality education on issues that matter to the bleeding disorders community. This video is on the basics of vwd
VWD PreCon - Sponsored by CSL Behring- A New Horizon: The VWD Guidelines Working For You
NBDF provides free quality education on issues that matter to the bleeding disorders community. This video is on the vwd guidelines: are they working for you
Takeda Announces Approval of Prophylactic Indication for VWD Therapy
Takeda recently announced that the U.S. Food and Drug Administration (FDA) has approved VONVENDI® for routine prophylaxis to reduce the frequency of bleeding episodes in adults with severe Type 3 von Willebrand disease (VWD) receiving on-demand therapy.
Clinical Study and New Website to Focus on von Willebrand Disease and Pregnancy
New Data Analysis Sheds Light on Bleeding Patterns in Young VWD Patients
NHF Responds to STIMATE® Production Update
CSL Behring announced that the company’s distribution agreement with Ferring Pharmaceuticals for STIMATE® nasal spray recently expired and will not be renewed effectively removing this medication as a valuable treatment opti
May 2021 Wednesday Webinars
NHF's Wednesday Webinars for May 2021 will focus on Women's Health Month, featuring topics of interest to both patients and healthcare providers who are interested in issues faced by women with inheritable blood disorders.
VWD Pre-Con
The von Willebrand disease (VWD) pre-conference brings together the VWD community to connect in a lively, engaging and supportive educational environment. This year, we will focus on the elements of reconnecting, rebuilding and refocusing as a community. We will explore the many ways that we as a community can help raise awareness of VWD and help those who are unaware of their status. We’ll also discuss new medical updates and NHF’s course of action with VWD. Sponsored by CSL Behring.
The NEW VWD Guidelines
2020 is the year that VWD guidelines will be announced. This will be an opportunity to learn, explore, and understand the new measures for treatment, diagnosis, and protocols.
Basics: VWD
New Guidelines on the Diagnosis and Management of VWD
Small Study Looks at Use of Epidural Analgesia During Labor in VWD Type 1
A research abstract presented at the recent Thrombosis & Haemostasis Summit of North America 2020 Virtual Conference suggested that epidural analgesia may be a safe option for pregnant women with von Willebrand disease (VWD) type 1, provided clotting factors are maintained at certain levels.