VWD and Iron Deficiency
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Bone Health in VWD and Hemophilia Carriers the Focus of Retrospective Study
Bone Health in VWD and Hemophilia Carriers the Focus of Retrospective Study
The study looked at the prevalence and risk factors of osteoporosis, osteoarthritis, and bone fractures.
Public Health for Blood Disorders Series Now Available Online!
Public Health for Blood Disorders Series Now Available Online!
This series was designed to inform and engage the community about the ongoing programming and initiatives of CDC-funded groups that serve those impacted by rare blood disorders.
Takeda Announces Approval of Prophylactic Indication for VWD Therapy
Takeda Announces Approval of Prophylactic Indication for VWD Therapy
Takeda recently announced that the U.S. Food and Drug Administration (FDA) has approved VONVENDI® for routine prophylaxis to reduce the frequency of bleeding episodes in adults with severe Type 3 von Willebrand disease (VWD) receiving on-demand therapy.
Clinical Study and New Website to Focus on von Willebrand Disease and Pregnancy
Clinical Study and New Website to Focus on von Willebrand Disease and Pregnancy
This new study was developed to increase understanding of how best to manage bleeding during delivery and the postpartum period in women with VWD.
New Data Analysis Sheds Light on Bleeding Patterns in Young VWD Patients
New Data Analysis Sheds Light on Bleeding Patterns in Young VWD Patients
The authors of this study focused primarily on birth characteristics, bleeding episodes, and complications.
NHF Responds to STIMATE® Production Update
NHF Responds to STIMATE® Production Update
CSL Behring announced that the company’s distribution agreement with Ferring Pharmaceuticals for STIMATE® nasal spray recently expired and will not be renewed effectively removing this medication as a valuable treatment opti
May 2021 Wednesday Webinars
May 2021 Wednesday Webinars
NHF's Wednesday Webinars for May 2021 will focus on Women's Health Month, featuring topics of interest to both patients and healthcare providers who are interested in issues faced by women with inheritable blood disorders.
VWD Pre-Con
The von Willebrand disease (VWD) pre-conference brings together the VWD community to connect in a lively, engaging and supportive educational environment. This year, we will focus on the elements of reconnecting, rebuilding and refocusing as a community. We will explore the many ways that we as a community can help raise awareness of VWD and help those who are unaware of their status. We’ll also discuss new medical updates and NHF’s course of action with VWD. Sponsored by CSL Behring.
The NEW VWD Guidelines
2020 is the year that VWD guidelines will be announced. This will be an opportunity to learn, explore, and understand the new measures for treatment, diagnosis, and protocols.
Basics: VWD
This session will review the signs and symptoms of von Willebrand disease, discuss genetics and inheritance patterns, and define and compare the three types of VWD. The presentation will also cover laboratory diagnosis and its challenges, and the therapeutic options available for people with VWD. In addition, you will learn important skills to advocate for yourself and loved ones.
New Guidelines on the Diagnosis and Management of VWD
New Guidelines on the Diagnosis and Management of VWD
These guidelines are an important step in our quest to address the difficulties individuals go through to obtain an accurate, timely diagnosis, and appropriate treatment.
Small Study Looks at Use of Epidural Analgesia During Labor in VWD Type 1
Small Study Looks at Use of Epidural Analgesia During Labor in VWD Type 1
A research abstract presented at the recent Thrombosis & Haemostasis Summit of North America 2020 Virtual Conference suggested that epidural analgesia may be a safe option for pregnant women with von Willebrand disease (VWD) type 1, provided clotting factors are maintained at certain levels.
Von Willebrand Disease
An overview of symptoms and treatments to help you understand VWD.
Von Willebrand Disease
We are committed to raising awareness and providing education and support for people living with VWD.
Comment Period for VWD Clinical Practice Guidelines Open
Comment Period for VWD Clinical Practice Guidelines Open
NHF is seeking comments on draft ASH ISTH NHF WHF clinical practice guidelines on VWD Diagnosis & Management.
New Online Resource from HOG
New Online Resource from HOG
Hemophilia of Georgia (HOG), Inc., launches “The Hemophilia, von Willebrand Disease & Platelet Disorders Handbook,” a new online resource.