Setting the Health Equity, Diversity, and Inclusion Agenda for NBDF
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Transgender Health and the Bleeding Disorders Community: An Interview with Mason Bobro
Transgender Health and the Bleeding Disorders Community: An Interview with Mason Bobro
November is recognized as Transgender Health Awareness Month. NBDF had a conversation with Mason Bobro, a transgender man with Factor 10 deficiency, who offered insight into the importance of highlighting the specific health care needs of the transgender community.
New Study Looks at Hemophilia Survival Rate Disparities
New Study Looks at Hemophilia Survival Rate Disparities
Black men experience much lower hemophilia survival rates compared to their white counterparts.
Inequities in Thrombosis and Hemostasis Lab Testing the Focus of Illustrated Review
Inequities in Thrombosis and Hemostasis Lab Testing the Focus of Illustrated Review
Explore a review on biases in laboratory reference intervals for thrombosis and hemostasis, highlighting disparities and action items for health equity.
Rare Disease Fellowship Program Now Accepting Applications!
Rare Disease Fellowship Program Now Accepting Applications!
Join the Rare Diseases Diversity Coalition (RDDC) Fellowship to address rare disease disparities. Apply by June 30, 2023. Learn more!
Start the Conversation: How to Engage Unengaged Communities
Start the Conversation: How to Engage Unengaged Communities
Discover Marissa Melton's expert advice for engaging unengaged communities effectively through small group discussions and creative strategies.
A Conversation on Health Equity with Hawaii Chapter Interim Executive Director Kyra Calbero
A Conversation on Health Equity with Hawaii Chapter Interim Executive Director Kyra Calbero
Discover the challenges and solutions in Hawaii's bleeding disorders community with Kyra Calbero, Interim Executive Director of NHF's Hawaii chapter.
Una conversación sobre la equidad sanitaria con Anthony Llanes Rodríguez
Una conversación sobre la equidad sanitaria con Anthony Llanes Rodríguez
Descubra desafíos únicos y debates sobre salud mental en esta comunidad. Aprenda cómo mostrar apoyo.
Make Sure Research Findings Include You
Research generates the evidence needed to improve treatment, care, and quality of life. Come and find out how to make sure research findings are representative and useful, and why it matters.
Getting to 2030 Blue Sky Vision: A Community Conversation
In the past few years, NBDF has shared its vision for 2030 and started to work alongside the community to get there. Join us for a panel discussion and community conversation about the progress to date and what else NBDF needs to consider as it forges ahead in partnership aiming for the best care possible for the inheritable blood disorders community by 2030.
Starting the Conversation with Dr. Johnny Mahlangu
Starting the Conversation with Dr. Johnny Mahlangu
Dr. Johnny Mahlangu graciously sat down with NHF's CEO Dr. Len Valentino for an informative dialogue to honor Black History Month and World Hemophilia Day. Read these Q&As and watch the video to learn more!
Intersections: Latino/x Communities
NBDF provides free quality education on issues that matter to the bleeding disorders community. This video is on intersections: latinox communities
Intersections: Black Communities and Their Voices
NBDF provides free quality education on issues that matter to the bleeding disorders community. This video is on intersections: black communities and their voices
Intersections: Muslim Cultures & Bleeding Disorders
NBDF provides free quality education on issues that matter to the bleeding disorders community. This video is on intersections: muslim cultures bleeding disorders
Embracing Cultural Confidence™ in the Face of Anti-Asian Racism
NBD provides free quality education on issues that matter to the bleeding disorders community. This video is on intersections embracing cultural
NHF Announces Jeanne Marie Lusher (JML) Diversity Fellowship Recipients
NHF Announces Jeanne Marie Lusher (JML) Diversity Fellowship Recipients
Meet the newest Jeanne Marie Lusher Diversity Fellowship recipient: Dr. Oluwole
NHF Responds to New CMS Guidance
NHF Responds to New CMS Guidance
Media Contact:
Brett Spitale, VP of Advancement
bspitale@hemophilia.org
646-784-0368
COVID-19 Exacerbates Treatment Affordability Challenges & Health Inequities
COVID-19 Exacerbates Treatment Affordability Challenges & Health Inequities
The National Hemophilia Foundation (NHF) today, in conjunction with the American Kidney Fund (AKF), Art
A Message from NHF President and CEO
A Message from NHF President and CEO
The verdict is an important and significant step forward in the fight against racism, and the violence that it brings to our communities, however, our work is never done, and our efforts continue to ensure equality and equity for all in our community.
Asian & Pacific Islander Cultures & Bleeding Disorders
This session will examine the intersection between Asian and Pacific Islander (API) culture and life with a bleeding disorder. We will discuss successes, challenges, and cultural nuances.
Western Asia/Muslim Culture & Bleeding Disorders
This session will examine the intersection between Western Asian/Muslim culture and life with a bleeding disorder. We will discuss challenges and successes confronting generational issues, acceptance, and cultural nuances. The session will close with audience discussion on how to enhance engagement within this community. No industry representatives will be allowed in this session.
Faith and Bleeding Disorders
Faith can provide many things to a person: comfort, love, and a community of support. This session welcomes people of all faiths and beliefs.
Letter to the Community
Letter to the Community
NHF is taking the necessary steps to promote health equity, diversity, and inclusion together as a community.
New Vice President of Health Equity, Diversity and Inclusion Joins NHF
New Vice President of Health Equity, Diversity and Inclusion Joins NHF
Keri L. Norris, PhD, MPH, MCHES, will be focused on health equity projects and access to care.
30th Anniversary of the Ryan White CARE Act
This session will commemorate and reflect on the landmark legislation on HIV/AIDS care with a renewed call to action for the bleeding disorders community
Insights from African American communities with bleeding disorders
This session will present findings from a national needs assessment conducted by NBDF in partnership with the CDC about the experiences and needs of people with bleeding disorders within African American communities. The group will discuss implications for individuals, chapters, and partners to serve African American communities.
New Research Fellowship Available from NHF
New Research Fellowship Available from NHF
The Jeanne M. Lusher Diversity Fellowship aims to increase diversity among benign hematologists.
New Online Space for Black/African Americans with Bleeding Disorders
New Online Space for Black/African Americans with Bleeding Disorders
The private, online community is for Black and African Americans with bleeding disorders, their family members, and support network.