Dr. Johnny Mahlangu graciously sat down with NHF's CEO Dr. Len Valentino for an informative dialogue to honor Black History Month and World Hemophilia Day. Read these Q&As and watch the video to learn more!
This session will examine the intersection between Asian and Pacific Islander (API) culture and life with a bleeding disorder. We will discuss successes, challenges, and cultural nuances. The session will close with a group discussion on how to continue to engage various API communities.
This session will examine the intersection between Western Asian/Muslim culture and life with a bleeding disorder. We will discuss challenges and successes confronting generational issues, acceptance, and cultural nuances. The session will close with audience discussion on how to enhance engagement within this community. No industry representatives will be allowed in this session.
Faith can provide many things to a person: comfort, love, and a community of support. But sometimes living with the realities of a chronic illness can result in a struggle between one’s beliefs and one’s day-to-day situation. In this session, we’ll discuss ways that faith can affect your perception of your bleeding disorder, how your bleeding disorder can affect your faith, and how to navigate the complexities and find a balance while still upholding your own beliefs. This session welcomes people of all faiths and beliefs.
This session will commemorate and reflect on the landmark legislation on HIV/AIDS care with a renewed call to action for the bleeding disorders community to be vigilant and engaged healthcare policy advocates.
This session will present findings from a national needs assessment conducted by NHF in partnership with the CDC about the experiences and needs of people with bleeding disorders within African American communities. The group will discuss implications for individuals, chapters, and partners to serve African American communities.