Advocates

Join advocates nationwide in Washington D.C. from March 6-8, 2024, to support the HELP Copays Act and federal funding priorities for bleeding disorders.

Explore the latest updates on federal healthcare advocacy, including the progress of the HELP Copays Act with bipartisan support, Congressional discussions on plasma safety, and NBDF's state-level efforts in Massachusetts, Michigan, Ohio, Oregon, Pennsylvania, and Wisconsin, culminating in the upcoming 2023 Insurance and Reimbursement Conference.

HELP Copays Act gains momentum with increasing support in Congress. Ohio and Pennsylvania advocate for copay accumulator legislation.

Stay informed about the latest government relations updates in May 2023. NHF's advocacy efforts and legislation progress.

Stay informed about April 2023's healthcare policy and legislation updates, including copay accumulators, in both federal and state contexts.

Discover the coalition's mission to improve mental health services access for bleeding disorder patients. Learn about their efforts to change guidelines.

Stay informed about the latest developments in bleeding disorders advocacy and policy, including copay accumulator state bills and federal updates on HR 830.

Former CEO spent decades inspiring the inheritable blood disorders community

This paper provides a comprehensive description of the critical services and dynamic coordinating capacity of HTCs within a regional and national framework.

Dr. Valentino: “Today’s decision protects members of the inheritable blood disorder community, as well as others”

The new law lowers costs and opens up new options to get health insurance coverage.

The special enrollment period lasts from February 15th to May 15th, 2021.

We look to our tradition of advocacy in our community for inspiration when we think of how to move forward in 2021.