Medical Programs and Information Coordinator


Posted:

Organization: National Hemophilia Foundation

About the Role

NHF is looking for a Medical Programs and Information Coordinator to join our team! Reporting to the Senior Manager of Medical Programs and Information, you will be responsible for providing medical news stories, research articles and referrals regarding bleeding disorders and their complications to the community. You will also responsible for maintaining/expanding available library resources and assist in the development of health care provider education. As the main point of contact to our Health Information center, providing educational materials, information and/or referrals to local chapters, Hemophilia Treatment Centers, other health care providers or community-based services; you will be an expert in a wide range of subjects related to bleeding disorders -- including the retrieval of resources via internet search engines, databases, in-house library collection and other appropriate external sources

Where you will work:

This is an NYC based position. Employee will work remote 3-4 days per week but will be expected to go into the office 1-2 times per week or as needed to retrieve materials to send to consumers & providers as requested.

 

What You Bring:

To qualify for this unique opportunity, our ideal candidate should have the following skills, education and experience:

  • Bachelor’s degree and 2 or more years of relevant work experience.
  • Excellent verbal and written communication skills
  • MS Office skills
  • Excellent communication skills (written & verbal in English)
  • Thrives in a fast-paced, deadline-driven environment.
  • Self-starter and team player.
  • Bilingual a plus!

What We Offer:

At NHF our mission is to serve those affected by all inheritable bleeding disorders. We are committed to our employees as well as those we serve.  To do so, NHF seeks and values those qualities, both visible and invisible, that makes individuals unique. We strive to be a safe place where regardless of  age, color, disability, gender, gender identity, gender expression, family status, national origin, race, ethnicity, or sexual orientation; you are heard, empowered and valued because we truly believe that every person brings a unique perspective and experience to advance our mission.

In order to attract and retain a high performance team, we offer a dynamic and rewarding work environment. In addition to a competitive salary, NHF provides a comprehensive health and wellness program to eligible employees, family members and domestic partners. Our health and wellness programs include medical, dental, vision, prescription drug, preventative care, mental health services and an employee assistance / work-life balance program. We also offer:

  • Full time employees: Three weeks (+) of vacation, four personal days, 12 sick days, 11 paid holidays, 1 Floating Holiday
  • We also offer paid time off to Part-Time Employees
  • Paid Short-Term Disability insurance & Life Insurance
  • Pre-tax savings plan (including Flexible Spending Accounts and Commuter Transit Account)
  • a 403(b) retirement plan.

How To Apply:

If you are interested this opportunity, please send your resume, cover letter and salary requirements to jobs_nhf@hemophilia.org. No phone calls please.

Grants Administrator


Posted:

Organization: National Hemophilia Foundation

About the Role

NHF is looking for a Grants Administrator to join the team! Under the general supervision of the Head of Research, the Grants Administrator will be responsible for planning and implementing the research’s department grant/fellowship program from application to implementation and reconciliation and all related activities in between. This position will, in collaboration with finance, develop a clear communication policy outlining proper rules and regulations for grant reporting and recording process, its specifications, requirements and objectives across all departments of the organization and the management. 

This person will also be responsible for the overall development/design/implementation/project management of the Health Care Providers Community Journal Club. Additional responsibilities include, but are not limited to;

  • Administratively oversee peer review process of grants.
  • Oversee communications with grant-funding agencies regarding use of grant funds.
  • Oversee collection and maintenance of demographic, statistical data, program models and outcomes data for reporting and evaluation purposes.
  • Develop, prepare and disseminate a semi-annual e-newsletters/updates to key stakeholders (past researchers/mentors/grant administrators/etc.) identifying and communicating funding opportunities through NHF and upcoming applications cycles with the goal to increase awareness and applications.

What You Bring:

  • Minimum of bachelor’s degree required or equivalent experience.
  • Grant administration experience preferred. Knowledge of grants and grant administration systems (pre and post), processes and budgeting.
  • Motivated, self-directed, self-starter with excellent problem-solving skills and proven ability to perform under pressure.
  • Extraordinary communication skills including verbal and written experience.
  • Strong organizational and quantitative skills, as well as a broad understanding of the nonprofit, research, and peer-review environment. Ability to adhere to priorities, meet multiple deadlines and effectively present and explain complex information.
  • Completion of the Collaborative Institutional Training Initiative’s (CITI) and Good Clinical Practices (GCP) web-based training program concerning the protection of human subjects in research preferred. If not certified at time of employment, must complete within first 6 months of employment.
  • Able to function remotely and manage virtual meetings on a regular basis.
  • Self-motivated, critical thinker with keen attention to detail and excellent organizational skills.
  • Excellent interpersonal, leadership and communication skills including presentation skills
  • Strong project management skills.
  • Good understanding of the organization's overall business and its objectives.
  • Possess good knowledge of planning and strategizing financial and budgeting issues.
  • Ability to work within a team.
  • Ability to perform in cross-functional team approach and job responsibilities.
  • Proficient in using computers with related knowledge of software programs, specifically Word and Excel.
  • Any combination of experience and training that would likely provide the required knowledge and abilities is qualifying.
  • Bilingual a plus!!

Where You Will Work:

This is a remote based position. Candidate will be expected to travel to events and meetings as requested by the Head of Research. 

What We Offer:

At NHF our mission is to serve those affected by all inheritable bleeding disorders. We are committed to our employees as well as those we serve.  To do so, NHF seeks and values those qualities, both visible and invisible, that makes individuals unique. We strive to be a safe place where regardless of  age, color, disability, gender, gender identity, gender expression, family status, national origin, race, ethnicity, or sexual orientation; you are heard, empowered and valued because we truly believe that every person brings a unique perspective and experience to advance our mission.

In order to attract and retain a high performance team, we offer a dynamic and rewarding work environment. In addition to a competitive salary, NHF provides a comprehensive health and wellness program to eligible employees, family members and domestic partners. Our health and wellness programs include medical, dental, vision, prescription drug, preventative care, mental health services and an employee assistance / work-life balance program. We also offer:

    • Full time employees: Three weeks (+) of vacation, four personal days, 12 sick days, 11 paid holidays, 1 Floating Holiday
    • We also offer paid time off to Part-Time Employees
    • Paid Short-Term Disability insurance & Life Insurance
    • Pre-tax savings plan (including Flexible Spending Accounts and Commuter Transit Account)
    • a 403(b) retirement plan.

How To Apply:

If you are interested this opportunity, please send your resume, cover letter and salary requirements to jobs_nhf@hemophilia.org. No phone calls please.

Senior Director of Public Relations and Communications


Posted:

Organization: National Hemophilia Foundation

About the Role

Reporting to the VP of Advancement, the Senior Director of Public Relations and Communications will champion the overall mission of NHF primarily by leading NHF communications and public relation efforts. You will work to develop and implement a broad range of public relations, communications, and media relations activities in support of NHF’s mission and vision. The Senior Director of Public Relations and Communications will work closely with the Director of Online Marketing, and the Director of Communications along with several leaders within the foundation as a partner on NHF’s strategic imperatives. You will be a key contributor to critical marketing strategies, including but not limited to thought leadership content, social media marketing, and event marketing. You will work to ensure NHF is the primary source of information for internal and external sources. Additional responsibilities include, but are not limited to;

  • Develop and implement a public relations and communications strategy that increases brand awareness, clarifies brand experience and personalizes what NHF means to communities around the world through various events, engagements, interviews, op-eds and public facing opportunities.
  • Develop and implement communications and publicity strategies for NHF’s programs, services, public policy and research initiatives.
  • Brainstorm, pitch and secure proactive media opportunities, op-ed placements, influencer meetings and events through traditional and digital channels.
  • Field incoming media inquiries, develop media contacts in print, television, radio and other industry and community influencers important to NHF’s mission.
  • Create partnerships with other public relations professionals throughout NHF’s chapter network to ensure we are speaking with one voice, leveraging the best ideas and lifting up compelling stories across the foundation.

What You Bring:

  • Bachelor’s degree and 10 +years progressively responsible public relations experience in mid-large sized non-profit organization.
  • Significant public relations experience that includes media relations.
  • A strong track record of positioning an organization to achieve tangible outcomes in a competitive public relations environment.
  • Ability to coach and support senior leaders as spokespersons.
  • Highly collaborative style; experience developing and implementing public relation strategies.
  • A strong track record as an implementer who thrives on managing a variety of key initiatives concurrently.
  • High energy, maturity, and leadership with the ability to serve as a unifying force and to position public relation discussions at both the strategic and tactical levels.
  • Sincere commitment to work collaboratively with all constituent groups, including staff, board members, volunteers, donors, program participants, and other supporters.
  • Self-starter, able to work independently, and entrepreneurial; enjoys creating and implementing new initiatives.
  • Solid computer skills.
  • Superior writing skills with rigorous attention to detail.
  • Superb time management; ability to handle multiple tasks, adhere to deadlines and work well under pressure, both independently and as part of a team. 
  • Excellent interpersonal skills.
  • Ability to work at evening or week-end events.
  • Bilingual a plus!!

Where You Will Work:

This is a remote based position. Candidate will be expected to travel to events and meetings as requested by the VP of Advancement. 

What We Offer:

At NHF our mission is to serve those affected by all inheritable bleeding disorders. We are committed to our employees as well as those we serve.  To do so, NHF seeks and values those qualities, both visible and invisible, that makes individuals unique. We strive to be a safe place where regardless of  age, color, disability, gender, gender identity, gender expression, family status, national origin, race, ethnicity, or sexual orientation; you are heard, empowered and valued because we truly believe that every person brings a unique perspective and experience to advance our mission.

In order to attract and retain a high performance team, we offer a dynamic and rewarding work environment. In addition to a competitive salary, NHF provides a comprehensive health and wellness program to eligible employees, family members and domestic partners. Our health and wellness programs include medical, dental, vision, prescription drug, preventative care, mental health services and an employee assistance / work-life balance program. We also offer:

    • Full time employees: Three weeks (+) of vacation, four personal days, 12 sick days, 11 paid holidays, 1 Floating Holiday
    • We also offer paid time off to Part-Time Employees
    • Paid Short-Term Disability insurance & Life Insurance
    • Pre-tax savings plan (including Flexible Spending Accounts and Commuter Transit Account)
    • a 403(b) retirement plan.

How To Apply:

If you are interested this opportunity, please send your resume, cover letter and salary requirements to jobs_nhf@hemophilia.org. No phone calls please.

 

Manager of Medical Education Grants


Posted:

Organization: National Hemophilia Foundation

NHF is looking for a Manager of Medical Education Grants to join our team! Under the direction of the Senior Vice President of Medical Programs & Information, the Manager of Medical Content will be responsible to support the growth and expansion of NHF by assisting in the development of grant proposals for NHF medical education program initiatives. You will be working with volunteers to produce peer reviewed journal articles and one in-person medical education meeting. Our ideal candidate will also demonstrate behaviors that support NHF’s commitment to fostering a diverse, inclusive, and safe workplace as well as a commitment to NHF’s standards of behaviors of Accountability, Collaboration, Service & Support.

Where you will work:

This is a remote based position. Candidate will be expected to travel to events and meetings as requested by the Senior Vice President of Medical Programs and information.

What You Bring:

To qualify for this unique opportunity, our ideal candidate should have the following skills, education and experience:

  • A bachelor’s degree in English or journalism or some educational background in sciences. Masters preferred.
  • At least 3 years of grant-writing or medical writing experience. Experience writing grants for a health organization is a plus.
  • Broad experience managing the medical writing responsibilities associated with multiple studies at various stages
  • Knowledge of routine document content preparation, including the use of style guides, medical dictionaries, and regulatory guidance documents and templates.
  • Outstanding writing skills
  • Able to translate complex scientific information into practical communications
  • Deep understanding of AMA style
  • Excellent communication skills (written & verbal in English)
  • Deadline driven, results-oriented, accurate, and analytical, and organized.
  • Self-motivated and able to work independently, with input/guidance from health experts.
  • Thrives in a fast-paced, deadline-driven environment.
  • Bilingual a plus!
  • Self-starter and team player.

If you are interested this opportunity, please send your resume, cover letter and salary requirements to jobs_nhf@hemophilia.org. No phone calls please.

Chief Scientific Officer


Posted:

Organization: National Hemophilia Foundation

 

The National Hemophilia Foundation (NHF) is dedicated to finding better treatments and cures for inheritable bleeding disorders and to preventing the complications of these disorders through education, advocacy, and research. Learn more at Hemophilia.org!

About the Role

NHF is looking for a Chief Scientific Officer to join the team! Under the direction of the President & CEO, the Chief Scientific Officer (CSO) will be responsible for creating and spearheading NHF’s research strategy. The CSO will also be responsible for envisioning and developing NHF’s research capabilities and oversight of the NHF Research Department. The CSO will integrate the science with the business strategy. Other responsibilities will include but are not limited to:

  • Facilitate communication and present information to both internal and external stakeholders at all levels, including senior and executive level leadership, to effectively drive programs/initiatives.
  • Spearhead development, growth and execution of innovative research strategies for NHF.  Collaborating with President & CEO, frequently involving other executive officers and/or outside agencies.
  • Ensures strategic alignment on scientific issues within NHF and at a national and international level.
  • Serve as a resource to MASAC and its members.
  • Composes complex confidential reports and prepares executive summaries and correspondence.
  • Create and lead strategic research initiatives, in collaboration with executive leadership, to provide insight into consumer data and actionable recommendations for direction in unmet need.
  • Demonstrate behaviors that support NHF’s commitment to fostering a diverse, inclusive, and safe workplace.
  • Demonstrate a commitment to NHF’s standards of behaviors of Accountability, Collaboration, Service & Support.
  • Oversee the Research department budget.

 



Where you will work:

This is a remote based position. Candidate will be expected to travel to events and meetings as requested by the President & CEO.

 



What You Bring:

To qualify for this unique opportunity, our ideal candidate should have the following skills, education and experience:

  • Medical and/or Doctoral degree in the life sciences; at least 20 years of experience that can be demonstrated to be applicable to the duties listed in the job description.
  • Experience in directing research in a non-profit organization or similar organizations.
  • Expert skills at critical evaluation of evidence, including the ability to critique the research methods and statistical findings of published studies in order to rate the overall strength of evidence underlying an analysis of comparative effectiveness.
  • Experience in the interpretation of applied quantitative research methods, analysis and biostatistics (including meta-analysis).
  • Knowledge and understanding of institutional goals, objectives, structure and operations.
  • Knowledge and/or experience in the community of persons with bleeding disorders required.
  • Demonstrated ability to successfully direct, coordinate, and strategically integrate multiple developmental, enhancement, and/or modification projects at an institutional level.
  • Excellent communication, interpersonal, and team building skills.
  • Conversational proficiency in a second language is preferable.
  • Strategic planning skills.
  • Ability to gather data, investigate and analyze information while being able to draw conclusions and issue recommendations.
  • Ability to create, compose and edit correspondence, written materials and/or complex reports.
  • Understanding of business concepts and general management issues in the delivery of regional services. Ability to guide effective action and strategic planning.
  • Excellent presentation and project management skills as well as proficiency in MS Office required.

 



What We Offer:

At NHF our mission is to serve those affected by all inheritable bleeding disorders. We are committed to our employees as well as those we serve.  To do so, NHF seeks and values those qualities, both visible and invisible, that makes individuals unique. We strive to be a safe place where regardless of  age, color, disability, gender, gender identity, gender expression, family status, national origin, race, ethnicity, or sexual orientation; you are heard, empowered and valued because we truly believe that every person brings a unique perspective and experience to advance our mission.

In order to attract and retain a high-performance team, we offer a dynamic and rewarding work environment. In addition to a competitive salary, NHF provides a comprehensive health and wellness program to eligible employees, family members and domestic partners. Our health and wellness programs include medical, dental, vision, prescription drug, preventative care, mental health services and an employee assistance / work-life balance program. We also offer:

  • Full time employees: Three weeks (+) of vacation, four personal days, 12 sick days, 11 paid holidays, 1 Floating Holiday
  • Paid Short-Term Disability insurance & Life Insurance
  • Pre-tax savings plan (including Flexible Spending Accounts and Commuter Transit Account)
  • 403(b) retirement plan

 



How To Apply:

If you are interested this opportunity, please send your resume, cover letter and salary requirements to jobs_nhf@hemophilia.org. No phone calls please.

Manager of Chapter Development


Posted:

Organization: National Hemophilia Foundation

 

NHF is looking for a Manager of Chapter Development to join our team. Reporting to the Director of Chapter Development, you will ensure chapter strength and success by providing training, guidance and coordinating assistance to NHF’s chapter network.

Under the direction of the Director of Chapter Development, you will create and manage effective training, coaching and resource assistance activities to improve chapter outcomes and/or maximize chapter opportunities. The position is responsible for assisting Chapters in maximizing necessary resources, both inside and outside the National office, to help chapters make a positive impact in their local communities through adherence and implementation of best practice standards. Additional responsibilities include but are not limited to; 

  • Serve as liaison and point of contact to chapter staff and leadership volunteers in search of resources, assistance, and support. This includes the timely coordination of assistance from other NHF departments or teams 
  • Create and manage programs/activities for targeted chapters to strengthen general day-to-day operations, focusing on areas of Volunteer Management, Fundraising Development, Marketing and Communications, Board Development and Recruitment, etc. 
  • Work with Director and Manager of Chapter Advancement to support advancement activities as necessary, including the Unite for Bleeding Disorders Walk program 
  • Develop, implement, and continuously monitor progress of chapter services activities designed to effectively produce positive outcomes for chapters (i.e. pilot projects, cohort groups, and board development workshops, webinars, etc.) 
  • Deliver meaningful assistance to chapters with identified gaps in chapter standards, including the coordination and collaboration of other NHF departments and external consultants  
  • Assist chapters to assess needs, gaps in required standards and standards of excellence and any opportunities and threats which may impact chapter outcomes 
  • Assist in the planning and implementation of chapter training programs, including: Bleeding Disorders Conference Chapter Track; Chapter Leadership Seminars; and the National Chapter Meeting 
  • Develop content and support communication efforts sharing chapter service activities through various available forums.
  • Assist chapters in strengthening collaborative relationships with local and regional Hemophilia Treatment Centers (HTCs), donors, and other organizations with shared programs, services and missions 
  • Support NHF’s capacity-building grant programs including the application and review processes, management of grantees, and reporting of project outcomes 
  • Assist in managing the Chapter Webinar Series, creating or obtaining outside resources when needed. Collaborate with other Chapter Services and Advancement Department staff in further developing, populating and overseeing this program to ensure is meaningful to chapter leaders 
  • Facilitate mentoring relationships with chapters to share best practices and expertise and assist in developing communities of practice for chapter staff. 
  • Work with chapters to strengthen, create, and manage relationships with non-Industry funders/potential funders  
  • Demonstrate behaviors that support NHF’s commitment to fostering a diverse, inclusive, and safe workplace 
  • Demonstrate a commitment to NHF’s standards of behaviors of Accountability, Collaboration, Service & Support 

 



What You Bring: 

To qualify for this unique opportunity, you should have the following skills, education and experience:

  • Bachelor’s degree in nonprofit management, communications, social sciences, or related field preferred 
  • Three to five years’ experience in a professional non-profit environment
  • Knowledge and/or experience in the community of persons with bleeding disorders preferred
  • Ability to develop and deliver meaningful training content to chapters
  • Background in planning and implementing nonprofit special events
  • Understanding of business concepts and general management issues in the delivery of local and regional services
  • Ability to develop and build community-based, family-centered organizations serving a chronically ill population
  • Knowledge of effective peer-to-peer fundraising models, revenue diversification strategies, and donor management, including donor management software is a plus
  • Ability to guide effective action through project management and coaching for results.  
  • Exceptional interpersonal, analytical and communication skills
  • Excellent presentation, and project management skills, as well as, proficiency in MS Office required

 



Where You Will Work:

This is a remote based position required to travel to National and Chapter events and meetings as requested by the Director of Chapter Development.

 



What We Offer: 

At NHF our mission is to serve those affected by all inheritable bleeding disorders. We are committed to our employees as well as those we serve.  To do so, NHF seeks and values those qualities, both visible and invisible, that makes individuals unique. We strive to be a safe place where regardless of  age, color, disability, gender, gender identity, gender expression, family status, national origin, race, ethnicity, or sexual orientation; you are heard, empowered and valued because we truly believe that every person brings a unique perspective and experience to advance our mission.

In order to attract and retain a high-performance team, we offer a dynamic and rewarding work environment. In addition to a competitive salary, NHF provides a comprehensive health and wellness program to eligible employees, family members and domestic partners. Our health and wellness programs include medical, dental, vision, prescription drug, preventative care, mental health services and an employee assistance / work-life balance program. We also offer:

  • Full time employees: Three weeks (+) of vacation, four personal days, 12 sick days, 11 paid holidays, 1 Floating Holiday
  • We also offer paid time off to Part-Time Employees 
  • Paid Short-Term Disability insurance & Life Insurance 
  • Pre-tax savings plan (including Flexible Spending Accounts and Commuter Transit Account)
  • 403(b) retirement plan 

 



How To Apply:

If you are interested this opportunity, please send your resume, cover letter and salary requirements to jobs_nhf@hemophilia.org. No phone calls please.

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