Federally Funded Research
NHF’s federal agenda includes advocating for funding for federal research programs and other federal programs of interest:
- National Institutes of Health (NIH) National Heart Lung and Blood Institute (NHLBI) – NHF advocates for funding for NHLBI, which supports biomedical research in hemophilia, von Willebrand Disease and other bleeding disorders.
- Patient Centered Outcomes Research Institute (PCORI) – NHF is interested in any comparative effectiveness research (CER) that involves bleeding disorders. NHF continues to advocate to ensure that individuals with rare diseases, including hemophilia, are represented in PCORI based research activities and was very pleased when PCORI recently announced the establishment of an Advisory Panel on Rare Disease.