Each March, NHF calls attention to inheritable blood and bleeding disorders during Bleeding Disorders Awareness Month. This month lets patients and families with hemophilia, von Willebrand disease, rare factor disorders, and more, share their lives, stories, struggles, and successes.

Explore this page for more information on getting involved this #BleedingDisordersAwarenessMonth, and how you can help start the conversation around inheritable blood and bleeding disorders.

Join the Conversation - #BleedingDisordersAwarenessMonth
2022 Bleeding Disorders Awareness Month Theme

During March 2022, NHF invites the community to “Start the Conversation” around issues and experiences related to inheritable blood or bleeding disorders. Whether your concerns or interests revolve around research, treatments, women’s health, mental health, medical marijuana, or other topics, you can play a role in starting and elevating these important conversations. Read on for more information on how to get involved.

The History Behind Bleeding Disorders Awareness Month

Bleeding Disorders Awareness Month has been observed each March since 2016, after being designated as a national health observance by the U.S. Department of Health and Human Services. BDAM aims to increase awareness of inheritable blood and bleeding disorders among the public, as well as bring them to the attention of policymakers, public authorities, industry representatives, scientists, and health professionals.

Prior to BDAM, March was known “Hemophilia Awareness Month” – a designation confirmed by President Ronald Reagan in March 1986.

Conversation Starters: Family History

 

Bleeding and Blood Disorder FAQs

How many people are impacted by blood or bleeding disorders?

According to the U.S. Centers for Disease Control, there are about 3 million people nationwide who are affected by bleeding disorders.

What exactly are blood or bleeding disorders?

These disorders share the inability to form a proper blood clot. The body produces 13 clotting factors. If any of them are defective or deficient, blood clotting is affected; a mild, moderate, or severe bleeding disorder can result.

What are the most common disorders?

Between 30,000 and 33,000 people in the U.S. are thought to live with hemophilia. The most common bleeding disorder is von Willebrand disease (VWD), which affects about 1 in every 100 people. Both hemophilia and VWD are classified as rare diseases.

What are symptoms of blood or bleeding disorders?

Symptoms can include extended bleeding after injury, surgery, trauma, or menstruation. Sometimes the bleeding is spontaneous, without a known or identifiable cause. Improper clotting can be caused by defects in blood components such as platelets and/or clotting proteins, also called clotting factors. Symptoms of a disorder may include:

  • Frequent or prolonged bleeding
  • Excessive bruising
  • Prolonged, heavy menstrual periods (menorrhagia)
  • Unexplained nosebleeds
  • Extended bleeding after minor cuts, blood draws or vaccinations, minor surgery, or dental procedures

 

Get Involved

There are many ways to start the conversation and get involved during BDAM:
 

Send a video to this link and share what topics are most important to you this month. Your video might even be shared on NHF’s social media to inspire others!

Send a Video

Get active from wherever you are to raise funds and awareness during BDAM!

Get Active!

Make a donation to support patients and families during BDAM, and you’ll receive a special shirt!

Give Today

Become an NHF advocate and support the issues important to our community.

support the community

Support the 10 Red Tie Runners at the NYC Half Marathon on March 20 by joining NHF’s in-person cheer crew!

Show Your Support

NHF’s Annual Bleeding Disorders is the perfect place to start important community conversations. Sign up now!

Learn More & Register

Honor the shining stars of our community by nominating a community member or medical professional for NHF’s annual Awards of Excellence!

Nominate someone for an award

Download an informational PDF about NHF’s flagship programs. (View in Spanish.)

download the pdf

How Have blood and bleeding disorders impacted you and your family?

Share Now

Submit a question, and licensed social workers may answer it in an upcoming publication. Your question could help others!

Ask a social worker

Receive regular communications from NHF.

Sign Up

Reach out to your local media publication with this customizable template.

Send a Letter

Your local government can acknowledge BDAM in your community! Use this proclamation template to increase awareness where you live.

download the template

Help start the conversation this Bleeding Disorders Awareness Month with a unique t-shirt!

Start designing

 

Get Social

Follow NHF

Connect with NHF by following the latest conversations on Twitter, Facebook, LinkedIn, Instagram, and YouTube.

 

Use Official BDAM Hashtags

#BDAM

#BleedingDisordersAwarenessMonth

 

Show Your Support

Social media is a great way to express your support of BDAM. Here’s a few ideas on how to start the conversation on social media:

Download these graphics to share on your social media profiles and engage your community in important discussions.

Download the Graphics

Want to start the conversation on social media during #BleedingDisordersAwarenessMonth but not sure where to start? Use these examples.

View the Examples

Take photos in the official virtual photo booth and share them on social media!

Take Photos

Pose with this photo prompt and share what you’ll be starting a conversation about this month.

Get the Prompt

BDAM supporters are encouraged to wear red throughout the month, as it’s the official color for bleeding disorders. Post an “outfit of the day” (OOTD) on social media to spark conversations about these disorders, or click the link to share your look!

Share Your Outfit of the Day

Include this customizable email blurb to ask your friends and family to join you in starting the conversation during BDAM.

View the Samples

 

Resources

Use these resources throughout BDAM to inspire relevant conversations.

Create Your Own Video Station

Learn how to create an easy video station from your smart phone or tablet to help others share their stories.

Coming Soon!

Poll Your Community

Learn how to create polls on social media to see which conversations are most important to your network.

Coming Soon!

Infographics

Download useful infographics from HemAware and NHF:

 

THANK YOU TO OUR PARTNERS

Red Tie Society Visionary Members

 

Red Tie Society Benefactor Members

 

Red Tie Society Patron Members