Own Your Path

• You can participate in this program if you:
  • Were assigned male at birth and
  • Live in the United States and
  • Are between the ages of 18 to 29 and
  • Have Hemophilia A or Hemophilia B and
  • Are on prophylaxis treatment (also called “prophy”)
• Currently, we are only able to offer this program to people who speak English.

• The program includes:
  • Access to health coaching to help you set and achieve goals related to your treatment and overall health.
  • Workbooks to help you manage your bleeding disorder, that cover topics like understanding your diagnosis, scheduling appointments at the Hemophilia Treatment Center (HTC), dealing with health insurance, sexual health, and more.
  • A library of health resources with tips on staying active, practicing mindfulness, reducing stress, getting better sleep, and eating healthily.

The program is designed to help participants with managing and staying on top of their hemophilia treatment, as prescribed by their doctor, and their overall health and wellness.

• You will learn new skills to better manage your hemophilia treatment, which we hope will help you to prevent bleeding episodes.
• You will have a health coach to help you learn how to set and accomplish health goals related to your bleeding disorder treatment, and overall well-being.
• You will have the opportunity to set and accomplish health goals related to your bleeding disorder, treatment, and overall well-being. You'll have access to other resources such as time management, tips on improving sleep, ways to manage stress, increase physical activity, and healthy eating.

To join:

• Fill out the eligibility survey on the Own Your Path website. If you qualify, you'll get an email from NexJ Health (the health app developer) with a link to log in to the app with your username and password.
• Log into the app and complete the initial survey. This will help us target the workbooks we recommend specifically to you.
• Congratulations, you are now enrolled! Your health coach will contact you to set up a meeting.

• If you have any questions about how to complete a workbook or do something in the NexJ Health app, please contact the NexJ program concierge (someone who will help you with the answers you may need) through the platform.
  • Go to the "Conversations" section
  • click on "Program Concierge," and type in your message or question.
  •  When you're finished, click "done" to send your message. They will be there to assist you and provide the answers you need.
• If you have a question about the information in the workbook. Please contact NBDF at ownyourpath@hemophilia.org

Please contact NBDF by email at ownyourpath@hemophilia.org.

You can make changes to your program goals at any time by contacting the health coach.

The program is free.

The program lasts 6 months, but you can access the website and information on the platform for one year.

No, you cannot finish early. The workbooks are released in stages, and the program is designed to last for the entire six months allowing you to build healthy habits over the time period.

On average, the program will take less than one hour a week.

The program is virtual.

• You connect virtually to the app.
• The monthly meetups will occur through a virtual platform (i.e. Zoom).

• You can access the program on the NexJ app whenever you want and at your own pace.
• The monthly meetups are live and happen once a month at a specific date and time. This means that you join the meetups at that scheduled time to participate in real-time discussions with others. But don't worry, if you can't make it to a meetup, you can still access the program's resources and materials at your convenience.

• The monthly meetups are virtual gatherings where you can join other participants, the health coach, and NBDF staff to talk and learn about different topics that interest you.
• During these meetups, you can discuss and explore subjects such as how to set achievable goals, ways to manage your treatment effectively, and other important topics like gene therapy for hemophilia, insurance, and mental health to name a few.
• It's a great opportunity to connect with others, share experiences, and gain valuable knowledge.
• You will be entered into a raffle to earn a gift card for participating.

You will have the opportunity to receive incentives through gift cards - up to $100 can be earned from completing specific surveys plus additional incentives for monthly meetups (monthly meetup incentives are raffled off).

A health coach is someone who offers support and encouragement to help participants set and achieve their goals. They are like a positive influence that helps you stay motivated and overcome any challenges that might be getting in the way of reaching your goals. They provide guidance and strategies to help you succeed on your health journey.

• The health coaches are paid by NexJ.
• NBDF pays for this program through funding received by a special agreement (called a cooperative agreement) between the Centers for Disease Control (CDC) and the National Bleeding Disorders Foundation (NBDF).