President and CEO
President & Chief Executive Officer
For over three decades I treated families with bleeding disorders, working towards finding better treatments for patients and preventing complications of their disorders through education, advocacy, and research. My work was most gratifying when I could help someone realize his or her full potential, living a life not limited by a diagnosis or its complications. Diagnosing and treating boys and girls, men and women, parents, grandparents and family members was fulfilling personally and professionally. Conducting clinical and laboratory research helped me to understand how to develop and elevate treatments to new levels, seeking cures and improving the quality of life for everyone in the bleeding disorders community. I have spent time in the biopharmaceutical industry trying to understand how to bring new therapies to patients globally. My past experiences as a physician, educator, researcher, and an industry partner have all focused on treating patients and their families and have provided me with the experiences and knowledge to take on this challenging role as the President and CEO for the National Hemophilia Foundation, a role I take on behalf of the entire bleeding disorders community and one that I see as the pinnacle of my career – serving you.
The landscape of the bleeding disorders community is changing and there are challenges ahead. Gene therapy and novel technologies and treatments bring new opportunities, and many questions as well. We will face these challenges together, working jointly to find solutions. Through collaboration with patients, families, chapters, partners, supporters, medical professionals, patient organizations, government agencies, and all stakeholders in the bleeding disorders community, everything is possible. I believe in unity, and my past leadership roles in these areas put us in a unique position to move forward in ways we haven’t had the opportunity to do so ever before. To unlock our greatest potential in such an exciting time we must all support each other – this is what will define our success.
This is an exciting time for the bleeding disorders community as research is progressing forward in unimaginable ways, but there is still more to be done. This is why one of my primary objectives will be to increase our funding to support innovative research on new therapies, and then educating stakeholders on these advancements. Advocating on behalf of those impacted by bleeding disorders with our legislators locally and in Washington D.C. for better access, including access to care, to treatment centers, to physicians, and to new treatments will be ever more important.
I look forward to working with you in our joint pursuit to improve the outcomes for our community.
She, Her, Hers
Chief Operating Officer
Dawn has been a leader in the bleeding disorders community for many years. As a parent of a son with hemophilia, she founded the Rocky Mountain Hemophilia & Bleeding Disorders Association in Bozeman, Montana, served as its Executive Director, and began their Family Camp. After moving to Pittsburgh, Pennsylvania, Dawn worked for the American Diabetes Association (ADA) as an Area Manager. Concurrently, she served as a board member for the Hemophilia Center of Western Pennsylvania for six years. Dawn left the ADA for a position as the Executive Director of the Western Pennsylvania Chapter of the NHF in Pittsburgh, where she became actively involved with Camp Hot to Clot and eventually became the Director. She holds a Bachelor of Science from Montana State University in Bozeman.
Jordana Zeger, MBA
She, Her, Hers
Chief Financial Officer
New York, NY
Jordana has more than 35 years of experience in the healthcare-related nonprofit field. She served as vice president and CFO for a residential adolescent treatment agency for more than 12 years where she oversaw finance, accounting, grant management, construction, and human resource and IT services. In her role as CFO she also served as the business administrator for a private special education school. Jordana is the past executive director of the Northwest Early Intervention Collaborative in New Jersey that insured that services, under federal regulation, were provided to children with disabilities in northwest NJ. Jordana received her MBA from Baruch University, NYC, master 's degree from Western Oregon University and bachelor 's degree from Florida International University.
Chief External Affairs Officer
Michelle's passion for advocacy for people with bleeding disorders has been an integral part of her career. As the mother of two sons with severe hemophilia, she has been involved in the bleeding disorder community in various capacities for 24 years. Prior to joining NHF, she held various board positions within the hemophilia community including Hemophilia of Indiana, the Indiana Hemophilia & Thrombosis Center and Cascade Hemophilia Consortium. She later served as the Executive Director of Hemophilia of Indiana for nine years.
Her commitment to increasing access to hemophilia patient care, research and awareness through education and coalition building led to her election to the boards of various healthcare organizations such as the Indiana Comprehensive Health Insurance Association and the Foundation for Complex Healthcare Solutions and Community Health Charities.
Chief Business Officer
Vice President of Advancement
Brett is an innovative nonprofit executive with more than 20 years of experience in the healthcare nonprofit field. As the Vice President of Advancement, Brett leads theNHF's development, communications, marketing, and walk programs. Brett possesses significant experience in fundraising, including annual fund programs, major gifts, corporate and foundation development, special event fundraising, capital campaigns, and planned giving efforts. He has created and managed successful communications initiatives, including marketing, media relations and social media development, along with board governance and structure. Brett previously held leadership positions at Autism Speaks, The Alzheimer's Association, The ARC, The American Society for Parenteral and Enteral Nutrition, and the American College of Cardiology. He is also actively involved with the American Society of Association Executives, the Association of Fundraising Professionals, The Center for Nonprofit Excellence, and Board Source. Brett attended George Mason University, where he completed his undergraduate and graduate work in communications and public administration.
Conference and Travel Services
Finance and Administration
Medical Programs and Information
Neil Frick, MS
Senior Vice President for Medical Programs and Information
New York, NY
Responsible for the overall strategic and operational leadership of the National Hemophilia Foundation's (NHF) medical programs and HANDI Information Resource Center including oversight of the processes of material development, update and distribution channels. Supervise the awarding of clinical fellowships and other health care provider awards. Support the work of NHF's Medical and Scientific Advisory Council and supervise NHF's continuing education program serving bleeding disorders treatment professionals. This includes the development of healthcare provider publications, pre-conference symposium and medical program tracks at NHF's Bleeding Disorders Conference and webinars.
National Chapter Staff
Michelle Witkop, DNP, FNP-BC
She, Her, Hers
Head of Research
Traverse City, MI
As the Head of Research, Dr. Witkop, a Doctor of Nursing Practice, leads the National Hemophilia Foundation’s research initiatives. Previously the lead practitioner at the Northern Regional Bleeding Disorders Center in Traverse City MI, she is the 2015 recipient of the Nurse of the Year Award from the American Nurse Credentialing Center (ANCC) for Transformational Leadership, a past Chair of NHF’s Nursing Work Group and the 2014/2015 Co-Chair of NHF’s Annual Meeting. Dr. Witkop is an ATHN/HRSA Demonstration Project of National Significance Grantee with the project, “Evaluating a Nurse Practitioner Medically Lead Hemophilia Treatment Center in Comparison to a Physician Medically Lead Hemophilia Treatment Center”.
Her background includes extensive experience and research in pain management including chronic pain and palliative care. Prior to joining the bleeding disorders community, Dr. Witkop was employed in a chronic pain practice and was Board Certified in Palliative Care. She has been the principal investigator or co-investigator for multiple hemophilia pain research studies including the National Pain Study and the IMPACT Quality of Life Studies and has published multiple articles as well as lectured extensively. She is a past-chair of and continues working with the MASAC Pain Initiative Subcommittee.