NHF’s Washington Days is an opportunity for people affected by inherited blood disorders to advocate for issues that are important to them. In 2021, Washington Days had more than 400 volunteer advocates from 45 states that met with legislators and staff to discuss federal funding for bleeding disorder programs and support policies that increase affordability of coverage and access to care.
Issues at Washington Days 2022 will include:
- Bleeding Disorders Awareness (March is our month!)
- Federal Funding for Bleeding Disorders Program
- HR 5801 (Accumulator Adjuster Legislation)
Please note that Washington Days 2022 will be an entirely virtual experience. Washington Days programming will take place during the dates of March 1-2.
Preparatory webinars were hosted for the 2021 event. Similar webinars are planned for February 15, 2022.
- Beginner advocates (0-1 times attending prior Washington Days): February 15, 2022, at 2:00-3:00 EST
- Advanced advocates (2 or more times attending Washington Days): February 15, 2022, at 3:30-4:00 EST
A final agenda for the 2022 events will be released closer to the conference. Below is a general outline for events:
2022 Washington Days Agenda
Tuesday, February 15, 2022: Planning Webinars
Beginner Advocates (0-1 times attending prior Washington Days) - 2:00 p.m. – 3:00 p.m. EST
Advanced Advocates (2 or more times attending Washington Days) - 3:30 p.m. – 4:00 p.m. EST
Tuesday, March 1, 2022
Hill Visits and Issues Training - 3:00 p.m. – 5:00 p.m. EST
State Team Meetings – 5:00 p.m. – 5:30 p.m. EST
Wednesday, March 2, 2022
Hill visits - 9:00 a.m. – 5:00 p.m. EST (exact schedules will be released by Sunday, February 28th, 2022)