Women with Bleeding Disorders

NHF is committed to improving the health outcomes for women with bleeding disorders. Our women's initiatives goals are:

  • to increase awareness of women’s bleeding disorders so that girls and women receive early, accurate diagnoses, leading to better health outcomes. NHF’s Better You Know campaign targets undiagnosed women and their healthcare providers to get them on the path to diagnosis, treatment and care.
  • to provide women affected by bleeding disorders with the education, support, skills and resources they need to advocate for their healthcare, financial,and social support needs.

NHF offers various types of educational programming and publications for women and girls with bleeding disorders. Victoryforwomen.org celebrates the voices of women in the bleeding disorders community. It’s a place for you to share your creative expression of all kinds: photography, blog posts, stories, poems…whatever you feel captures you. A place where women in the community can express themselves, ask their questions, share their challenges, and above all, celebrate the victory of standing up and being heard.

 

Share your story on Victory for Women.

 

Time to Talk Puberty: A Guide for Girls with Bleeding Disorders is a book for girls ages 9 – 15  with bleeding disorders. The parent companion booklet, Time to Talk Puberty: Tips for Parents & Caregivers is a resource for parents and caregivers to help guide discussions about puberty with girls with bleeding disorders.

In collaboration with our chapter and HTC network we offer a variety of workshops for girls and women of all ages. Workshop topics include self-advocacy, communication strategies, resiliency, puberty, self- esteem, navigating emotions, and bleeding disorders among women. Workshops can be delivered in person and virtually upon request from chapter or HTC staff.

If you have questions, please reach out to v4winfo@hemophilia.org.

 

Learn more about NHF's live workshops.

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