Women with Bleeding Disorders
NHF is committed to improving the health outcomes for women with bleeding disorders. Our women's initiatives goals are:
- to increase awareness of women’s bleeding disorders so that girls and women receive early, accurate diagnoses, leading to better health outcomes. NHF’s Better You Know campaign targets undiagnosed women and their healthcare providers to get them on the path to diagnosis, treatment and care.
- to provide women affected by bleeding disorders with the education, support, skills and resources they need to advocate for their healthcare, financial,and social support needs.
NHF offers various types of educational programming and publications for women and girls with bleeding disorders. Victoryforwomen.org celebrates the voices of women in the bleeding disorders community. It’s a place for you to share your creative expression of all kinds: photography, blog posts, stories, poems…whatever you feel captures you. A place where women in the community can express themselves, ask their questions, share their challenges, and above all, celebrate the victory of standing up and being heard.
Time to Talk Puberty: A Guide for Girls with Bleeding Disorders is a book for girls ages 9 – 15 with bleeding disorders. The parent companion booklet, Time to Talk Puberty: Tips for Parents & Caregivers is a resource for parents and caregivers to help guide discussions about puberty with girls with bleeding disorders.
In collaboration with our chapter and HTC network we offer a variety of workshops for girls and women of all ages. Workshop topics include self-advocacy, communication strategies, resiliency, puberty, self- esteem, navigating emotions, and bleeding disorders among women. Workshops can be delivered in person and virtually upon request from chapter or HTC staff.
If you have questions, please reach out to firstname.lastname@example.org.
NHF is committed to improving the health outcomes for women with bleeding disorders. NHF’s Education Series will provide quality education and meaningful community support.
The Women's Education Series is offered at no cost to participants and is open to individuals and families from all around the world. Below is a list of upcoming and/or recently past events.
NHF's online education provides free quality education on issues that matter to all members of the bleeding disorders community. These webinars and webcasts bring the experience of expert providers and your peers directly to you. Watch the most recent webinars for women with bleeding disorders, or browse the complete listing.
NHF's Wednesday Webinars are a free education series open to providers and community members. Register to attend and learn about the latest in research, breakthrough developments, and more.
Stay informed with the latest updates for the inheritable blood disorders community.
NHF has numerous publications, brochures, and tools for women available here for download.
Thank you to our 2022 Partners in Women's Education