NHF has numerous publications, brochures and tools available here for download or if available print versions can be mailed to you by contacting handi@hemophilia.org. These engaging resources span across different bleeding disorders and can you used for patients and families, or sharing with schools, workplaces and extended family members and friends.

NHF encourages redistribution of its publications for educational purposes by other nonprofit bleeding disorders organizations. NHF produced materials, either printed publications or website content, cannot be translated or reproduced in whole or in part without prior written permission from NHF.

 

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jugando-a-lo-seguro-trastornos-hemorragicos-deportes-y-ejercicio.pdf
Playing it Safe: Bleeding Disorders, Sports and Exercise (Spanish)
Este folleto educativo describe la importancia de la actividad física para la salud de las articulaciones y el bienestar general de las personas que viven con trastornos hemorrágicos. Proporciona una visión general de varios deportes y actividades para todas las etapas de la vida y aborda cómo participar en la actividad física con seguridad.
nosebleeds.pdf
Nosebleeds
Created in collaboration with NHF's Nursing Working Group and nurses from Canada, this publication describes the unique issues a person with a bleeding disorder faces with a nosebleed. Causes of nosebleeds, basic treatment, when to consult the bleeding disorder treatment center and prevention issues are discussed.
FINAL SNF Implementation for consumers 9.30.21.pdf
SNF Implementation for Consumers
guidelinesforfindingchildcare.pdf
The Child with a Bleeding Disorder: Guidelines for Finding Childcare
This publication provides a helpful guide for parents of children with bleeding disorders as they make choices about in-home care, cooperative childcare, center-based childcare and choosing a daycare center. Also included is a checklist of provider services and helpful hints for babysitters and other family caretakers.
vwd-youth-activity-book.pdf
VWD Youth Activity Book
Activity book for children with VWD.
von Willebrand Disease Youth Activity Book
NHF_LIVINGInhibitor_SC_Pages.pdf
La Vida con un Inhibidor
Su guía para controlar la hemofi lia con inhibidores
La Vida con un Inhibidor
emergency_checklist_final.pdf
Family Emergency Kit Checklist
The checklist includes tips for creating a family emergency plan that addresses both universal needs and special considerations for those affected by a bleeding disorder.
inheritedbleedingdisorderschildabuseinvestigations.pdf
Inherited Bleeding Disorders and Child Abuse Investigations
A resource for emergency medical providers, healthcare workers, day care and school personnel, and child protection advocates, this booklet is intended to prevent unwarranted charges of abuse filed against parents or guardians of children with bleeding disorders. It explains hemophilia and von Willebrand disease and describes typical patterns of bruising or bleeding in children with the disorders.
hemorragias_nasales.pdf
Nosebleeds (Spanish)
Created in collaboration with NHF's Nursing Working Group and nurses from Canada, this publication describes the unique issues a person with a bleeding disorder faces with a nosebleed. Causes of nosebleeds, basic treatment, when to consult the bleeding disorder treatment center and prevention issues are discussed.
Mental Health Hotlines.pdf
Mental Health Hotlines
This list is for individuals and families affected by bleeding disorders who are in crisis. Individuals experiencing a life-threatening situation or having thoughts of self-harm or harming others should seek immediate assistance by calling 9-1-1 or going to the nearest emergency department.
Mental Helth Crisis Hotlines
nhf-bd-girlspuberty_book.pdf
Let's Talk Puberty: A Guide for Girls with Bleeding Disorders
This book discusses the puberty experience for girls with bleeding disorders ages 9-14 in a approachable and engaging format. Topics include, ‘what is puberty’, a basic overview on the various bleeding disorders, the physical and emotional aspects of puberty, and how to have conversations with friends and loved ones.
first_aid_for_school_personnel.pdf
The Child with a Bleeding Disorder: First Aid for School Personnel
A publication aimed at school nurses and teachers who have a student with a bleeding disorder. Descriptions of typical injuries and other incidences when bleeding occurs are discussed with proper steps that need to be followed as well as standard precautions and medications (bulk copies only available in Spanish).
living-with-inhibitors.pdf
Living With Inhibitors
NHF has developed this publication as part of a Cooperative Agreement with the Centers for Disease Control and Prevention for those who are newly diagnosed with an inhibitor. Find out how to treat bleeds when you have an inhibitor, options your healthcare provider may use for treatment of the inhibitor, and tips for handling the social, emotional and financial impact of inhibitors.
mild_hemophilia_r2.pdf
What is Mild Hemophilia?
Written in a straightforward and accessible style, this brochure is designed to help educate young readers about the mechanisms behind coagulation, prolonged bleeding and inheritance. It provides information on common myths, tips on prevention and basic treatment options.
von-willebrand-disease-piecing-together-the-vwd-puzzle.pdf
von Willebrand Disease: Piecing together the VWD Puzzle
To help individuals and families as they learn more about living with VWD.
von Willebrand Disease: Piecing Together the VWD Puzzle
phlbrochure.pdf
Role of New Prolonged Half-Life Clotting Factors in Hemophilia
“Role of New Prolonged Half-Life Clotting Factors in Hemophilia,” which was developed independently by an NHF working group, includes a basic explanation of the differences between these newer products and traditional factor therapies, and the treatment choice implications for consumers. It also provides a description and helpful graphic representation of factor half-life.